HFI - Need info

[Roza&Meryem]

Hi, my name is Turan and i have 2 daughters. Roza and Meriam.
Both my daughters have just been diagnosed Hereditary Fructose Intolerance. Were from Denmark and HFI is very rare here. We cant even find a good dietician. Im shocked that theres no help to retrieve here in Denmark.
Is there anyone who has a detailed list of allowable foods.
We were told, two grams of fructose are allowed per day.
Should we give them a specific amount of eg glucose pr day.
Sorry we just got the result 2 weeks ago and we have not adapted to us yet. Can someone help us starting up? cause i have a lot of questions..

[julienc]

Welcome Turan,

In general, there is not much information out there on HFI (unfortunately). It's great you found this forum. Check out some of the posts relating to diets and allowable foods.

2 grams seems a bit high - I have found my threshold to be around the 1 gram mark, but that is sometimes pushing it. My only real source of fructose is what slips through on foods like broccoli and asparagus.

Good luck!

[Egemen]

Thanks a lot...
I was told it was 2 g pr day.. My girls are only (Roza) 3y and (Meryem) 2year old. We have to cut it down to 600mg fructose.. And Fred i got your mail.. It was a huge help.. thanks a lot.
I was too much confused so did'nt read the topics.. I will start reading all the topics..
After we found this forum, we don't feel us left and alone.. Thanks to the creators of this forum, and sorry for my bad english.

[julienc]

I can read your English just fine!!

I think the fructose threshold varies slightly, depending on the individual. It's really tough to know, though.

Again, glad you found this forum!!

[jdsmommy2009]

i live in flroid and have the same problem they say they dont know enough about this to help me but you can always com on here and find thing the moms on here are the best they have helped me through alot and i love them for that you will find anything that you need on this page and you can ask any thing that you want an there will always be some one to answer it for you