Post by dnbkittie on Jun 3, 2022 5:02:38 GMT -5
Hi, im 36 - what is the likelihood of a diagnosis now? Ive had stomach problems my whole life - been told IBS. Thought it was dairy at one point (often had dairy and fructose together), only discovered fructose intolerance was a thing last year. Had severe failure to thrive as a kid - 3 heads shorter than all my class mates, especially in primary school. Wore age 4 clothes at 8 years type thing. Very skinny and underweight. Constant nausea everyday of my life to the point i didnt want to eat much as a child. Hated anything healthy as a child, hated fruit, but i didnt mind sweet stuff in general though (my mum said all i drank was ribena, probably why i felt so rough!). Constant gassy tummy - i was known for it! Constipation dominant for most of life until last year when any fructose now gives me diahrea (and severe gas, its quite unbelieable how much).
As i got older, the bowel and rectum noises are eating sugary stuff with fructose got insane. And then i would pass just bright orange mucuos and gas (no stool) and eventually after multiple trips to toilet, the noise would stop after the mucous was gone. Very embarassing. When eating fructose, i have episodes of severe fatigue where i would have to lie down and i would instantly fall asleep - often on the bathroom floor at work several times per day. My muscles felt weak and i couldnt hold myself up without being in severe pain. I would get shaky, and irritable, and basically feel like i was having either low blood sure or low blood pressure. I couldnt concentrate, the brain fog would take over. I was tested for diabetes which was negative.
Ive had low iron, to the point of anemia for ages. I was tested 2 or 3 times in last decade for it and its always borderline. Other vitamins levels are fine except Vit D gets low sometimes. At times, if i had been out with friends drinking and eating, i would go home and have diarehea and then be on the floor shaking all over in severe discomfort with my tummy and feeling like i was going to throw up ans pass out. My teeth would litrally chatter from the shaking. I thought it was an ibs anxiety attack, now im not so sure. This happened many times when i wasnt controlling my diet.
Last year, i decided to lower my fructose intolerance (and so the episodes above started to get better and less). I was still learning what it was in, so was still digesting it without realising. But as i was lowering it, i finally started to gain weight/fat for the first time in my life. My size 6 (UK) shorts that fitted me for all my teenage years, all my twenties and some of my thrirties suddenly didnt fit any more. I went from 6 stone 12, to 7 stone 4 in a matter of months. This was with probably an 80% reduction in fructose. I could never tolerate alcohol or hangovers.
My fructose breath test recently came back at 144 ppm. Over 20 is an intolerance. When i did the test, after 45 miuntes i had the worst painful diarrehea i have ever had, which lasted for the rest of my 3 hour breath test for multiple toilet trips. I felt dizzy and sick. I had to drink lots of pure apple juice. Do i just have a severe FM, that ive had from birth essentially. Or could i have HFI. Im too scared to go to the doctors because i think they will just say lots of people have FM, deal with it. And you would be dead of you had HFI.
. I dont think they will believe me. Its ruined my life, especially the last few years. Ive barely gone out because the symptons are so terrible, usually starting early afternoon/evening time. Help!
As i got older, the bowel and rectum noises are eating sugary stuff with fructose got insane. And then i would pass just bright orange mucuos and gas (no stool) and eventually after multiple trips to toilet, the noise would stop after the mucous was gone. Very embarassing. When eating fructose, i have episodes of severe fatigue where i would have to lie down and i would instantly fall asleep - often on the bathroom floor at work several times per day. My muscles felt weak and i couldnt hold myself up without being in severe pain. I would get shaky, and irritable, and basically feel like i was having either low blood sure or low blood pressure. I couldnt concentrate, the brain fog would take over. I was tested for diabetes which was negative.
Ive had low iron, to the point of anemia for ages. I was tested 2 or 3 times in last decade for it and its always borderline. Other vitamins levels are fine except Vit D gets low sometimes. At times, if i had been out with friends drinking and eating, i would go home and have diarehea and then be on the floor shaking all over in severe discomfort with my tummy and feeling like i was going to throw up ans pass out. My teeth would litrally chatter from the shaking. I thought it was an ibs anxiety attack, now im not so sure. This happened many times when i wasnt controlling my diet.
Last year, i decided to lower my fructose intolerance (and so the episodes above started to get better and less). I was still learning what it was in, so was still digesting it without realising. But as i was lowering it, i finally started to gain weight/fat for the first time in my life. My size 6 (UK) shorts that fitted me for all my teenage years, all my twenties and some of my thrirties suddenly didnt fit any more. I went from 6 stone 12, to 7 stone 4 in a matter of months. This was with probably an 80% reduction in fructose. I could never tolerate alcohol or hangovers.
My fructose breath test recently came back at 144 ppm. Over 20 is an intolerance. When i did the test, after 45 miuntes i had the worst painful diarrehea i have ever had, which lasted for the rest of my 3 hour breath test for multiple toilet trips. I felt dizzy and sick. I had to drink lots of pure apple juice. Do i just have a severe FM, that ive had from birth essentially. Or could i have HFI. Im too scared to go to the doctors because i think they will just say lots of people have FM, deal with it. And you would be dead of you had HFI.
. I dont think they will believe me. Its ruined my life, especially the last few years. Ive barely gone out because the symptons are so terrible, usually starting early afternoon/evening time. Help!