Bruising

[Roza&Meryem]

My daughter Roza is bruising very easy. Espicially on her leg.
I heard about a desiase called Cirrhosis, on the web, which is something about dieng liver cells , but could'nt understand it properly because of my bad english.
Did any of you have such a reaction because of HFI.
Roza have HFI.

[ukbill]

Quite the opposite for me I used to not bleed at all having very thick blood until I started controlling my Diet better.

However it is possible if her Liver is not in a good condition.

How long since she was diagnosed?

How are you doing with the HFI diet and how long has she been Fructose free?

Have you had a blood test that showed "fatty Liver" or decreased Liver function at all?

Sorry too many questions.

Your English is better than my Danish I think I know only 2 words of Danish.. Lurpak and Bacon

Keep smiling

[Roza&Meryem]

Roza is 3 year and 3 months old.
She was diagnosed 5 months ago.
Ultrasound scanning showed fat on her liver.
We follow the diet really good, but i feel shes not eating healthy. No vegetables beside cucumber. She dont get glukose or other sucker types. I know its allowed but she just dont like anything sweet.
Friends, im really scared. Never been like this. Shes bruising which could be an sign of cirrHosis. It cant be treated.

[Roza&Meryem]

Friends, the worst is the doctors in denmark. I called about this and they cant meet us before april. We are frustrated.
Should i wait? or should we find a privat hospital outside denmark?

[ukbill]

I agree with Fred about Hospital but your natural instincts will guide you best.

A few things about HFI that might help you.

1/. Firstly do not panic!

2/. A limited "unhealthy" Diet is what we with HFI thrive on.

3/. Do not let the 5 vegetable or fruit portions a day terrorists disturb you! The main reason 5 portions of fruit or veg a day is good for you is because it will replace 5 chocolate bars or 5 cakes.

4/. For an HFI child you have to turn everything you understood about nutrition on its head.

If Roza has a Fatty Liver then she was on her way to Liver failure before you changed her diet.

So other problems will "appear" until your little girl has repaired her Liver.. this might take a year or 2 until she has grown a new liver in effect.

Do not panic the Liver is a mighty Organ which is capable of almost completely regrowing.. given time and no more poisons.

Your Daughter will be very very sensitive to Fructose until she is older.

The older your daughter gets on a good diet the better her health will be, well that's the way it is working for me anyway.

Did the Doctor diagnose Cirrhosis of the Liver when you had the Ultra sound? Or have you found that on the Internet?

Can you send me or Fred your "Diet" because I for one disagree with much that is on the "normally" listed HFI diet.

Many of the items listed there it is far to high in Fructose for me.

Or list the diet you are feeding her here and we can all give you our opinions.

I am Glad she is not eating anything sweet Good for her!

Do not Panic over vitamins or minerals, if your daughter is eating lots of Meat, fish and Carbohydrates such as White Rice and Pasta she will be short of only Vitamin C which could effect her adversely.

If she gets sore Gums around her teeth then you need to get some Vitamin C into her.. This only happened to me when I was a teenager and growing at a silly rate.

One school Term I was the smallest in my class, 2 school terms later I was by far the tallest in the class!

Lemon Juice is the "natural" way to get Vitamin C but that has some Fructose in it also.. so perhaps grinding up a Vitamin C tablet and dissolving it in a drink of water (not milk) will help.

It is difficult to over dose on Vitamin C but it dose not remain in the body for long so a little often is better then one large dose occasionally.

I hope this helps and you can understand my English.

Do you have Skype? if you do its easier to message you that way and secure too

Keep smiling

[Roza&Meryem]

Thanks guys. Im surfing on phone until thursday. My laptop will be back then and ill send you the diet list.
She have yellowish spots on her teeths, c-vitamin?
She is not diagnosed cirrhosis. Actually they did'nt ultra scan her after she was diagnosed. But before the diagnose she had fat on liver, and they did'nt mention anything about cirrhosis.
Friends, we visited a privat hospital in Turkey and got the diagnose there. The danish hospitals system is bad. A lot of waiting. I dont trust them.
These posts relaxed us. Thanks.

Sometimes Roza is dark under her eyes, eye bags is dark.

[ukbill]

Yellow spots on the teeth is usually too much Fluoride.

Is Roza using a Fluoride tooth paste and a fluoride mouth wash as well?

If so I'll bet she's swallowing some of it.

Denmark is in the EU

So go to France, their hospital system is absolutely fantastic far far better than in the UK..

They saved my life back in 2003 anyway.

IF we from the UK go to France we are allowed to use the French Medical system for the same costs as it would cost a French person.

It should be the same for you as all EU countries have this rule I think.

So it cost me about £40 (50 Euro) in the UK it would be free..

However I'd have been dead long before the blood tests came back in the UK.

Blood test done at 12 noon, results by 4pm! Comparative results against a range of antibiotics by 9am the following morning! Brilliant!

I had to pay for it all "up front" but then claimed it back because I was missing a stamp on a particular form.. dam bureaucrats.

But then the total cost i had to pay out was only £440 or so which is cheap when the alternative was to die.

I had a multiple resistant strain of E-coli go multiple organ.. it was 6 weeks before I could travel home from my Christmas holidays..

As I say the French medical system is fantastic and a lot closer to you than Turkey.

Find a French speaking Danish person to translate for you and get over there.

[hfimomof3]

One symptom of early vitamin C deficiency is bruising. Since people with HFI get very little vitamin C from food, it is important to take a daily vitamin C supplement. She has to take it every day. Any vitamin C that she eats but does not use that day, will be excreted. It is not stored in our bodies. You should be able to find a vitamin C supplement at your local drugstore or pharmacy.

How easily is she bruising? How big are the bruises? How many of them do you see at any one time? There are other, more serious conditions that result in easy bruising. Or, it could just be something simple. I think you really need a doctor to look at the actual bruises to help you determine whether this is likely to be no big deal, as opposed to something urgent.

[hfimomof3]

Have you heard of "Tri Vi Sol"? It contains vitamin A, vitamin C, vitamin D. It is a liquid. It is meant for babies but should work for a three year old. I don't know if it has fructose in it or not.

Your main problem, in finding a vitamin C supplement for your child, will be finding one that is fructose-free and a liquid. If you cannot find a liquid vitamin that is fructose free, then you might try giving her a half-glass of lime juice every day. Limes have less sugar than lemons. (Oranges and berries have lots of vitamin C but are too sweet and will make her ill.)

If none of these options work, the last thing you can try, is to get your family doctor to prescribe medicine-grade vitamin C for her. This will probably be a white tablet that is pure vitamin C. You can crush it into powder and dissolve it in water and then she can drink it (she probably cannot swallow tablets yet, correct?). As Ukbill said, you must not use milk at the same time of day since that will prevent her body from absorbing the vitamin C.

Even if there is something else going on that is causing the bruising, it sounds like she really needs to be taking a vitamin C supplement. Vitamin C is essential for life. If she becomes very deficient, she could get scurvy, which can be fatal. So even if you get another diagnosis for her bruising, I would take this as an opportunity to find a way to get vitamin C into her diet every day.

[elilly]

I just had Graham's diet analyzed by our ped GI. She said that he was deficient in both daily intake of vit k and potassium. Vit K is needed to make coagulation proteins. Since starting Graham on a vitamin K supplement, we have seen less bleeding. Just a thought.