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Post by meaniejean on Nov 2, 2010 9:05:53 GMT -5
So, we keep trying new foods with Sawyer. This is how it goes. With a lot of coaxing he tries a new food that has a small amount of sugar in it. He likes it. He eats a little bit of it and seems to really be enjoying it. So, we think, oh, he likes it, that's great. So we give it to him a couple of days later. He won't touch it. This just happened yesterday with a chicken noodle soup that he liked a few days ago. It has about a gram of sugar in it.
I am curious to see if this changes when he goes on colchicine. Colchicine has helped Cal a ton, but Cal never had a sugar/fruit aversion. Whatever he has (the rheumatologist has diagnosed him with familial mediterranean fever, but that just seems so unlikely to me based upon our ancestry), the colchicine is handling it well.
I'm wondering if this is just picky little kid stuff or a sign that he might actually have HFI. Although, the last time he had any significant amount of sugar (one marshmallow) he ended up with severe leg pain and a huge red welt on his leg that later turned into blisters. Perhaps that was enough to make him dislike sugar ...
His old GI doesn't seem to think he could have HFI, but he has never really had any testing. We will probably be doing the fructose breath test soon, now that he is almost three and will be able to blow into the tube. It will be done at the hospital, of course.
Anyone have any other other theories or experience with the aversion? How did it work for your children?
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Post by anastazya on Nov 3, 2010 17:10:37 GMT -5
If you want, I can have you talk to my Mom.
I wasn't diagnosed with HFI....but I was put on a low sugar diet when I was 2. I'm sure I will get the HFI diagnoses, but at the time, it wasn't on anyone's radar.
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Post by ukbill on Nov 17, 2010 20:53:06 GMT -5
If in doubt leave out the sugar it looks like he's doing that himself.
I took my first bottle of formula milk as a baby but then next feed refused it and for ever afterwards, luckily my mother did not force me to drink it otherwise I would not be here now I think.
Wish I could be more help.
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Post by meaniejean on Nov 18, 2010 18:21:56 GMT -5
Thanks, ukbill. Trusting his instincts does seem to be working for now, so we'll just keep on keeping on ; )
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