irene
New Member
Posts: 39
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Post by irene on Feb 25, 2009 11:05:48 GMT -5
I WAS JUST WONDERING IF ANYONE HAD BEEN IN CONTACT WITH BOSTON UNIVERSITY REGARDING THE RESEARCH THEY ARE CARRYING OUT ON HFI. I HAVE A CONTACT NME OF THE PRIMARY RESEARCHER BUT AS YET NOT CONTACTED HIM.
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Post by Tammy on Feb 25, 2009 12:00:19 GMT -5
Dr Tolan is the Dr. You'll see his name mentioned here several times. I have never met him, but have e-mailed him in the past, with him replying.
Fred knows another reseacher, too.
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Post by julienc on Feb 25, 2009 15:19:37 GMT -5
I corresponded with him once or twice via email when I was first diagnosed. He seems nice. I have a small fantasy of a mini-conference somewhere for all HFI'ers and family. We could all meet each other and then he could be the guest speaker - talk about his research, why he is interested in HFI, etc. We could make it easy for him and do it in Boston. Who's in??  |
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Post by meaniejean on Feb 25, 2009 16:13:24 GMT -5
Me, me, me! Great idea, Julie. Of course I am partial to Boston because I live in Maine ...
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Post by charlie on Feb 25, 2009 16:39:57 GMT -5
Wow, what a good idea.
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irene
New Member
Posts: 39
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Post by irene on Feb 25, 2009 19:13:36 GMT -5
Wow what a great idea, do you think they would cover expenses lol.
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irene
New Member
Posts: 39
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Post by irene on Feb 25, 2009 19:19:19 GMT -5
Dr Tolan is the name I have, think i'll send him an email. The other name I have is Florencia Rago, but she advised me to contact Dr Tolan as he has been researching HFI for some time.
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Post by Tammy on Feb 25, 2009 23:05:37 GMT -5
Regina and I would make it to Boston.
It would be fun.
All you need to do is set it up. lol.
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