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Post by tummyache on Jun 27, 2014 17:47:08 GMT -5
Had a nurse friend mention the advantage of a medical alert tag and got me to wondering how many adults on this forum wear them? What are your thoughts? Should we be wearing one?
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Post by charlie on Jun 28, 2014 3:09:59 GMT -5
There are various schools of thought here, has been discussed before, will try and find thread.
It needs to be very clear what you can't have as they may not have heard of HFI and may delay life saving treatment while finding out.
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Post by lucky on Jun 28, 2014 9:20:21 GMT -5
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Post by tummyache on Jun 28, 2014 20:02:20 GMT -5
Thank you everyone for all your insights! I have been looking back at a lot of the older threads and finding lots of gems that have helped me to better understand some of the diversities that exist among members on this site and the way HFI is expressed for various folks through your experiencs. As a senior adult, it really helps me since I have had such a mixed bag of support from the medical establishment over the years, to better understand some of my own problems with fructose.
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Post by charlie on Jun 29, 2014 4:21:42 GMT -5
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Post by fred on Jun 29, 2014 18:49:42 GMT -5
I'd just like to clarify something about Medic Alert, and mine is a bracelet. The one I have also has two plates on it, one is for HFI (then called Fructosemia) and the other is for an excess blood clotting problem.
What has not been mentioned in the various posts on this subject, is that the bracelet (Tag) also contains a twenty-four hour toll-free phone number where an attending Doctor or First-aid person can call and recieve a complete explanation of the condition and of what and what not to do in an emergency. This is written by your doctor.
Fred
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Post by lucky on Jun 29, 2014 22:57:19 GMT -5
Here's some info... Medic Alert (Canada) www.medicalert.caFor those with a confirmed life threatening issue, having this is an incredibly important and reassuring safety measure. |
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