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Post by diogosoldatti on May 7, 2014 3:32:12 GMT -5
For someone with hereditary fructose intolerance, can one receive blood from other people?how does this work if we need urgent blood transfusion?has anyone had experience with this? Please i need urgent answer, thank you
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Post by colormist on May 7, 2014 9:20:58 GMT -5
I talked to my geneticist about being hospitalized. He seemed to think the only thing that would be of concern in a hospital setting was the contents of an IV. I'm not certain (as I'm not a doctor), but I think the only sugars that are in blood are glucose.
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Post by Tammy on May 7, 2014 9:53:00 GMT -5
When Regina was in the hospital she received blood several times and never had a problem with it.
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Post by charlie on May 7, 2014 10:12:53 GMT -5
I can't think of any reason why it would be a problem as the HFI problem is in the way your body metabolises fructose in your liver not a blood related problem, therefore the blood would not be affected by the donors metabolism.
any fructose would be metabolised already by the donor and it highly unlikely they would have HFI.
I hope it is nothing serious.
Out of interest has any HFI sufferer ever been accepted as a blood donor?
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Post by colormist on May 7, 2014 10:29:17 GMT -5
I am needle-phobic, so the mere thought of offering to get stabbed multiple times by someone with dubious skills with a needle is near-traumatizing. Also, I'm still not sure what you would have to do after the donation. Would I have to bring my own milk/crackers? It's not like I can eat what they offer.
I start to think of these food-related blood offering questions and then realize I'm never going to get to the stage where I don't run screaming from one of those red cross blood donation vans, so the question is moot.
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Post by diogosoldatti on May 7, 2014 15:19:57 GMT -5
Thank you so much for the answers guys!
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Post by fred on May 7, 2014 16:23:29 GMT -5
I had a blood tranfusion a couple of times after surgery and it went OK. However I'm not sure about it going the other way, from an HFI person to one who is normal (so to speak).
If there is any fructose present in the HFI donor persons blood (fructosemia) I don't know if it can be used.
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Post by denverjay on May 16, 2014 14:17:17 GMT -5
I have donated blood my entire adult life with no problems.
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Post by kollynsmom on Jun 8, 2014 9:02:29 GMT -5
We have traveled 4 hours to the lab to get retested several times already because of clotting issues. Since he is so tiny (13 pounds at 4 1/2 months) they can only take so much blood per day. Big issue for us!
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Post by charlie on Jun 9, 2014 15:41:24 GMT -5
Oh, poor chap, hopefully he will really pick up growth now you know what is wrong with him.
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Post by kollynsmom on Jun 10, 2014 8:17:28 GMT -5
We do have a positive gene test for HFI... it is other issues we are trying to sort out. The doctors can't seem to grasp that one illness can cause ALL of his issue. I was just expressing that his blood either clots quickly or takes a super long time to clot, which I would assume would be bad to be a blood donor.
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