Post by ukbill on Apr 13, 2023 16:31:54 GMT -5
This I have to stress is for all "adults" with a confirmed genetic diagnosis of HFI ONLY!
"Adults" is anyone over the age of 16 in this case.
We have some good things happening that I cannot yet say anything about, but as soon as I can I will.
There is a research project underway in Maastricht we all need to get behind.
If you are confirmed HFI (not 23 and me or any other "diagnosis" but a genuine confirmed case by a recognised lab and geneticist only I am afraid.
Then please contact the lady running the research by email and she will explain the process.
This is just a questionnaire!
lise.janssen.research@gmail.com
Please do not contact her unless you are absolutely positively confirmed HFI by genetic tests.
The lady knows nothing about HFI and cannot help in any way with anything other than this questionnaire.
So please do not deluge her with questions she cannot answer.
"Adults" is anyone over the age of 16 in this case.
We have some good things happening that I cannot yet say anything about, but as soon as I can I will.
There is a research project underway in Maastricht we all need to get behind.
If you are confirmed HFI (not 23 and me or any other "diagnosis" but a genuine confirmed case by a recognised lab and geneticist only I am afraid.
Then please contact the lady running the research by email and she will explain the process.
This is just a questionnaire!
lise.janssen.research@gmail.com
Please do not contact her unless you are absolutely positively confirmed HFI by genetic tests.
The lady knows nothing about HFI and cannot help in any way with anything other than this questionnaire.
So please do not deluge her with questions she cannot answer.