Fructose and Alcohol

[ukbill]

Dose anyone else have problems with Alcohol made from Fructose?

I can take any amount of alcohol.. (well till I fall down anyway ;D ;D ) made from pure Malted Barley or Wheat but if made from Fruit or Corn (maize) I get a serious kicking.. not a sugar reaction something different and highly unpleasant.

I know its not residual Fructose in the drink.. it seems to be the Alcohol itself.

I can take Whiskey (in its Pure Malt variety) but not Brandy or Rum.

Vodka seems to have added sugar in every sample I've tried except some home made stuff I had in the Czech Republic..

I cannot imagine why they ( the Czechs) have not entered the space race.. talk about rocket fuel!

[Deb Mc]

I can't take homeopathic remedies or anything else with an alcohol base, regardless of what the fermenting agent was. All fermentation is sugar based. Actually, now that I think about it, I can't use any homepathic remedies as they all contain fructose in one form or another.

When I was younger, I guess before my deficiency became absolute, I drank beer now and then. (Couldn't stand wine.) Although I had no immediate drop dead or rigamortis-like symptoms like I would now, I imagine the alcohol was exacerbating my HFI issues. I'm sure my past intake of fructose, prior to discovering my fructose iintolerance, contributed to my current state of fructose overload via chronic fructose poisoning (liver, kidney, brain, muscles, CT).

That's what it's all about, isn't it? Trying to avoid the accumulation of fructose-1 phosphate and toxic intermediates due to Aldolase B and fructose 1-6 bi/di-phosphate. Every little bit adds up and once you hit max capacity (tolerance threshold), that's all she wrote - meltdown!

Deb Mc

[ukbill]

Pretty much right. Unfortunately.

Sorry you have got so bad before (hopefully turning the corner)

There are plenty of people here who will help you get onto the correct road to full recovery.

I would PM you this to keep the thread clear but since you are not a member yet I cannot..

However I have good news for you!

Your Liver is a fantastic organ.. if you stop poisoning it it can and usually will recover. Slowly it is true but recover it will.

It took me over a year to feel fully well after I was "accidentally" injected with 150grams of sucrose followed 24 hours later by 150g of fructose by the team of doctors trying to diagnose my condition (HFI)

I was not as bad as you seem to be even then, so I suspect it might take a bit longer for you.

I presume you are one of the unfortunates who like the taste of sugar.. therefore you will find it far harder to keep to a fully fructose / sucrose free diet.

Sorry about that

If I can be of any help with your Diet please let me know..

My best advice is Avoid all preprepared foods unless you are certain they are sugar free. Eat loads of fish, steak, eggs, rice, pasta, milk & cheese and cook as much as you can for yourself from single ingredients (not sauces in jars or packets)

It is important to force yourself to eat regularly to keep enough food being digested to stop your body switching to burning fat reserves.

This will help your liver and give it time to repair itself.

Lambs / beef / chicken or Pork liver has loads of useful vitamins and minerals and always gives me a boost if I am suffering a bit.

DO NOT worry about vitamin supplements and the like they are mostly formulated for Vegans and Vegetarians. I cannot take additional Vitamins without getting painful joints as the excess crystallise out in my joints!

I do take slow release Vitamin C with Zinc because this seems to help my immune system. Some varieties however have sugar in..

All homeopathic remedies in the UK are given on a sugar pill! I'll bet there is added sugar to the Alcohol which will be why you were getting a reaction.

IF they are PURE and genuine there should be little to no residue if left to evaporate /dry off.

Hope this offers hope and help?

Regards

Bill A.

[ukbill]

I am going to, sometime this year to try to brew some beer with only Glucose as the sugar and then with Maltose (From Barley)

I will try to see if there is any difference in my reactions to the beers by drinking large quantities.. purely for scientific research you understand??

;D

Would anybody else like to conduct their own research in producing a safe beer for us to drink??

[Deb Mc]

Feb 14, 2010 20:57:36 GMT -5 ukbill said:

DO NOT worry about vitamin supplements and the like they are mostly formulated for Vegans and Vegetarians. I cannot take additional Vitamins without getting painful joints as the excess crystallise out in my joints!

