Fructose Assay- Liver, Databank

[Deb Mc]

Since there is so much variance in our ability to tolerate fructose, I thought it might be interesting to compare our results and see if there appears to be a correlation between level of deficiency and extent of tolerance. My guess would be there is.

If you suffered any complications or disability, please include the type and extent as well as how long you went without treatment.

My HFI went untreated for 51 years; complications incude: neurologic, muscular, connective tissue, nephrologic, liver and vision. Severe physical disability. I have 0 tolerance for fructose, all forms, fructans included.

My fructose assay was done on 12/17/09 and the unit of measurement used was micro/mol/min/gram tissue. The results followed by control referance range are as follows:

Fructose 1-6 Biphosphatase: 1.0 *** 3.78+/-0.74
F1-6-dip: 1.2 *** 9.09+/-3.80
F1-P Aldolase B: 0 *** 9.05+/-3.93

Deb Mc

[ukbill]

I will get mine done when I get back from Australia and also get a Genetic test done to see which group I come in.. the 80% or the 20%

[vicip]

Hi Bill

Where would you get this done in the uk? have you gone private? i have had no contact with health professionals re my HFI since i was 16 so had no info or checks/tests for 17 years! have mentioned it to my doctors but they are not interested at all

[ukbill]

Still trying to get information and find someone in the UK doing the tests.