evelyn
Junior Member
Posts: 63
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Post by evelyn on Sept 8, 2010 15:28:32 GMT -5
Hi, I am new here. I am pretty sure I have a problem with fructose.
The only foods that I have found that I can tolerate in the morning on an empty stomach are wild fish and eggs. I can not eat any vegatables or of course fruit in the morning if I haven't first had eggs or fish and even then it can only be a tiny taste of an orange or berry and a few leafy green leaves. I will always have to take a nap within 20 mins of eating an orange or any sugar. I usually need to take a nap and then I feel better after and my body seems to be able to handle an orange but then I still feel out of it but I feel I need the sugar. I will become hypoglycemic easily so I need to eat all the time. I always will eat fish or eggs with any sugar I eat which only comes from berries or orange which is the least symptomatic of the fruits for me. I can NOT tolerate any sugar on an empty stomach.
I would really like to know if any of you can tolerate any fructose on an empty stomach?
I wake up on the morning and I need to eat NOW, it feels like I have been starving for a month and I only have enough energy to eat straight away or I will get a head ache and it messes my whole day up from that point.
Is any of this familiar to you guys? I have never met anyone like me before.
Oh and I also have Celiac Disease.
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Post by colormist on Sept 10, 2010 15:31:05 GMT -5
Sounds like you're getting hypoglycemic from eating the fructose. Try to stop eating fructose entirely. If you feel the need for sugar, try some high-carb potato products (chips, fries, mashed, baked, scalloped, etc), a big bowl of rice, or a glass of milk (if you can handle the lactose). If you have smarties in your area (the non-chocolate variety), I'd recommend picking those up to chomp on instead of the fruit you're eating. I have HFI and can't tolerate fructose, period. If I have it at all I get nauseated, tired, sleepy, really hungry, kidneys start hurting, and I can't focus (on anything other than myself). Just stop eating fruit and sugar for a week, see how you feel, then go from there. If you feel a whole ton of a lot better, then you might want to consider cutting out the fruit & sugar entirely. Contrary to popular belief, you won't keel over dead from not eating fruit.  |
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evelyn
Junior Member
Posts: 63
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Post by evelyn on Sept 10, 2010 21:12:04 GMT -5
Sounds like you're getting hypoglycemic from eating the fructose. Try to stop eating fructose entirely. If you feel the need for sugar, try some high-carb potato products (chips, fries, mashed, baked, scalloped, etc), a big bowl of rice, or a glass of milk (if you can handle the lactose). If you have smarties in your area (the non-chocolate variety), I'd recommend picking those up to chomp on instead of the fruit you're eating. I have HFI and can't tolerate fructose, period. If I have it at all I get nauseated, tired, sleepy, really hungry, kidneys start hurting, and I can't focus (on anything other than myself). Just stop eating fruit and sugar for a week, see how you feel, then go from there. If you feel a whole ton of a lot better, then you might want to consider cutting out the fruit & sugar entirely. Contrary to popular belief, you won't keel over dead from not eating fruit. Hi Colormist! Thanks for replying! Your symptoms are exactly what happens to me except my kidney don't hurt but, my eyes start do. When I was a little girl my kidneys would hurt when I was in bed and would have to go to the washroom and just recently through my last pregnancy my kidneys(only 1 side at a time) hurt every night so bad and it would take all morning and sometimes into the afternoon to feel better but, maybe that had something to do with being pregnant. I was confused for so long on what made me feel like I couldn't focus I would feel like my balance is off, extremely tired like being forced to sleep and felt like my sugars were going up and then dropping and the more fruit I ate to fix my sugars the greater the symptoms got. I just very recently put the connection to fruit and stopped eating it in the morning to afternoon times and didn't have the symptoms until I ate it again in the evening. I can't take the breath test because I am terrified of sugar in the morning and anytime of day on an empty stomach. I don't want them to take a piece of my liver and have to have surgery. I would like to try genetic testing, how does this work? I actually can not tolerate potatoes or rice anytime of day no matter what I have ate before, and I am lactose intolerant so I can't have milk but, I seem to tolerate cream somewhat OK so maybe I could drink some cream, I have just started drinking decaf coffee again and cream because it seems to make me feel more stable. I read somewhere that cream barely has any lactose in it so maybe that's why I can handle it better. Thanks for the suggestions! I have been eating nachos but they are not working so great. I do like the salt though. I also read somewhere that sourdough bread has no fructans in it..is this true? It said that the sourdough starter takes the fructans out somehow? I am thinking this might work for sourdough cornbread? Does corn have fructose or fructans? I have not spent a whole day without fruit yet because I crave sugar and have been scared to. I live in Canada and I have never heard of smarties without chocolate but we do have pixi sticks. I can buy straight dextrose as well which I have bought but I think it may have traces of fructose in it or gluten even. My doctor is going to refer me to a GI specialist and look into a geneticist because she doesn't know too much about them. She is also referring me to a dietitian. Is there anything I should know while talking to a doctor about this kind of condition? Thanks! Evelyn |
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Post by jejns1 on Sept 10, 2010 21:45:42 GMT -5
Hi,
In Canada, "Smarties" (US) are called "Rockets". Make sure to buy regular size rolls of "Rockets" as we have found that the large Rockets have corn syrup solids in them. Rockets don't seem to be as easy to find as Smarties are in Canada.
