Post by gerri on Jul 28, 2016 8:27:02 GMT -5
Born 1 month early - birth weight 5 lbs - jaundiced
My mother feed me evaporated milk - with corn syrup. In that year I nearly died twice from pneumonia and croup. Surprised I am still here. My mother made all homemade meals. I was always sick on the weekends - ear infections - sore throat and colds. I was never into eating much sweets. I went to school always with Peanut butter and Jam. Yes, by the weekend - I was sick. Holidays were always the worst time of my life. Don't remember one holiday - that I wasn't sick. It was a normal thing - to be throwing up - ear infections - tonsillitis - think I had every childhood illness - except for mumps.
As I got older - ate what I wanted felt better. (always limited myself - little to no sugar) I was hypoglycemic all my life - with diabetes when I turned 40. When my own family came along (in my 20's) - then I started noticing same health issues in my oldest son - still no closer even then to HFI diagnoses - but I severely limited the amount of sugar of any kind for all of us.
My boys fathers liked sweets - wanted to bake all the good stuff - that is when my health issues started to change. As years passed - failed marriage - single parent - failed relationships - change in diet - I became really sick. I baked what the family wanted - I continued to get sicker - I have a number of autoimmune diseases - severe allergies (anaphalatic allergic to sulfies) - many other health issues. Never an alcohol or drug user because of my sulfite allergy. My liver enzymes alway high - no doctor could explain.
As my allergies/intolerances continue to worsen - diagnosed with celiac/fructose intolerance/malabsorption/lactose intolerant - allergies to corn/wheat/egg/low soya tolerant - there was always something else. I followed a stricked celiac/wheat/lactose/corn/egg/ sulfite/ fructose malabsorption diet - still not right. Finally about a month now - still tweeking - I am on a total HFI diet. The chest pains (thought I was having a heart attack) has stopped - unless I use stevia - or other fructose/fructan food, that I am not suppose to have. I am loosing my 10 month pregnancy look. A gastro doctor - wanted me to have a gastro bi-pass - told her she was nuts. I told her I don't eat much - she as much called me a liar - I never went back to her after that appointment.
My gastroendocrinologist (new) diagnosed me with fructose intolerance - said it would sulfice to just to follow the fructose malabsorption diet. After finding out the hospital he works out of at McMaster children's Hospital, does offer genetic testing. I have asked him for the genetic testing. He refused to send me for any other testing because of my history with fructose. He origianally said they didn't offer the genetic testing - which I just found out was not accurate. I have a cousin - also who was diagnosed as a baby with HFI. If gastro doesn't send me for the testing - will get my family doctor to order the genetic testing from my gastroendrocrinologist as a must. Hoping in near future - I will be able to get the genetic testing done.
My mother feed me evaporated milk - with corn syrup. In that year I nearly died twice from pneumonia and croup. Surprised I am still here. My mother made all homemade meals. I was always sick on the weekends - ear infections - sore throat and colds. I was never into eating much sweets. I went to school always with Peanut butter and Jam. Yes, by the weekend - I was sick. Holidays were always the worst time of my life. Don't remember one holiday - that I wasn't sick. It was a normal thing - to be throwing up - ear infections - tonsillitis - think I had every childhood illness - except for mumps.
As I got older - ate what I wanted felt better. (always limited myself - little to no sugar) I was hypoglycemic all my life - with diabetes when I turned 40. When my own family came along (in my 20's) - then I started noticing same health issues in my oldest son - still no closer even then to HFI diagnoses - but I severely limited the amount of sugar of any kind for all of us.
My boys fathers liked sweets - wanted to bake all the good stuff - that is when my health issues started to change. As years passed - failed marriage - single parent - failed relationships - change in diet - I became really sick. I baked what the family wanted - I continued to get sicker - I have a number of autoimmune diseases - severe allergies (anaphalatic allergic to sulfies) - many other health issues. Never an alcohol or drug user because of my sulfite allergy. My liver enzymes alway high - no doctor could explain.
As my allergies/intolerances continue to worsen - diagnosed with celiac/fructose intolerance/malabsorption/lactose intolerant - allergies to corn/wheat/egg/low soya tolerant - there was always something else. I followed a stricked celiac/wheat/lactose/corn/egg/ sulfite/ fructose malabsorption diet - still not right. Finally about a month now - still tweeking - I am on a total HFI diet. The chest pains (thought I was having a heart attack) has stopped - unless I use stevia - or other fructose/fructan food, that I am not suppose to have. I am loosing my 10 month pregnancy look. A gastro doctor - wanted me to have a gastro bi-pass - told her she was nuts. I told her I don't eat much - she as much called me a liar - I never went back to her after that appointment.
My gastroendocrinologist (new) diagnosed me with fructose intolerance - said it would sulfice to just to follow the fructose malabsorption diet. After finding out the hospital he works out of at McMaster children's Hospital, does offer genetic testing. I have asked him for the genetic testing. He refused to send me for any other testing because of my history with fructose. He origianally said they didn't offer the genetic testing - which I just found out was not accurate. I have a cousin - also who was diagnosed as a baby with HFI. If gastro doesn't send me for the testing - will get my family doctor to order the genetic testing from my gastroendrocrinologist as a must. Hoping in near future - I will be able to get the genetic testing done.