Hi, Bill. To the contrary, I have to take almost 40 different supplements a day to counter long-term malnutrition from decades of malabsorption and fructose toxicity. I had NutrEval testing done prior to going fructose-free (no fructose in any form or amount at all) and the results were shocking. I had multiple deficiencies, Third World-like, most of which were severe (e.g. Vitamin A, molybdenum, manganese, magnesium, most vitamin Bs, Vitamin A, Vitamin C, Vitamin E, glutathione). Apparently, due to kidney malfunction, my vitamin Bs were binding in the blood and I was Vit D toxic. It was through this same test that we first discovered I had exhorbitant amounts of reducing sugars in my urine - again, kidney malfunction.

I can't have any form of fructose, fructans included. I bake or make everything we eat from scratch using white rice flour, tapioca flour, pure dextrose, certain dairy w/no coloring or additives and unseasoned, uncured meats with no coloring or additives.

My family and I are "flip-siders", meaning we are among the 20% that cannot be diagnosed via current DNA testing as the carrier gene for our variant remains unknown. My diagnosis was confirmed by Duke Unversity via a liver enzyme assay that has 100% accuracy. I'm missing Aldolase B and am so severely deficient in the other two that I might as well be missing them as well. We crave sugar, and unless totally fructose-free have chronic metabolic acidosis and kidney malfunction. As a result of physician failure to diagnose, we went untreated and consequently suffer neurological impairment and liver and kidney disease as well.

Some of our physicians are trying to find a research doctor to investigate my family's HFI. The variant we have affect muscle and CT. My symptoms include hypertonicity, spasticity, myofascitis, neuritis, tendinitis, contractures and recurring joint subluxations and dislocations. Upon going fructose-free, all these symptoms resolved. Accidental ingestion of any trace form of fructose and all the above returns with a vengence along with the acidosis and kidney and GI problems.

Deb Mc

[sarosh]

Dear Deb,

I seem to be having terrible muscle pain of late and my vitamin D levels have plumetted. I had a kidney function test done and the doctor said there was no problem. Is there a specific test for checking chronic acidosis? What is CT?
Sarosh

[Deb Mc]

Feb 23, 2010 1:50:14 GMT -5 sarosh said:

Dear Deb,

I seem to be having terrible muscle pain of late and my vitamin D levels have plumetted. I had a kidney function test done and the doctor said there was no problem. Is there a specific test for checking chronic acidosis? What is CT?
Sarosh

So sorry about your muscle problems. Vitamin D deficiency can cause muscle pain (and rickets), as can other nutrient deficiencies. In my case, there appear to be a number of contributors with chronic fructose poisoning being the # 1 culprit, I believe.

Chronic poisoning and chronic metabolic derangement are known causes of neuritis. Accidental ingestion of any form of fructose in even most minute amounts turns me back into a giant contracture w/living rigamortis - unbearably painful and very debilitating. In me, the disability didn't really start until my late teens/early twenties and it just gradually worsened over the years. Don't know if I was born w/a partial deficiency that went absolute or if I suffered nerve damage due to chronic fructose poisoning or ? - only that I can no longer tolerate any form of fructose in any amount.

With me, the customary metabolic panel for checking kidney function always came back with non-specific findings. The telltale signs were: reducing sugars in urine, proteinuria/porteinemia, terrible edema, frequent urination, urine retention, foul smelling urine, excessive thirst, Vitamin B binding and Vitamin D accumulation.

CT is short for connective tissue. My sons and I were recently diagnosed with Ehlers-Danlos Syndrome Type 3, a collagen defect. Funny thing, once I went off all fructose, most of my lifelong muscle and CT problems resolved. Ditto my son's. Fructose is definately the trigger. I suspect in us, the Ehlers-Danlos and HFI are one in the same. One reason some physicians find our case so interesting.

There are many types of acidosis that can be caused by metabolic derangement. We had/have elevated pyruvic acid (specialized blood test usually done tandem w/lactic acid), amino acidemia (plasma amino acid assay), amonamenia (sp? - simple blood test) to name a few, as well as hypoglycemia due to impaired glycogenesis. Much of this testing is hit and miss, meaning the acidosis you're being tested for must be present at the time of the draw/specimen collection.

My son's neurologist believes acidosis and/or metabolic/hepatic encephalopathy to be the underlying cause of his neurological complications, which are the result of his HFI left untreated for so many years.

Best wishes,

Deb Mc