Post by kim55 on May 13, 2011 13:40:22 GMT -5
I am curious about how long it takes most people to get an accurate diagnosis.
On medical forms I have to say that I have "suspected" HFI, or that I have all the symptoms of HFI, because although I have had the classic symptoms all my life, only one doctor has ever bothered to take me seriously, and that was in a discussion with a pediatrician over whether my kids could inherit it. That doctor didn't know much, but she copied a couple of paragraphs for me to read and that was it. So I've never been "officially" diagnosed. When I brought it up to my family doctor a few years ago, he asked me how often I drank soft drinks (bleah!) and asked why I drank milk instead of orange juice when I had hypoglycemic symptoms (duh!). He finally decided that I just might understand what I was talking about so he then dropped the subject entirely.
Luckily, neither of my kids has HFI, but I mentioned in another post that my daughter has stomach pains that have gone on with varying degrees of intensity for years. They have gotten worse lately so she has been trying various elimination diets. It's been years since she saw a gastroenterologist, so she just saw a new one. Since she said her symptoms were slightly better when she left sugar out of her diet, I brought up testing for FM on the first visit. The doctor flatly told me it was too early. Now after the second visit the doctor is telling her to try elimination diets (which she has already been doing!) and is going to do some type of blood testing, probably for the same allergies that her allergist tested her for in the past. I am wondering if we will ever get to the FM testing, and if she should change doctors, or if that will simply start the sequence all over again.
On medical forms I have to say that I have "suspected" HFI, or that I have all the symptoms of HFI, because although I have had the classic symptoms all my life, only one doctor has ever bothered to take me seriously, and that was in a discussion with a pediatrician over whether my kids could inherit it. That doctor didn't know much, but she copied a couple of paragraphs for me to read and that was it. So I've never been "officially" diagnosed. When I brought it up to my family doctor a few years ago, he asked me how often I drank soft drinks (bleah!) and asked why I drank milk instead of orange juice when I had hypoglycemic symptoms (duh!). He finally decided that I just might understand what I was talking about so he then dropped the subject entirely.
Luckily, neither of my kids has HFI, but I mentioned in another post that my daughter has stomach pains that have gone on with varying degrees of intensity for years. They have gotten worse lately so she has been trying various elimination diets. It's been years since she saw a gastroenterologist, so she just saw a new one. Since she said her symptoms were slightly better when she left sugar out of her diet, I brought up testing for FM on the first visit. The doctor flatly told me it was too early. Now after the second visit the doctor is telling her to try elimination diets (which she has already been doing!) and is going to do some type of blood testing, probably for the same allergies that her allergist tested her for in the past. I am wondering if we will ever get to the FM testing, and if she should change doctors, or if that will simply start the sequence all over again.
