Might possibly be really good news

[colormist]

industry.bnet.com/food/10001771/the-death-of-high-fructose-corn-syrup/

of course, they might just replace HFCS with another crappy sweetener.

[Tammy]

Interesting. ConAgra is going to take HFCS out of Hunts ketchup. Is that supposed to make ConAgra look better? I work for ConAgra. We make "Chef-Boy-Ar-Dee" products, among others, and we use HFCS - and a lot of it - in almost every product we make.

I'll have to keep my ears open to hear how "healthy" Con-Agra is becoming. lol. Although to be fair, they also make "Healthy Choice" brand and that is better.

[colormist]

Back before I knew I had HFI, Hunts was my french-fry dippin' ketchup of choice.

It will be interesting to hear your insider perspective about how far this HFCS removal goes, Tammy.

[Kelly Grace]

Speaking of Healthy Choice, I've found two soups that are safe. The Chicken Noodle Soup and the Chicken and Rice Soup. They are in the microwave bowls. They do have carrots in them, and I pick them out before giving to Lily.

She really enjoys eating these soups. They could travel well on trips or for those who work in the office.

Another item that travels well is the Kraft Easy Mac that you just add hot water too and microwave.

Kelly

[Tammy]

Ah, chicken noodle and chicken rice. We make a LOT of those. If you look at the code on the bowl, if it has 2100 as the first 4 digits of the code, then it was made at my plant. I think right now we may be the only plant that is making them. Some of the older bowls may have been made out in Oregon someplace, but we make them all now.

Sooooooooo, if you have one of ours, then I - personally - mixed the spices for you. lol. I am the only one on that job. I used to cook, but I've recently bid on a different job, just for a change for awhile. I now take big 50 lb bags of things like oregano, basil, etc and break them down into little individual bags for the cooks. Then the cook can just pick one of each ingredient and just dump it in the pot.

Speaking of ConAgra. They have sold off the Lucks brand. So the chicken and dumplings that I use may change. We are still making them until sometime in June, but then the new company will take over and I don't know if they will change it or not. So just beware and be sure to keep checking the label on them. Again, if the code starts with 2100, we still made it and it's ok.

Just as info - besides Chef-Boy-Ar-Dee and Healthy Choice, we also make Gulden's Mustard, (all flavors), Hebrew National Mustard, Franklin Crunch N' Munch, Andy Capps potato fries plus many generics of all the above. There was rumor for awhile about moving some of the Hunt's ketchup into our plant, but I haven't heard anything more on that so I don't think it's in the works any longer.

Glad the soup works well. I've never really thought about picking the carrots out of it, but they are certainly big enough pieces. Maybe I'll try it with Regina, especially after I lose the lucks chicken and dumplings. Thanks.

[Kelly Grace]

Dear Tammy,

Thanks for the good information and I'll check to see if we have your code on the stuff.

Lily is so grateful to have a fun packaged quickie item! So thanks to you and our new friends at your company!!!!!!

[jdsmommy2009]

hi everyone im carissa i have a 7month old with HFI looking for help im 21 and his dad is 22 and were scared parents and have no doctor support please help thanks

[Tammy]

HI Carissa,
Welcome to this board. You've found your way to the right place. There is a lot of good info and a lot of good people willing to help on here.

If you know your baby is HFI, then you're already past the hard part. You know what is wrong, and so you can now learn how to "treat" him with his diet.

First off, what part of the world are you from? If we can get a somewhat location on you, chances are there may be someone who can help even more. Not only do Different countries have different ingredients in their products (example: "Biscuit" is a big part of my daughters diet but in Canada it contains sugar) even different parts of the states have different items that can be found safe.

I am in Pennsylvania.

We would love to hear your baby's story. How / who suspected HFI and found it? Was it with a blood test? How did you find this site? We always like to hear what is working as far as getting the knowledge of this site out there.

