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Post by Aksel's Dad on Apr 7, 2021 11:45:07 GMT -5
In creating our own "safe ingredients list" for our five-year old son, our primary source of information is the Internet, mainly the HFI-INFO Discussion Board. Nevertheless, we also try to closely observe our son's eating preferences and digestive reactions. He has a very evident aversion to sweets. As a rule of thumb, we try not give him anything he finds "sweet". Another clue for us is a sudden feeling of nausea he feels a few minutes after starting to eat certain foods that, in certain cases, he initally finds delicious.
Are there any other signs and reactions we have to be on the lookout for? For instance, shall we observe bloating, diarrhea, constipation, sweating... etc? If so, what is the reasonable time that should pass to establish the causal connection between eating the first morsel and the emergence of -say- sweating or bloating?
Many thanks in advance for your replies.
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Post by ukbill on Apr 7, 2021 17:52:56 GMT -5
Hypo glycaemia and in the case of a real poisoning event projectile vomit and what appears to be shock like symptoms. cold, sweaty, confused, steaming hot, vomiting again etc this can go on for hours in some bad cases.. Done it myself accidentally so I know! We also do not do very well if we get thirsty, thirsty and heavy exercise can bring on a Hypo even without eating any sugar. It is worth always having an emergency food pack around with a bottle of water or better still milk and water (separate). Hard boiled eggs will keep for a few days, as will prepacked cheese. a piece of meat is always good or a tin of sardines (in olive oil or brine) as a snack eaten out of the tin. It sounds strange and odd but it can save the day if little one starts to feel ill after running around like a wild thing for some hours  Keep smiling keep safe |
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Post by Aksel's Dad on Apr 8, 2021 10:10:25 GMT -5
Hypo glycaemia and in the case of a real poisoning event projectile vomit and what appears to be shock like symptoms. cold, sweaty, confused, steaming hot, vomiting again etc this can go on for hours in some bad cases.. Done it myself accidentally so I know! We also do not do very well if we get thirsty, thirsty and heavy exercise can bring on a Hypo even without eating any sugar. It is worth always having an emergency food pack around with a bottle of water or better still milk and water (separate). Hard boiled eggs will keep for a few days, as will prepacked cheese. a piece of meat is always good or a tin of sardines (in olive oil or brine) as a snack eaten out of the tin. It sounds strange and odd but it can save the day if little one starts to feel ill after running around like a wild thing for some hours Keep smiling keep safe I felt sorry reading your bad experience Bill. You can be sure that your recommendations will play a big role in paving the way of a child to his future. |
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Post by Stefanie (Ziba) on Apr 9, 2021 10:49:48 GMT -5
When my son was little (pre-diagnosis), he was fed sugar water in the NICU and had vomiting, bloating, lethargy and insomnia. As a toddler, he woudl try some foods (e.g. banana) and immediately projectile vomit. With other foods (e.g. peas), he would try it and then an hour or so later, he would have diarrhea, sweat, and become aggressive. Once I knew what I was dealing with, I could look back at my daily notes and see the pattern, but at the time, I had no idea what was going on with him. Sorbitol will cause an immediate reaction. My son turned yellow/gray and convulsed in his sleep. The only thing that brought him "out of it" was his amino acid formula. Without it, he may not have survived. Once we figured out what was going on (it was my doctor who figured it out as none of the experts at multiple hospitals for children ever figured it out), his symptoms improved immediately.
Your son will guide you with the obvious foods (fruits and veggies). It is the products that have sweets baked in that may trick his protective instincts. That is why it is important to make nearly everything from scratch.
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Post by Aksel's Dad on Apr 9, 2021 15:56:12 GMT -5
When my son was little (pre-diagnosis), he was fed sugar water in the NICU and had vomiting, bloating, lethargy and insomnia. As a toddler, he woudl try some foods (e.g. banana) and immediately projectile vomit. With other foods (e.g. peas), he would try it and then an hour or so later, he would have diarrhea, sweat, and become aggressive. Once I knew what I was dealing with, I could look back at my daily notes and see the pattern, but at the time, I had no idea what was going on with him. Sorbitol will cause an immediate reaction. My son turned yellow/gray and convulsed in his sleep. The only thing that brought him "out of it" was his amino acid formula. Without it, he may not have survived. Once we figured out what was going on (it was my doctor who figured it out as none of the experts at multiple hospitals for children ever figured it out), his symptoms improved immediately. Your son will guide you with the obvious foods (fruits and veggies). It is the products that have sweets baked in that may trick his protective instincts. That is why it is important to make nearly everything from scratch. Your answer was exactly what I was looking for, Ziba. That the products that have sweets baked in may trick the protective instincts is a very valuable info on its own. Many thanks, as usual... Our son's symptoms have never been so manifest. He never projectile-vomited, and out of his 100 nausea complaints only 5 ended up with actual vomiting. Before the HFI diagnosis, we even succeded in convincing him (with a reward mostly) to take a few bites from bananas, and his worst reaction was to bargain away the reward and stop eating. We have never experienced convulsions. And perhaps two dozen cases of diarrhea... This makes us believe that his case is rather mild which is of course a good news. However, this also means that his natural reactions to unsafe ingredients will remain hardly detectable for us. |
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Post by ukbill on Apr 18, 2021 7:03:53 GMT -5
He should (if allowed to) reject all sweet flavours naturally. This is a very good thing and will protect him through out his life. Feeding artificial sweeteners and glucose is never a good idea because it gets him used to sweet flavours and blunts his ability to detect sweet flavours in the levels he needs to be able to detect them. Keep smiling.  |
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Post by Aksel's Dad on Apr 18, 2021 8:47:19 GMT -5
He should (if allowed to) reject all sweet flavours naturally. This is a very good thing and will protect him through out his life. Feeding artificial sweeteners and glucose is never a good idea because it gets him used to sweet flavours and blunts his ability to detect sweet flavours in the levels he needs to be able to detect them. Keep smiling. Sounds very logical. Many thanks as usual, Bill. Best wishes to you and your family... |
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