Post by charlie on Feb 18, 2010 15:24:22 GMT -5
;DI'm beginning to get quietly excited. Having got incredibly down earlier this year to a very very low point and soooooo frustrated with the hospital system I decided to start using my brain and researching from a different angle. Due to Megs varied symptoms they all concluded that it was more likely Fructose Intolerance, however I thought I would look down the malabsorbtion route again, just incase and as I have posted before found a new chat group based in America, (the pages of which I have added a link to here by the way).
The advise on fructans has opened up a whole new world and after a few days of panic about even more restrictions I started to give it a go. we had one hiccup at the end of the first week when I ran out of special flour to make bread but apart from that she has been exclusivley wheat free, very low maize and still nil veg and fruit.
Well, what a different child this week. We are on half term holiday and usually she is flaked out, shouts and screams she doesn't want to go anywhere, do anything, see anyone, collapsed infront of the telly. Not this week, she is alert, bright, active, keen to do, had a friend today all day and then at four (usually her worst time) we went swimming for an hour, still not a murmer, had supper out, friend came back and still cool and chatty. yesterday we had a busy day here and there with horses again, much as she loves horses she would have not co-operated but she didn't stop yabbering all day, I almost needed to put her back on wheat to catch a break!!!!
she is still wet generally at night, she produces too much urine but night before was first dry night ever, not so good last night but here's hoping.
So it may be malabsorbtion after all which means she may be able to have more things, something to do with balancing the fructose to glucose that helps it pass through the gut - to complicated for this poor brain just yet but I may slowly adventure down this route but for now I will stick to what we have got. The simple pleasure of taking her and a friend out swimming and not panicking that she is looking grey and may pass out was simple ecstacy.
Sleeping hasn't improved yet but you can't have everything, at the end of the day she may just not need as much as other kids.