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Post by gavergos63 on Feb 11, 2020 21:35:11 GMT -5
I am 56 years old and have a sweet tooth. My doctor thinks that I may have HFI due to my many symptoms ( muscle aches, constant nausea, hypoglycemic episodes, stomach pain...ad naseum).She said that my Aldolase levels are "too low to register". I have had been told I may have a fatty liver.
Based on the little I have read on this site, it is unlikely I have HFI. Most decidedly do NOT have an aversion to sweets. To the contrary!
I will take the Ancestry23 test in a couple of weeks.
Do Aldolase levels factor into a possible HFI diagnosis?
Thank you for any and all insight!
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Post by colormist on Feb 12, 2020 10:04:40 GMT -5
HFI is an adolase B deficiency--we don't have enough (or any) Adolase B in order to process fructose-type sugars. I'm not sure which adolase you are low in. Have you tried a fructose-free diet to see how you feel?
I like some sweets, but eating them always makes me nauseated so I avoid them in order to feel better. My brother also has unconfirmed HFI and does not restrict his diet as much as I do. I'm worried he might also have a fatty liver from the sweeter foods he's been eating.
When I first went on the HFI diet, I noticed that the more I was on the diet, the better I felt and the more severe the nausea became when I ate things I shouldn't have consumed. I became more sensitive to sugars the more I removed them from my diet.
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Post by gavergos63 on Feb 12, 2020 10:36:08 GMT -5
Thank you so much for your response! I am on day one of trying a fructose free diet. Starting my morning as usual with coffee using Premiere Protein Shake Cafe Latte flavor as creamer. I looked at the ingredients and see no fructose. Sucralose instead and one of the lists I have seen from University of Washington allows Splenda.
I wonder though, would low Aldolase B levels be a part of the HFI diagnostic criteria?
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nancy
New Member
Posts: 27
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Post by nancy on Feb 12, 2020 17:52:30 GMT -5
I, too, have had a sweet tooth all my life and didn't start having trouble until my 60's. I also had all the symptoms you have. Some of us must have a form of HFI where we have enough of the enzyme to get us well into adulthood but then no further--rather like a delayed onset. I do feel so much better now that I'm no longer eating fructose, sucrose, sorbitol, and polysorbate. Good luck!
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Post by gavergos63 on Feb 12, 2020 23:33:40 GMT -5
Thank you Nancy. I am glad to have found this forum.
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Post by colormist on Feb 13, 2020 9:03:18 GMT -5
HFI diet does not allow any sweeteners other than (naturally occurring) glucose and lactose. All the other sugars are processed using the same Adolase B pathway that fructose uses and will result in illness.
That being said, I have heard of a few HFIers that like aspartame. It's too sweet for me, but maybe it's something that you'd be able to use?
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Post by gavergos63 on Feb 13, 2020 21:22:10 GMT -5
Thank you for the information. The table of sugars on the Boston University website indicates that some are "tolerated". Folks on this board speak of Dextrose? I am so confused...there is do much conflicting information out there.
Do you know how long it takes for symptoms to abate after eliminating all sugars?
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Post by colormist on Feb 14, 2020 8:49:23 GMT -5
Dextrose is food-manufactured Glucose. It's made from corn. There's some concern among HFIers about dextrose being manufactured in a facility that make other sweeteners -- and they don't control sweeteners for cross contamination. (If you've ever toured a food factory, you'd notice there's is literally sugar in the air.) So we don't quite trust dextrose.
I've noticed it takes about a week for my hypoglycemia symptoms to abate after eating some accidentally sweet foods. You might notice a difference after a week--definite difference after a month. I'm not sure how long it would take your liver to recuperate, though.
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