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Post by diogosoldatti on Mar 26, 2014 9:45:19 GMT -5
Well, its been hard, i remember being a child, i hated fruits and vegetables, HATED..they tasted to sweet..ocasionally i would eat a litle of very unripe and sour ones like lemon,or strawberries..as the years passed,i know i avoid those,but later when problems surged,e started eating more fruit and vegetables..when i say problems, im refering to heart palpitations,arrythmias,irritability, over emotionality, etc..i told my parents something was wrong, they didnt listen, they didnt care..they allways thought it was psychological..i ended up being followed by psicologists..because they thought i was hypocondriac..well,maybe i was, but i dont think so..after a lot of money being spent in psicologists,psiquiatrists, cardiologists, and a lot of medication for suposed "rage" because i was very irritble,and those medications made me "high" and calm, when i was 14 i decided i wouldnt take any meds,or medical advice, in oposition to my prents will, sometimes i felt ok, other i felt like crap, and felt i was going to die,or i couldnt feel my heart,or had palpitations, ive gone through a lot of nuts,a LOT of it..i decided later to explore health and nutrition on the internet, rather than go to the doctor ,because i allways felt misunderstood, and no one comprhended me..i knew what i felt wasnt good, my friends had no problems whatsoever, they eat what they want, why am i so unforntunate a feel like this?" Ive tryed all diets you can heard of, but first, i started eliminating all dairy and gluten from my diet..felt nothing really diferent,maybe a,litle, than i eliminated all processed foods..and meat,so as you can see, i became vegan , at this point, fruit taste great,honey all fruit, except ripe bananas, i allways hated those), but i was allways hungry, didnt know why..i was losing a,lot og weight..i couldnt do sports nor could concentrate in school.. My friend told me, man, you are yellowish ,and i could see it in the mirror..dark circles under the eyes,the whites of the eyes yellow to..not A LOT as you can see in people with severe liver problems but they were really jaundiced actually..i started researching a litle more..i started paying atention to my stool, and i realized that almost the same way, a fruit would enter my mouth, in an identical way they would apear in the feces,undigested..i was wasted, i had to get back on eating meat.. I did lot of research about it and came to the conclusion humans need it,specially me at that point..but heres the problem.. And heres why i dont know if this might be hereditary fructose intolerance, F malabsortion,or, any kind of other stuff like yeast ,fungal infection or what not..looking into my child days, i wouldnt eat fruits,but would eat candys ,i cant remember what candys but i know i would eat it some..dont know if they had only glucose,or whatever) but with my past i can relate and plus,with the present also,as i get jaundice,i loose weight,and im allways cold,but heres the problem now, is that i crave sweets,i crave honey now,i crave fruit,but if i eat it i cannot function for 2 to three weeks..what is saving my life i believe,is raw egg yolks,wich i feel that cleanse my liver and all the undigested fructose that collects in my liver,intestines and kidneys..could this sugar craving be also a sign that the bacteri that feeds on undigested food (in this specific case fructose) , as they are cleaning the mess,they eat all and want more?i notice, that i ONLY can function eating egg yolks, raw, raw meat,fish and raw dairy, i cannot eat any sugary stuff..not because i dont like it as some people here cant stand the sweey taste etc) but i get really ill, i cannot move,i cant do nothing other than being home with no energy and loose stools with all the food undigested..the only carb sources i can eat with no problem is raw dairy and white organic rice (wich is by the way the only cooked food i eat, and only once to twice a week,and at this point im not consuming raw milk,but only buter and cheese,as i am in ketosis..but even eating carbs, i crave SUGAR, Cakes,fruit,honey etc.. Anyway i hope you guys could share some opinion and critics about this,they are welcomed.
P.s. i am 20 years old now, and im Portuguese,so, sorry if my english is not the best but i hope you can understand me) peace
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Post by fred on Mar 26, 2014 11:56:29 GMT -5
Hi diogosoldatti
My goodness what a story you have. Some of what you have experienced sounds much like HFI but other experiences and symptoms don't.
I would suggest to you that you find a good Gastro-enterologist and ask him or her if they would test you. The DNA test can be done now with a swab of saliva. I think you may also need additional tests in order to get to the bottom of your problems.
You stated that you are only twenty years old so "now" is the time to get whatever testing done so you don't do more damage to yourself than what may have already been done.
In the 1960's, I had some of those symptoms that you have and I was was just a little older than you when I was tested and it totally changed my life for the good. So get the testing done now.