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evelyn
Junior Member
Posts: 63
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Post by evelyn on Sept 10, 2010 23:40:59 GMT -5
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Post by jejns1 on Sept 11, 2010 9:36:04 GMT -5
Yes, that is it. If you are near a Superstore Bulk Barn, they would be the most likely place to find them.
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evelyn
Junior Member
Posts: 63
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Post by evelyn on Sept 11, 2010 13:52:01 GMT -5
Yes, that is it. If you are near a Superstore Bulk Barn, they would be the most likely place to find them. Thanks! |
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Post by colormist on Sept 12, 2010 17:44:09 GMT -5
The genetic test is a blood sample (or mouth swab) that your doctor (or geneticist) will send off to a lab to see if you have one of the identified HFI genes. I'd recommend getting this test out of the way before proceeding to the other tests as they are more invasive and can be more dangerous (especially the breath test). My geneticist also tested my sugar levels (as I reported I was hypoglycemic). He didn't tell me to fast, so my levels were normal. If I had fasted, I would have needed someone to drive me to the doctor. I once took a long walk with my dog (an hour or two) around town to go to yard sales. I brought water, but I didn't think to bring food. I got halfway into my walk when I realized it was 95-degrees outside, that my dog was overheated and I was becoming hypoglycemic. If I didn't get back, I wouldn't get back at all. The concrete looks really soft when you start slipping into a sugar-coma (hypoglycemia). I stumbled back home with my dog in my shoulder bag (she's a pug). It was all I could do to put one foot in front of the other and walk home. All I could think of was food and sleeping. I get really bad tunnel vision, if I can focus on anything external at all. I seem to crave salty things, but it's the dextrose and lactose that makes me feel better. Sounds like you have a similar affliction. Corn meal products are mostly okay. If you make your own corn bread (without sugar, molasses, or honey), you should be good. Corn chips and fritos are good--as are cheese puffs. If you can do rice, rice cakes are okay--not really yummy, so you might have to add some peanut butter to them. My regular doctor had to look up HFI online to even know what I was talking about. She then referred me to a geneticist. The geneticist didn't believe me, but I was adamant so he went along with me to humor me. You might want to research your family a bit. Check to see if you've always resisted fructose. If you've been resistant to sweets since childhood, then you might have HFI. If you've only noticed this change recently, then you might have Fructose Malabsorption. Fred is actually in Canada. I think if I mention his name, he might swing by. He might be more helpful than me (for regional food-stuff). |
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evelyn
Junior Member
Posts: 63
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Post by evelyn on Sept 13, 2010 0:58:16 GMT -5
The genetic test is a blood sample (or mouth swab) that your doctor (or geneticist) will send off to a lab to see if you have one of the identified HFI genes. I'd recommend getting this test out of the way before proceeding to the other tests as they are more invasive and can be more dangerous (especially the breath test). My geneticist also tested my sugar levels (as I reported I was hypoglycemic). He didn't tell me to fast, so my levels were normal. If I had fasted, I would have needed someone to drive me to the doctor. I once took a long walk with my dog (an hour or two) around town to go to yard sales. I brought water, but I didn't think to bring food. I got halfway into my walk when I realized it was 95-degrees outside, that my dog was overheated and I was becoming hypoglycemic. If I didn't get back, I wouldn't get back at all. The concrete looks really soft when you start slipping into a sugar-coma (hypoglycemia). I stumbled back home with my dog in my shoulder bag (she's a pug). It was all I could do to put one foot in front of the other and walk home. All I could think of was food and sleeping. I get really bad tunnel vision, if I can focus on anything external at all. I seem to crave salty things, but it's the dextrose and lactose that makes me feel better. Sounds like you have a similar affliction. Corn meal products are mostly okay. If you make your own corn bread (without sugar, molasses, or honey), you should be good. Corn chips and fritos are good--as are cheese puffs. If you can do rice, rice cakes are okay--not really yummy, so you might have to add some peanut butter to them. My regular doctor had to look up HFI online to even know what I was talking about. She then referred me to a geneticist. The geneticist didn't believe me, but I was adamant so he went along with