Post by sonia on Jun 27, 2007 9:05:22 GMT -5
Dear all,
Just wanted to update you with what's been happening with James. Back in February we finally started the Fructose trials. This was a gradual introduction of Fructose in a carefully structured programme from the metabolic dietician. Because he wouldn't even try the vegetables / fruits she suggested we used pure fructose, starting at very very low concentrations. I was terrified, expecting a reaction at every new stage, BUT he was completely fine, even up to 16g (equivalent to a big helping of raisins). Then we did the same thing with sucrose, again to my astonishment, absolutely no reaction! Since then he has been getting used to fruits and different vegetables again and (unfortunately) chocolate etc. The hospital continued to follow him closely checking there was no subclinical reaction but yesterday he was finally signed off from the clinic.
The consultant believes James did have a temporary Fructose Malabsorption but she doesn't know why it happened. All the initial symptoms indicated HFI.
We have been very lucky and I wanted to let you all know what's happened just to highlight to parents of children who have just develped symptoms of HFI that there is a possibility that it is something different. You must of course treat your child as if he has HFI and get all the proper advice and information you can, but be aware that it may not eventually be the correct diagnosis.
We are very grateful to all of you for your advice which protected James for this last year and wish all of you and your children the very best.
With love,
Sonia and James.x
Just wanted to update you with what's been happening with James. Back in February we finally started the Fructose trials. This was a gradual introduction of Fructose in a carefully structured programme from the metabolic dietician. Because he wouldn't even try the vegetables / fruits she suggested we used pure fructose, starting at very very low concentrations. I was terrified, expecting a reaction at every new stage, BUT he was completely fine, even up to 16g (equivalent to a big helping of raisins). Then we did the same thing with sucrose, again to my astonishment, absolutely no reaction! Since then he has been getting used to fruits and different vegetables again and (unfortunately) chocolate etc. The hospital continued to follow him closely checking there was no subclinical reaction but yesterday he was finally signed off from the clinic.
The consultant believes James did have a temporary Fructose Malabsorption but she doesn't know why it happened. All the initial symptoms indicated HFI.
We have been very lucky and I wanted to let you all know what's happened just to highlight to parents of children who have just develped symptoms of HFI that there is a possibility that it is something different. You must of course treat your child as if he has HFI and get all the proper advice and information you can, but be aware that it may not eventually be the correct diagnosis.
We are very grateful to all of you for your advice which protected James for this last year and wish all of you and your children the very best.
With love,
Sonia and James.x