I realize your baby is young, but it would probably help you to take some time and read through some of these posts. Even through the recipes to see that there is a lot that can be done for future meals. And ask away with any questions you have.
Tammy

[jdsmommy2009]

well my sons name is james and like i said he is 7 months old..... this is our story........ clint my sons dad took him to the doc for his 6 month appointment and the doc said to introduce him to jucie so we went out and got him gerber grape jucie. like 20 mins later he feel asleep (he sleept alot) so ok so he woke up a half houre later and vomited ALOT all over and was gagging. ( i work at a hospital so i thought ok maybe i brought home a flu) so he feel back to sleep and i said ok when he wakes up i give him some pedialyt well he didnt wake up untill 1 houre later and woke up scraming so i picked him up n when i did that he stoped crying and his whole body went limp his eyes were woundering and he was not being him self he was sucking on his bottom lip so we took him to the hospital and they said we dont know whats going on they were sticking him with needles and he wasnt budging so they were freeking out. so they transfered them to another hospital a childrens hospital. he was in PICU for 5 days and then they put him in a normal room when he got his sugars back up. they came to me and said we are gonna give him the jucie that you gave him the night this happened i said y they told me they think that he has HFI me not know what that was i of corse got online and was going to mommy mode and googleing like a mad person hahahah i knew more baout it then the docs there its sad....... so ok anyways we gave him the jucie and of course he had the same thing happen when we broght him oin the hospital his blood sugar was at 15 they said that it was supposed to be at anyhwere from 99 to 100 sooooo (there were alot of tests done the whole time we were there they did an ultraspund and blood work all day and night also they did the blood sugar tests he was all poked up:( ) when they gave him the jucie the second time he was at 30 and they couldent get it back up he was stayinmg at 30 even with the dextrose so they were gonna move him back to PICU but then he went up to 66 so they didnt we were in the hospital for a week and then we went home..... they have him on an apneia machine now and they have him on formula only now its soooo sad he is sooo hungry he is on progestamill its made from enfamil.....we have doc appointments all the time and with me and clint working all the time its so hard to do these and our works dont underdstand sooooo.... what did you do? sry this is so long i jjust need help the docs here have no clue how to help they tell us that they dont know enough about this to help then give us another docs name ahhhhhhh........ i live in port st lucie florida my grandparents live in pensavania they live in pitsburge... i googled HFI posts boreds thats how i found you i have been on other ones like on facebook n no one comments back its not fair so thank thank thank you sooooooo much <3

[Tammy]

It sounds like James is going to be highly sensitive to fructose. You will find over time that everyone has their own tolerance level. Some can eat things that others can't.

The first thing we all agree on is to follow what your Dr says. We may sometimes feel like we know more than they do, but bottom line is none of us has any degree or medical training. We DO all have HFI experience. Some have their own personal knowledge and some - like me - have a parents point of view and knowledge of it.

Once your Dr says you can try food again, the best basic HFI food is plain chicken and WHITE rice. This seems to be a good staple for all tolerance levels. As you introduce new foods, make sure it is just one at a time. My daughter does well with potatoes, so when she was young, this was (and still is) our daily staple. Mashed, baked, french fries, she does well with them all.

As for what foods are ok, there are several lists and they all contradict each other. The one I started with and is probably the closest to a "good" list is found on the university of Boston's website. Dr. Tolan is a researcher into HFI. Canada also has a good researcher but (Sorry, Fred) I can't remember his name. You can find Dr. Tolan's site here:
www.bu.edu/aldolase/HFI/
His info and his diet lists can be found there.

This will most likely seem a little daunting when you first see all the things that are NOT allowed. But take heart. It gets easier as you go. The number one rule is READ THE LABEL. I'm not talking the basic nutritional part, but the ingredient part. You'll be surprised at all the hidden sugars in food that you would never guess. Even plain old saltine crackers. Some brands are ok, and some have corn syrup in them. So everything that you pick up, read the ingredient label. It'll just become a habit. After time, you'll do it without even realizing you are.