me to humor me. You might want to research your family a bit. Check to see if you've always resisted fructose. If you've been resistant to sweets since childhood, then you might have HFI. If you've only noticed this change recently, then you might have Fructose Malabsorption. Fred is actually in Canada. I think if I mention his name, he might swing by. He might be more helpful than me (for regional food-stuff). Thank you! I stopped eating fruit yesterday and the only fructose I would be getting would be from Tostitos yellow corn tortilla chips. They are still effecting me for sure but, I need food and can't have rice or any gluten so I am desperately looking for a gluten and fructose free substitute. I am thinking of making my own sourdough starter out of blue cornmeal and then making sourdough cornbread. Do you still have to eat every hour to 2 hours? I always have to take food with me and your story of your meal at your inlaws...I always end up eating food I have brought in my purse in the bathroom because I can't act normal and my blood sugars dropping..lol it is very good to hear another story. I too for a long time would bring security nuts in my purse but would still end up paying for it later so now I bring cooked food in small plastic containers! lol Do you still have to do this..eat all the time? I hope it goes away. I feel better just after 1 day but need to get rid of the nachos because I still feel them reacting. I never grew up with a lot of fruit because my mom just didn't buy it, she would buy bananas once in a while and apples occasionally but both made me feel sick so I never ate them. I would drink watered down orange juice to deal with the blood sugar lows through my teenage years but NEVER in the mornings. I drank a diet coke and ate a bag of nachos everyday in highschool and nothing else. I felt sick ALL the time. I would drink beer but only light beer and that would make me not feel my symptoms for a while if I had enough. I could NEVER drink wine, not even really dry wine even though I tried, it just made my sugars drop and I had to sleep right after. Sweet stuff made me feel sick as a kid as far back as I can remember but, I kelp trying..lol and I kept feeling gross, I always wished they would just make it a lot less sweet and then I could enjoy it a lot more. I liked lime and unripe pears were my favorite fruit, cinnamon. I did like apple pie when I was young but always wanted it to have less sugar and more cinnamon. Out of the chips, I could only eat salt and vinegar chips without feeling sick. when I was 12 I was given a prescription for tinted glasses because my eyes always hurt..they thought I just had light sensitive eyes. I have always had really low blood pressure. I had chest pains my whole life until going gluten free. I would get sick at school a lot right after eating carrots for a snack. My mom doesn't like sweet stuff or fruit and my grandma had tremendous digestive issues but they never said anything about her liver or kidneys. The hypoglycemia just got worse as I got older. I only found out it was hypoglycemia because I happened to take a blood test right after my gluten and fructan filled breakfast. The doctor told me to eat sugar when I felt low. So I ignored that because I was terrified of sugar. I actually felt safer being a little hypoglycemic than not because the feeling of my sugars going up really scared me so I always tried to keep my sugars feeling low because I thought sugar was my problem. I would crave it so bad in the mornings but, would refrain because of the reaction I would get. As the day would go on I wouldn't be as sensitive as the morning and by late afternoon I would sometimes have some watered down oj and later a small piece of some sugary item, only ones with chocolate and nuts together, nothing else would work but then I still would react just not as dangerous as in the morning. I would have peanut m&ms for sugar for a while in my early 20's but, I would have to eat them with coffee and lots of cream to have them "work" correctly without getting sick from them. My parents never let us have pixi sticks and the thought of a ton of straight sugar never was appealing to me. hha Thanks for all your help! |
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Post by anastazya on Oct 1, 2010 9:35:56 GMT -5
Have you been tested for Celiac Disease? Which test did you take?
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evelyn
Junior Member
Posts: 63
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Post by evelyn on Oct 1, 2010 16:09:34 GMT -5
Have you been tested for Celiac Disease? Which test did you take? Hi! Yes, I have, I had a blood test done. They checked antibodies to TTG. My doc said he could send me to do a biopsy but, he thought it was unnecessary because my numbers were so high and just diagnosed me wth Celiac disease. My numbers showed >100. It doesn't show how high in Canada just the greater than symbol. |
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