When they get sick?

[Chelsea]

Gilliannes diagnosis started in the hospital after a bout of the flu, when she ended up hypoglycemic and acidodic. The day after we came home from the hospital we got a call that she had also been exposed to chicken pox during her stay, we are waiting for signs and symptoms.

My pediatrician gave us standing orders at the lab for blood draws if she has any signs of hypoglycemia, can't hold fluids, gets high fevers or for any other concerns I have. If her labs come out off she will then admit her for IV glucose and we can avoid going through the ER.

I realize hypoglycemia with illness is common but how common is the IV glucose? Could we try glucose tablets? What has your experience been with your children?

[kerrynz]

Greetings

In one way it’s great to see all the new members, but sorry to say it also means someone you know has HFI. Oh well welcome to the journey.

The info links on reactive hypo’s and the sugar chart are great thanks. We will let you know when it all settles.

There has been a lot of debate on potato, well Zanoah has her story as well, she eats it every day, mostly if we are out I’ll plan a meal around her getting fat hot chips, or if I can’t find them fries. The biggest problem here is the salt they put on, it’s normally chicken, so if the person serving is messy the over spay has to be dusted off. Or we ask for the next batch to be cooked and served before the salt is applied.

But at home she won’t eat mashed potato, so it is all ways just steamed not boiled and cut into thick straws for toddler fingers. She eats them like this every day.
I noticed she likes those that are grown in the ground as opposed to Hydroponics.

I’m looking to make a list of any ingredients that are found in medicines, such as Glycerin or polydextrose, if you can think of some, I would love to see them. I have one of those books that list the ingredients but sometimes I don’t know if I’m being over cautious, The ingredient ethanol came up this week and I still don’t know. So she ended up with a lot of tooth pain cause I could not find a safe product in time.
And the people helping just kept referring me around and around and around, thank goodness for ice and cuddles.

Kerryn

[Tammy]

When Regina gets sick from the flu, she gets sick just like any other kid. There is nothing different from her and her brother. So being hypoglycemic and acidodic may just be because she was sick.

Regina has never had a problem with dehydration, either. Actually, she has always been a kid who would rather drink than eat.

When she was in the hospital for an unrelated HFI incident, they gave her IV with dextrose. She had no problems with that. I think Kristen is right in that the Dr just wants the fluid in the IV glucose, not necessicarily the glucose. And the standing order to be admitted instead of going through the ER is actually good. You would have to start all over explaining the HFI, which they probably aren't familiar with, all over again. Then comes checking all the meds from anew again........... By her dr admitting her, she'll get the frutose free stuff the first time. It's a much safer way to do it.

I had Regina to the ER one time with an infection. The ER Dr DEMANDED I give her a med that wasn't sugar free. He said it was more important to get the infection cured, and we could worry about the rest later. Well, being who I am, I didn't allow her to have it. We were at a standoff untill her pediatrician finally got there. And of course we didn't give her the one with sugar. But that is the kind of thing that can be avoided by NOT having to go through the ER.

[andrea]

When my son was 3 months old, he had a seizure - he drunk fruit juice - but the doctors do not diagnose in that occasion. I always think that it was curiosity that he did not accept any sweet food. Somethings I had the impression that he smells how sweet the food was, and avoid it. He used anti convulsive medicine and after 6 months the doctor says that it was not necessary to continue to use this medicine. When he was 12 months old, I started do find that his abdomen was very large and change the pediatrician that followed Him since he was born. The new pediatrician find a very important hepatomegaly and then, started the investigation until hepatic biopsy. We did not do the molecular examination because here in Brazil we do not have. So, his doctor prefers to started a fructose-free diet and see how he will be. And Thanks God, he is very well, his last triglycerides taxes reduces a lot ; the first was 336 and the last ( six months with the treatment) 86. He will do another USG next March.