Chelsea
Full Member
Gillianne
Posts: 119
|
Post by Chelsea on Dec 18, 2006 0:17:16 GMT -5
Checking in real quick....
Not sure how widespread the news of the Seattle storm was but we got hit hard. We are finally home this evening with power after a few nights in the hotel. I am exhausted!
Our quick update on our appt. He is abovery *friendly* personely unsure! He was so surprised at the results, he was sure they were going to come back positive. He doubts an error in the biopsy, his comments on the elevated enzyme was nothing, unremarkable at best. He wants to start from the beginning again, so we repeated the urine organic acids for the 5th time. His hope is the first 3 were contaminated, I know it's a dream but you just never know.
He also wanted an eye exam, felt like there was something but didn't mention what, but it would also reflect changes in the eye. We already have one scheudled for February since her rheumatologist ordered on because of the JRA.
He also did mentioned the possibility of a mito disorder that could cause all the similiarities of what we are seeing. He doesn't want to go down that road just yet though.
A few other basic care things but I will mention those later when I am a little better rested. The house is still freezing and in shanbles but we have some tree issues to deal with tomorrow. Ah, I am just happy to be home.
Kristen, congrats getting to the mark. I know it's hard, my thoughts are with you.
|
|