Maple Syrup

[Tammy]

Now this sounds very promising. I just ordered the glucose, now I just have to find the mapleine. Going to go check out the local store first. I'm sure it'll be something Regina likes. Now I'm excited. lol

[DANIEL Robertson]

Im someone who has had HFI for 32 yrs. What Im trying to figure out is why is everyone trying to make desserts for there children..? HFI is a disease that has adversions to sweets, that what it is. I do have some sweet things, like sweet tarts, but I never had sweets when I was younger, at least my mom never tried to make me alot of sweet things. I guess it is puzzling that everyone is more concerned with making things that are simliar to a regular diet, then to just realize that HFI is a very restrictive diet, and making items sweet and like desserts, is not reallly good. Children can have a false reality about there disease. Get the children on a HFI diet before introducing sweet items. The diet is not exciting, but it really works. You child has to get used to the diet and be comfortable with it and know what they can have and can not have. Also, remember to much extra glucose is not good, the body has trouble metabolising excess glucose in the system, which can cause a different reaction.

[Tammy]

Hi Daniel,
My daughter has HFI. She is now 24 and has been on a strick HFI diet since she was 2. I agree with your reasonings to a point. One thing you have to realize is that Today's world is a completely different world from when you were a child. Being different was hard back then, but nothing compared to being different now.
There is nothing wrong with wanting to send your child to a birthday party for a friend without making the child feel left out.

What I have always done, and has worked terrifically, is to teach her the difference between "her" kind and "her brothers" kind. This is more valuble info than anything else she could have learned. It lets her live in todays world without being left out of anything. It lets her be a part of everyday life without being too much different.

It is also a very much easier way of life for "Mom". Today's mom's have to work and do a lot of things that the old mom's didn't. We don't have time to make special meals every day. It is much easier and less time consuming to just make 1 meal that everyone can have. It also is very nice to let the HFI child be like the rest of the family at meal time. Their diet restricts them for most of their meals, why also make them different when they are home?

Your plain, basic diet works very well. But, just like you said, it is boring. Why keep it boring when it doesn't have to be and is just as safe and works just as well? Put some variety in it. Make meals fun, especially when some of the new Mom's have trouble getting them to eat in the first place.

I, myself, get really excited when we find something new that can be "shared" with everyone, including my HFI daughter. She always asks if it is "her kind" before putting it in her mouth.

As for the sweets, Regina's favorite food is Chocolate Candy. (of course it's sugar free). She has an adversion to fruit tasting things, but loves sweet. I (like the other mom's on here) do not force things on her that she doesn't want. I don't make her eat fruit tastes just because I want her to. But I also don't make her stay away from things she likes as long they are HFI safe. Cakes, desserts, etc are things she likes. And she likes best the ones that we all can have.

I have preached on here many times that the most important thing is to be fructose free. But there is no reason that it can't also be fun, normal and full of variety.
Tammy

[itsmeheather]

For the same reason you see Diabetics all over drinking every flavor of diet soda imaginable... because they CAN.

It wasn't available 20 years ago.. your mother didn't say - I am not doing that for my kid because she needs to get used to this... SHe simply could not make it..

Today we can.. and today we are lucky that our kids have choices..

To me this is like saying why do you drive your car to work? Before we had cars everyone walked - and they still should because its better for them ( and the environment ).

I do it... simply because I love my daughter more than anything and want her to have as many options in her life as I can offer her.

Heather

[boron]

You people with HFI can have maple syrup? Even many with fructose malabsorption DFI) avoid it.

[colormist]

No, we can't have Maple Syrup. This is a thread on how to make your own maple syrup with glucose and mapleine.

[ukbill]

I hate to repeat my previous posts but I cannot agree more with Daniel it has nothing to do with "because we can" but because we should not!
And I know I'll get flamed for this again!
I do however disagree with his comment that the diet is not exciting!
The ability to detect low levels of refined sugar in foods is an essential skill for the HFI to survive without long term damage and feeling ill all the time!
There is plenty of foods and tasty meals that can be cooked without adding sweeteners.
I occasionally make puddings (as apposed to sweets) but usually have no room after I have eaten the main course as its so tasty I'd rather eat that.
Its really very simple.. just add flavour from herbs, stock, spices etc.
Yes I know I have not been on the site for a long time and I have promised to put some recipes on the site for a long time.

I am currently helping Boron with a list of HFI foods and diet information. I will copy any recipe here for you all to enjoy (or not as the case may be )

[monie57]

I made some Maple syrup with sugar in the raw (turbindo) and water and boiled it to thicken it. Turbindo is listed on the list the Dr. gave me. I didn't usemuch as it was real sweet.

[lisa]

Oh no! Don't use sugar in the raw. Try glucose syrup or dextrose for the sweetener. I buy glucose at the craft store in the cake decorating aisle. Wilton's has an 8 oz tub for about $4.

I buy a prepared syrup from the local Weber's bread outlet that is made by TJ Blackburns in Texas. It is pretty good and uses maltitol as the sweetener. There is also a syrup available from Joseph's that is SF and is sold online. www.josephslitecookies.com/index.cfm?method=Shopping_detail&productID=20&categoryID=6&parentCatID=1

[toothfairy2]

I bought the syrup at Joseph's. My son ate one and a half homemade french toast strip with syrup before he was complaining about his stomach hurting and feeling sick. Later in the day he started running to the bathroom. Maltitol doesn't work for some so be careful. "depends on purity" is how BU lists it on sugar list. I tasted this syrup, it's pretty good, so if you know maltitol works for you it's worth ordering.

[lisa]

That is a total bummer! Hopefully the glucose and mapleine option will work out for you.

Nathan does pretty well with maltitol so far - Twizzlers, gummy bears, See's chocolate, and his syrup all are made with it. Of course, we limit intake to a small amount.