my 5 year old has just been diagnosed

[sarah and ellie]

hi i am the mother of the five year old Charlie met at the hospital we were told she had hfi and told to research it ourselves am struggling so far. Was not even told about the possible health problems if we don't get it under control.

[evelyn]

Hi, I was wondering if you, as the mother of of a HFI child, are sensitive to fructose yourself? Can you eat an apple?

[Tammy]

My child has HFI. I am only a carrier of the gene. I can eat anything I want. All fruits. Since it's hereditary it's certainly possible that both mother and child have it. There are some on here that likely do.

And since this is recessive, both parents are a carrier of the gene, but they can eat anything as long as they are only carriers.

And likewise, a HFI person can have a child that is only a carrier but does not have HFI. The child can then eat anything also, even though the mother (or father) can't.

[evelyn]

Oct 8, 2010 23:39:00 GMT -5 Tammy said:

My child has HFI. I am only a carrier of the gene. I can eat anything I want. All fruits. Since it's hereditary it's certainly possible that both mother and child have it. There are some on here that likely do.

And since this is recessive, both parents are a carrier of the gene, but they can eat anything as long as they are only carriers.

And likewise, a HFI person can have a child that is only a carrier but does not have HFI. The child can then eat anything also, even though the mother (or father) can't.

Thanks Tammy, I have wondered this for a while now because my mom's side of the family has been sensitive to sugar for generations back but my dad's side has not as far as I know.

Sarah and Ellie,
This is what I have gathered here that might help you. The base of your meals will be farm sourced meat and wild fish that hasn't had anything added to it. A lot of people here eat white basmati rice, not brown because it has too much fructose. I think Tilda may be a good brand to use, others can comment on that because I don't have enough experience with rice.
You may want to make a bunch of beef, chicken and fish stock and freeze to use when you need it. I wouldn't add a thing to it, not even salt until after incase you have to switch brands and remake all the stock.

Eggs have a bit of fructose in them.
Here is a link to nutritional data which will show the fructose in most foods when you click the sugar tab. nutritiondata.self.com/facts/legumes-and-legume-products/4405/2

Degerminated corn has no fructose as far as I know but, whole corn does.
Bobs, Red Mill sells corn grits that are degerminated but all other Bob's corn products are whole grain and not safe.

As far as I've read, big white potatoes with a thicker skin are ok. I have yet to try these myself but, no other potatoes seem to work for myself...I don't know if I have HFI or FM but I am really sensitive.

Others can add what they know because I have just started learning about this.

I don't know about pork or ham but,, these have not worked for myself in the past especially pork. Ham usually has dextrose added to it so maybe that's why that was a better of the 2.

So basically, safe meat and fish are the only true fructose free foods. All the rest are finding out what your tolerance level is I guess.

I have read about real sourdough taking out the fructose in bread and am going to try this in the future, so maybe something else to look into for a safe bread. I use to love sourdough bread, but only real sourdough.
There are a lot of knock off sourdoughs in the grocers and bakeries so make sure there hasn't been any commercial yeast added to it and sugar of course.

That's all for now, Good Luck, Ev

[sarah and ellie]

hi thank you for all you comments they are really helpful. I found a book today called sweet posion it has 28 fructose free snack recipes in the back has anyone tryed it.

Sarah.

[evelyn]

Oct 9, 2010 16:56:34 GMT -5 sarah and ellie said:

hi thank you for all you comments they are really helpful. I found a book today called sweet posion it has 28 fructose free snack recipes in the back has anyone tryed it.

Sarah.

I haven't seen this book but, I have heard about it.
What are some of the ingredients they use?

..also, I forgot to mention, someone had wrote on here that vitamin C (aborbic acid) will be missing from a fructose free diet. You can buy absorbic acid in most health food stores or maybe the canning section in a grocery store.

[evelyn]

I just wrote about the vitamin C being ascorbic acid but, have since then read that this is not how it is. Ascorbic acid is like the shell of the egg with the vitamins inside. so..liver has vitamin c in it, I don't know how much.

[Tammy]

Organ meats was something that we were told to stay away from.
ascerbic acid is all that you need. We started using the kind in the canning section of most stores.

Now you can get vit C tabs but you have to watch the added ingredients. You can always crush the tabs and put them on something else as they won't taste very good. Before Regina could swallow pills I put it on sugar free pudding.

[evelyn]

Oct 12, 2010 8:51:11 GMT -5 Tammy said:

Organ meats was something that we were told to stay away from.
ascerbic acid is all that you need. We started using the kind in the canning section of most stores.

Now you can get vit C tabs but you have to watch the added ingredients. You can always crush the tabs and put them on something else as they won't taste very good. Before Regina could swallow pills I put it on sugar free pudding.

Hi thanks for clearing that up Tammy, do organ meats contain fructose?

[ukbill]

Organ or Organic meats?

Organic meats are meat from animals who are fed a diet which contains no hormones or the wrong sort of feeds (it is common to put sterilised chicken manure in cattle feeds for example and Loads of growth hormones! in the USA (they are BANNED in the UK and most European countries)

So Organic meat takes longer to grow. Cattle for example would only be fed food which is vegetable based and grown without artificial fertiliser or chemical sprays.

There are also very strict animal husbandry rules to follow. all animals must be able to move about and socialise and have access to open fields etc. Its almost a religion.

Because organic food takes longer to grow there is more taste in some cases LOADs more taste than the force grown factory variety. however there is a cost to organic!

As its slow to grow and the yield is lower it cost more to buy otherwise the farmer would go broke trying to sell it at the same price as factory foods.

I would buy and eat Organic food any time in preference to "normal" farmed food.

Organ meats could be like Liver?

Liver which is full of vitamin A and B and iron and is great stuff to give the bodies immune system a boost.

I try to eat Liver at least three or 4 times a month to give my system a vitamin boost.