sarah
New Member
Posts: 2 
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Post by sarah on Jun 23, 2020 11:27:21 GMT -5
Has anyone been diagnosed through a genetic test? I'm curious to know about one particular RS number....
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Post by christi on Jun 23, 2020 11:31:47 GMT -5
Has anyone been diagnosed through a genetic test? I'm curious to know about one particular RS number.... |
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Post by christi on Jun 23, 2020 11:32:45 GMT -5
Yes my son..if you would like to contact me im on facebook. Christina Diamandis Demetriades
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sarah
New Member
Posts: 2
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Post by sarah on Jun 23, 2020 14:58:11 GMT -5
Yes my son..if you would like to contact me im on facebook. Christina Diamandis Demetriades I have just sent you a message :-) |
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Post by rysmom14 on Jun 24, 2020 10:35:26 GMT -5
yes, my son was diagnosed via genetic testing as well
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Post by christi on Jun 26, 2020 16:22:57 GMT -5
yes, my son was diagnosed via genetic testing as well |
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Post by christi on Jun 26, 2020 16:24:25 GMT -5
Are you on the facebook page? If you like you can find me on facebook: christina diamandis demetriade
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Post by ukbill on Jun 29, 2020 16:47:57 GMT -5
The only safe diagnosis is Genetic. Frequently doctors confuse HFI with FM and give a glass full of Fructose 1st! Not good! The other old school method (which I had done on me) was the "challenge test" which dose what it says.. particularly if the Doctors get the decimal place wrong and give you 10x the amount of Fructose they should do! A 3rd method is liver biopsy.. which should be done only if the Genetic test comes out unknown. This has significant risks! The more damage present in the liver the higher the risk! With liver biopsy if the sample needle nicks a blood vessel then a slow bleed to death is the result! In damaged livers the blood vessels will not necessarily be in the normal places.. IF HFI is suspected the ONLY test should be Genetic 1st Sorry a lot of !!! but this is important!!!  |
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