Post by Debra on Apr 23, 2009 5:25:34 GMT -5
Hi everyone,
I would like to introduce myself. I'm from Seattle and I've been trying to figure out what is wrong with me since 1995! The doctors had given up. During a kidney infection in Nov. I started researching inborns errors of metabolism and when I read about HFI, I was amazed! It fit all my symptoms. January 1 - I started a fructose reduced diet and within four days my liver enzymes dropped dramatically. I sent off for the genetic test but I do not have any of the four common mutations. I underwent my 2nd liver biopsy on April 2nd and am now awaiting the results.
Undergoing a liver biopsy while on a low fructose diet was a much better experience than the first biopsy!! It was amazing.
I would like to introduce myself. I'm from Seattle and I've been trying to figure out what is wrong with me since 1995! The doctors had given up. During a kidney infection in Nov. I started researching inborns errors of metabolism and when I read about HFI, I was amazed! It fit all my symptoms. January 1 - I started a fructose reduced diet and within four days my liver enzymes dropped dramatically. I sent off for the genetic test but I do not have any of the four common mutations. I underwent my 2nd liver biopsy on April 2nd and am now awaiting the results.
Undergoing a liver biopsy while on a low fructose diet was a much better experience than the first biopsy!! It was amazing.