Celiac and HFI - Does anyone here have both?

[evelyn]

I have Celiac disease and recently found out that I have the DQ8 gene.

I as well have a big problem with fructose. How common is it to have both Celiac disease and HFI? Does anyone here have both?

[charlie]

There are alot of people on a yahoo groups board about fructose malabsorbtion who have both, I limit wheat with Meg more for the fructans than the gluten and she is better on the limited amount. You may find that to limit both will improve the general absorbtion of your gut

[CK]

I have both as well. I also have a lot of problems with dairy. The only dairy product I've been ok with is butter.
My diet is pretty boring, but I feel great.

[anastazya]

Evelyn...was wondering what happened to you! I have been tested positive for the Celiac gene. Still working on the HFI. I also have a problem with lactose and my IgG test for dairy and eggs came back high. So you are not alone. CK...what part of Minn are you in? I am still going to Mayo...maybe we could get together for coffee or something one of these times. : )

BTW- Evelyn...I have read a paper that said there could be a possible link between Celiac and HFI. The paper ended that more testing needed to be done in this area.

[esmee]

I have confirmed celiac by intestinal biopsy.

I have not been officially tested for HFI but I suffered from most of the symptoms (especially hypoglycemia in response to eating fructose) and strongly suspect that I have it.

I am also lactose intolerant.

The Triple Crown!

[gretchen]

Like Esmee, I have celiac disease, and I suspect that I have HFI, or at least something very similar.

I used to be lactose intolerant, but after about two years of eating gluten free I tried milk and amazingly, I could easily digest it. I read that the autoimmune process with gluten destroys the tips of your vili in your intestines, and that's where your body makes lactase. So my intestines healed when I stopped eating gluten. One good thing!

[tikitavi]

I do not have celiac, but I definitely have intolerance to gluten and dairy. I have been taking DPP-IV enzyme so that I can eat them safely.

[elilly]

My DS has both HFI and celiac. He used to have a dairy intolerance but now that he has healed from the HFI and celiac, he can tolerate dairy products.
Check out my post in the other section on safe foods regarding the company, Against the Grain Gourmet. They have some awesome GF and HFI friendly bread products.

[esmee]

Hi tikitavi,

What is DPP-IV enzymes and where do you get it?

Thanks!

[tikitavi]

It is an enzyme which helps to properly digest gluten and casein. *I am not celiac though!* It's available in many different supplements. Some parents of autistic children have found that having their kids take it along with any meals that include gluten or casein seems to really help. I take it because although I don't really have any digestive problems with gluten, I do notice that I have emotional responses. And with casein, the opioids in the casein cause constipation for me. So when I take the DPP-IV, I can eat gluten and dairy with no problems. The supplement that I use is a high dose of DPP-IV along with some other enzymes like lactase, protease, etc. I've been using it about 6 months now and I really like it. I buy it online at iHerb.com, but you might be able to find it locally. It is called Digest Spectrum and the manufacturer is Enzymedica. But there's lots of other DPP-IV supplements out there too, I just found this one works really well for me!

[esmee]

Thank you, tikitavi!

I actually have an account with Enzymedica but was not aware of that product. I have used many of their other enzymes with great results. I will get some and try it.

esmée ♥

[roman]

gretchen, this is well known in Paleo circles, that gluten causes leaky gut, which causes incompletely digested casein (milk protein) to enter bloodstream and cause an allergy. After gluten is withdrawn from the diet, leaky gut no more, and casein gets digested sufficiently so that only individual aminoacids or just very short peptides make it through into your blood, and you are no longer allergic to milk. This is consistent with what you are saying.

[roman]

Coincidence of celiac and HFI makes perfect sense. Neither would have been eliminated by natural selection among people living in northern Europe in the Paleolith where wheat was not grown and fruit was at best seasonal and not as sweet as the hybridized varieties today.

[gretchen]

Roman, thanks for your response. I have lots of food sensitivities, and that leaky gut from undetected celiac disease is what I think probably caused them, though of course I'll never really know. But I didn't have a problem with dairy protein before - I ate cheese happily, and yogurt and butter. But anything with lactose meant horrible gas and bloating. And I read about how the tips of your villi heal after stopping gluten, and then they can produce lactase again, so I think that's what happened.

And I'm definitely of northern and eastern european stock, so that part makes sense too.