Panera Bread?

[rysmom14]

Good Morning Board friends!

I was in Panera this morning and thought that I might be able to buy their bread?  these are the ingredients for the white bread

Unbleached Enriched Wheat Flour( flour, Malted barley flour, niacin, reduced iron, Thiamine, Mononitrate, riboflavin, folic acid)
Water
Salt
Bread Base ( Malted barley flour, Dextrose, Rye flour, sunflower Lecithin, wheat flour, fungal enzymes, ascorbic acid)
Yeast ( Yeast, Sorbitan Monostearate, Ascorbic Acid)

Do you think this is safe?

Thanks

[colormist]

I love their french bread. Their sourdough is also safe (or at least was the last time I checked). They also had this amazing asiago loaf that was to die for, but they stopped making it.

Not sure what bread you've listed, but the ingredients you listed look safe to me.

[rysmom14]

Thanks Colormist, I listed their plain white bread. i am just never sure about the wheat. I thought we were supposed to avoid wheat? I will have to look into their french bread. Ryan is not to fond of sourdough.

[colormist]

We have to avoid whole wheat, but refined white flour should be fine.

[tummyache]

Is Sorbitan monostearate really safe? [the following from wikipedia] - I am not so sure. I think it would be better to stick to sour dough or French bread where ingredients are white flour, water, salt, and yeast.

Sorbitan monostearate is an ester of sorbitan (a sorbitol derivative) and stearic acid and is sometimes referred to as a synthetic wax. It is primarily used as an emulsifier to keep water and oils mixed.

[colormist]

That wikipedia article makes me feel like NOBODY should be eating Sorbitan monostearate! It's uses includes pesticides, plastics, leather brightener...

Aside from sorbitan being a derivative of sorbitol, I'm not seeing anything HFI-alarming about that article. The sorbitan wiki article (https://en.wikipedia.org/wiki/Sorbitan) gives a bit more information about the chemical. Sounds like it's a half-way point between Sorbitol and derivative of Glucose.

Probably sticking to french bread would be the safest bet--particularly if you're feeding it to an HFI child.

[fred]

Panera Bread is not safe. Anything that is "Malted", contains fructose & sucrose

[stefaniebillette]

I avoid sorbitan monostearate because the one time he had sorbitol, he looked like death for three days.
I buy a frozen french bread that has nothing malted.

[rysmom14]

Do you mind sharing what the frozen French bread brand is and where you buy it? my son is trying the sourdough more, but I think the French bread would taste better

Thanks

[ukbill]

Sorbitol is a very nasty compound it is used in almost all medical IV fluids and has an L/D 50 of only 50g intravenously.. i.e 50g will kill 50% of adults with HFI if given into our veines via IV or injection.. ITs worth having a Medical bracelet with this on it IN BIG letters!

Following several deaths of HFI p[eople Sorbitol was supposed to being removed form IV fluids.. however it seems this is being ignored and almost all IV's are now full of the damn stuff. Perhaps as a result of pressure from drugs manufacturers?? IF so they are liable to be sued for dangerous practices that will have a harmful effect on a % of people given the drugs containing Sorbitol.

Anyone know of a good legal firm who might be interested in doing this?

The intention is not to make loads of money but to advertise our condition and remove this potentially lethal block to us obtaining proper medical attention in a timely manner for example in an emergency situation where time is lost finding drugs that do not contain Sorbitol.

The more noise we can make the more our condition will come (belatedly) to the attention of medical professionals who then might learn a little and save more "failure to thrive" babies. The numbers of us indicate that many must HFI be dieing before being diagnosed..I know that "failure to thrive" is the diagnosis given to many babies who die days or weeks after birth. I had a similar problem with my daughter when she was born.. she seemed to have Glycogen storage issues in that she was unable to stabilize her blood sugar as a baby and never woke up hungry she would simply fade away until she was in a coma like condition.

Anyway at 6 months old she suddenly "switched on" and was able to then stabilize her blood sugars.. however she still woke up at midnight for a bottle of a snack for many years... and then wanted to play.. and play...

[ukbill]

PS she is now in her late 20's and is running marathons.. so no long lasting problems there

[jenn123]

We have an EMT station down the street from us. I am gonna walk down there and ask them about this in the next week or so. I wonder what they carry with them on calls. Will report back.
Glad your daughter is doing good now 😊

[ukbill]

Thanks she is not HFI though.. other than her lazy liver when she was a baby she has not really had any health problems.. touch wood!
She did go through a period of being massively over weight though through her teenage years and early adulthood possibly caused by the same slow conversion of body fat back into blood sugar..perhaps?? who knows.. anyway she has now got herself fit and healthy too. IF her liver was lazy at balancing her blood sugars out when they dropped it would make her feel hungry when she has enough stored (as Glycogen and fat) to maintain her blood sugar for a few weeks. I think the exercise will have kicked her liver into working a bit better on the Glycogen side of things particularly if exercise is done on an empty tum.. (dieting).

Keep smiling

[jenn123]

I finally had a chance to walk to EMT station. I showed them my daughters letter of genetic condition from her doctor. The EMT told me that the IV solution (D5/D10) they carry does not contain sorbitol. I am in Northern California. I have heard that they use a different types of solutions in different countries though.

Also, the letter that we had from our doctor used the word "avoid" fructose, sucrose, sorbitol, which he interpreted as different than can not process. I have asked the dr to change the letter by making the wording stronger. Glad I checked as I would hate for there to be a misinterpretation.
😊

[colormist]

The biggest problem I've noticed is that people treat HFI as similar to lactose intolerance. Like it'll just make us gassy and have poop issues. If there's any way you could get the doctor to note that it causes severe hypoglycemia which can lead to coma/death, I think that's the best way to get people to take it seriously.

[ukbill]

Our main problem is the name Hereditary Fructose INTOLERANCE.. its the Intolerance that is the issue. If you tell a doctor its Fructosemia they know instantly that fructose could be fatal.

An Intolerance is far less life threatening (if at all).

Of the Medical professionals I have spoken to they all recognize Fructosemia as a potentially fatal condition.

I would like some other people to try this please and see if they get the same reaction from Doctors and Medical proffesionals?

[rysmom14]

Hi Bill,

When we were at the last round of Dr. appointments, we saw a new gastro physician, and throughout the appointment, he was the one who was calling it fructosemia. He was also the Dr. that was much more receptive to my son, and acknowledged the real food challenges.

I really wish the name could be changed to something that would alert people and it wouldn't be fluffed off as something similar to lactose intolerant.

[jenn123]

The similar terms hereditary fructose intolerance (HFI) and dietary fructose intolerance (FM) don't help. I have had a nurse confuse it with the dietary version before. If you are not personally affected by HFI, it seems to get lumped as the same.....soda vs pop, sneakers vs tennis shoes.

[ukbill]

Perhaps we could ask the chap who runs this forum to change its name? Fred do you have his contact details?
Perhaps to HFI / Fructosemia-info ?