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Post by lilyg5 on Feb 11, 2021 11:38:32 GMT -5
Hi everyone! My name is Lily Grace, I am 17 years old and a high school student. I would like your help on an AP research assignment. I want to shed more light on this condition as well as show the importance of an early diagnosis. I was diagnosed as a baby, I think only a couple months old, and even though from the formula I ingested, resulting in a liver failure, I still consider myself to be lucky. Of course there are still some mistakes here and there where I drink a regular coke and get sick but since it was found that I have HFI at a young age this is never a daily occurrence and I never went through the extent of what can happen from continuously ingesting sugar. There are a lot of people who didn't get a diagnosis until later on in their lives and I can't imagine how that could have been feeling sick all the time. That is what motivated me to want to write a paper on this condition, helping as many people as I can, in hopes of my paper getting published. I was wondering if you would like to take part on my questionnaire. Most questions will need an extended response answer and I know your answers might get cut short so I included my school email at the bottom where you can put the number(s) you were answering and answer it in as much detail as you would like. If the link doesn't work please let me know. Thank you! docs.google.com/forms/d/e/1FAIpQLSer8J2cW2oSJMYngctHiyLcmG3lmn6oNamXB62oFc9psVfFlQ/viewform?usp=sf_link
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Post by colormist on Feb 11, 2021 14:07:06 GMT -5
I'd be happy to complete it, Lily! I'm hoping you can raise some awareness to our condition.
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Post by colormist on Feb 11, 2021 14:31:26 GMT -5
Also, there are a few HFI support groups on Facebook. If you like, I can share the survey there as well!
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Post by lilyg5 on Feb 11, 2021 15:03:49 GMT -5
Thank you so much that would be perfect, the more people that can participate the better!
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Post by colormist on Feb 15, 2021 9:21:50 GMT -5
I shared it! Hopefully you get a decent response!
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Post by lilyg5 on Feb 15, 2021 15:05:39 GMT -5
Awesome! Thanks again!
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Post by colormist on Feb 15, 2021 16:50:54 GMT -5
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Post by lilyg5 on Feb 15, 2021 19:49:15 GMT -5
Great! I requested. If there are any more groups that would like to share please keep me updated.
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