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Post by colormist on Oct 18, 2010 12:23:31 GMT -5
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Post by colormist on Oct 18, 2010 15:57:44 GMT -5
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Post by meaniejean on Oct 18, 2010 19:24:41 GMT -5
Interesting. The only problem I have with this is that sometimes (as in my family's case it seems) the fructose malabsorption and the abdominal pain may be secondary to another illness. After they find the fructose malabsorption, they are likely to stop looking for more answers. This is what happened with us. And now Cal is happily eating fruits and veggies while on his new meds!
But, I am glad that there is more talk of FM. We are still staying away from sucrose because it is known to cause inflammation. So, more dextrose foods would be awesome!
-S
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Post by colormist on Oct 19, 2010 7:58:56 GMT -5
And another one: www.medpagetoday.com/MeetingCoverage/ACG/22821The coverage makes me nervous and kind of happy. Nervous because it's a big push toward the oral test--which is bad for HFI, but happy because it's more negative press towards how much fructose is in everyday foods. Would a person with HFI have a positive oral test? Would that convince the doctors that the patient had FM instead of HFI? Just curious. |
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Post by anastazya on Oct 19, 2010 10:00:15 GMT -5
I often wondered if you can have both FM and HFI.
Not sure how good the news coverage is. Will have to read them tonight and see. Guess even bad press is better then no press at all.
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Post by meaniejean on Oct 20, 2010 11:39:02 GMT -5
Many doctors assume that if the breath test is positive then you have FM not HFI. If they do not do blood tests before, during and after the test, then they won't know what really happened inside your body.
Because FM is thought to occur in about 1 in 3 adults (though most are asymptomatic) you can certainly test positive for FM on hydrogen breath test and also have HFI or FDPase deficiency. The breath test doesn't exclude these conditions - well, unless you have absolutely no symptoms from the test. In this case, you most likely would not have a disorder of fructose metabolism.
I had blood work done during my fructose breath test, so I was able to see that although I tested as having FM, my body was also experiencing some negative side effects from the test that would prove that I had indeed absorbed a good portion of the fructose and that it was messing with me. My lactate doubled, my uric acid went up, my liver enzymes became elevated, and my blood sugar (though not hypo) went below my fasting level. So, do I have HFI? No, I don't think so, but for me the combo of fasting and fructose was disastrous (started talking gibberish without knowing what I was saying, etc ...). My GI diagnosed me with FDPase deficiency, but I won't completely believe it until a liver biopsy is repeated and done correctly this time.
For me, I'm starting to understand that I need to stay away from fructose and sucrose when: 1 - I'm sick, 2 - I've been fasting (even just overnight) , 3 - I'm eating something high in fat, or 4 - I'm drinking alcohol. Now that I read that list, it does sound a lot like FDPase deficiency. I feel like I'm never going to know for sure ...
I don't know if people with HFI would always test positive on the breath test. The test measures the hydrogen concentration in your breath. Lactic acidosis can occur to people with HFI and FDPase deficiency when they eat fructose (and for those with FDPase deficiency, when they fast), so if your body is trying to get rid of the acidosis, it will release hydrogen ions through gas exchange in your lungs. I think the test was created under the assumption that it would pick up the hydrogen from your gut, but it also picks up the hydrogen from your lungs. I could be wrong about some of that, so please let me know if my understanding of it all is way off base.
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