A good cracker to try is "Triscuts" or "Cheezits". Most puffed rice cereals are good finger foods for little ones. Cereal like Cheerio's are out as even they have sugar in them.

I'm glad you found this site and don't be afraid to ask your questions.

[jdsmommy2009]

i want to know if an y of your kids have had any sweating my son sweats sooooooo bad and the insides of his hads turn real red and this is always even without the fructose. my son had the bad vomiting and the black outs and everythi ng ur daughter has charlie its very scary

[charlie]

It is scary at first but it gets easier I promise. At least they have picked up a potential problem early. Have you tried your son on other things with weaning or was juice the first thing you tried. As Tammy suggested white rice and plain chicken are good to start with, if my daughter has a reaction to things we always go back to that to settle things down.

Have they done any tests specific to HFI or just guessed it, grape juice is a kidney cleanser so it may have been a severe reaction to the juice only, which takes me back to my first question of what foods is he on.

My daughter gets very clammy when she is reacting.

Good luck, send us some more details of where you are at and we'll see what we can do to help.

Charlie

[jdsmommy2009]

hi we have him on formula and chicken his docs want to get us a nutritonist befor we feed him foods sooooo hes on progestamill they said they dont think that it has anything bad in it but like i said befor that they say they dont know m,uch anout it and they cant really help me ahhhhhhhh

[Tammy]

I found the ingredients list on your progestamil. They are:

Corn Syrup Solids (33%), Casein Hydrolysate (From Milk) (From Milk 16% Modified to be Tolerated), Medium Chain Triglycerids (MCT Oil 15%), Dextrose (10%), Modified Corn Starch (9%), Soy Oil (7%), Corn Oil (3%), High Oleic Vegetable Oil (Safflower or Sunflower 2%), Less than 2%: Mortierella Alpina Oil (A source of Arachidonic Acid ARA), Crypthecodinium Cohnii Oil (A source of Docosahexaenoic Acid DHA), Acetylated Monoglyceride, Vitamin A Palmitate, Vitamin D3, Vitamin E Acetate, Vitamin K1, Thiamine Hydrochloride, Riboflavin, Vitamin B6 Hydrochloride, Vitamin B12, Niacinamide, Folic Acid (Folate), Calcium Pantothenate (Vitamin B5), Biotin (Vitamin H), Ascorbic Acid (Vitamin C), Choline Chloride, Inositol, Calcium Citrate, Calcium Phosphate, Magnesium Oxide, Ferrous Sulfate USP, Zinc Sulfate, Manganese Sulfate, Cupric Sulfate, Sodium Iodide, Sodium Citrate, Potassium Citrate, Potassium Chloride, Sodium Selenite, L Cystine, L Tyrosine, L Tryptophan, Taurine, L Carnitine

Anything ending with -itol is usually some form of sugar. Inositol isn't listed in the chart and I haven't run into it before but Most of these are allowed depending on purity. www.bu.edu/aldolase/HFI/treatment/sugar_table.htm

Corn syrup solids are something that again is ok if it's pure.

Anything ending with -ose is a sugar. This contains Dextrose which is a sugar, but it is a HFI-safe sugar. My daughter eats it daily.

Since this is made for hypoallergic babies, I'm guessing they would be sure theirs is pure, So I would feel safe using this.

How long until you can see the nutritionist? Just be prepared, unless you get an exceptional nutritionist they probably won't know a whole lot, either. That's where the nice people on this board can step in and help.

[jdsmommy2009]

your awsome tammy well im waiting for them to call me and make an appointment they said they will call sometime this week hahahah anyways we go to the genetasits like i said on the 14th so we will see what they say for now we have him on the formula and boiled chicken...... so you say that ur daughter can have pixty sticks and u never said if there was anyone that was in florida that u knew of with or knows someone with HFI? thanks for getting back so quick i will recamen this bored to any one eles that i run in to with this.... all the other things that i have gone t they either say speak to your doc or they dont wright back i hate it