If it is HFI, then you will have to go on the diet and there can be no cheating or you will still suffer and eventually do yourself damage. So, get busy and find yourself the right doctor.
Good Luck
Fred
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Post by diogosoldatti on Mar 30, 2014 10:21:34 GMT -5
Hi diogosoldatti My goodness what a story you have. Some of what you have experienced sounds much like HFI but other experiences and symptoms don't. I would suggest to you that you find a good Gastro-enterologist and ask him or her if they would test you. The DNA test can be done now with a swab of saliva. I think you may also need additional tests in order to get to the bottom of your problems. You stated that you are only twenty years old so "now" is the time to get whatever testing done so you don't do more damage to yourself than what may have already been done. In the 1960's, I had some of those symptoms that you have and I was was just a little older than you when I was tested and it totally changed my life for the good. So get the testing done now. If it is HFI, then you will have to go on the diet and there can be no cheating or you will still suffer and eventually do yourself damage. So, get busy and find yourself the right doctor. Good Luck Fred Yes, i will go to the doctor,but i know better than they do. About my health and,about health in general..i just need a non invasive diagnosis..so that saliva test would be great! I wont make any biopsy. But i dont know how portugal is advanced regarding hfi..cant find anything about it in the internet,only what it is and symptoms and what not..any case yet ,at least exposed, that i know of..im 99% sure it is hfi... But in terms of plant matter, and fructose tolerance, i know it varies from person to person,but ive read somewhere that up to 1g a day of fructose intake to be ok? that is 1000,mg of fructose being tolerable to hfi suferers. |
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Post by charlie on Mar 30, 2014 13:07:43 GMT -5
Hi, tolerance varies a little but if it is HFI you have you need to aim for as near to zero as possible rather than risking little bits. However, if you have fructose malabsorption then you can tolerate certain amounts if balanced with glucose. look into the gene test first and go from there, but in the meantime eliminate as much as you can and see what happens, sometimes that is the only diagnosistic method available.
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Post by ukbill on Mar 31, 2014 0:38:17 GMT -5
I would tend to look in the direction of Fructose Malabsorption and possibly one of the starch adsorption problems like CSID. symptoms to me do not sound classically HFI never heard of an HFI being able to tolerate ANY honey at all not without projectile vomiting anyway. Certainly whatever your diagnosis turns out to be it will be a multiple complex one I am sad to say. I cannot understand why you are only eating raw meat? it is very hard to digest raw and if your digestion and Liver are compromised then cooking the fish, meat and eggs will help your digestion a lot and give your liver a much softer time. Hope this helps. Keep smiling  |
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Post by diogosoldatti on Mar 31, 2014 8:30:10 GMT -5
I would tend to look in the direction of Fructose Malabsorption and possibly one of the starch adsorption problems like CSID. symptoms to me do not sound classically HFI never heard of an HFI being able to tolerate ANY honey at all not without projectile vomiting anyway. Certainly whatever your diagnosis turns out to be it will be a multiple complex one I am sad to say. I cannot understand why you are only eating raw meat? it is very hard to digest raw and if your digestion and Liver are compromised then cooking the fish, meat and eggs will help your digestion a lot and give your liver a much softer time. Hope this helps. Keep smiling Thanks charlie for replying . Ukbill, i didnt said i could tolerate honey..it tastes good, as a lot og other fruits at this point..i also crave it at this point the problem is that ig i eat any of those,my liver gets congested i get hypoglicemia,jaundiced,kidney pain,frequent urination,itchy skin ,low blood,pressure, extreme fatigur,irritability, wich unables me to function..also heart palpitations as overall dehydration...those are the reasons why i am sure is hfi,and it was when i became vegan that all problems worsened.as for raw meat and raw eggs,you got it all wrong my friend,eggs that are raw are the most easily digested food of all. One egg will digest in aprox. 27 min with no need for hydrocloric acid secretion,as all the protein and fat in it its already liquid. Raw meat its much easier to digest than cooked,t has all of the enzimes ,bacteria in it that help digestion,all the nutrients are 100% bioavailable. Beleve me bill,if it wasnt for the raw rggs i would pro bably be dead right know..thankd for replying. Peace |
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Post by ukbill on Apr 2, 2014 22:27:44 GMT -5
Well all I can say is I have eaten meat and fish both raw and cooked and for me cooked is most certainly far easier to both eat and digest.
Some meats are really not safe to be eaten raw.. pork for example is quite dangerous to be eaten raw.
It sounds to me like your body is see sawing on bloody sugar levels .. are you eating Glucose by any chance?
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Post by lisamaryt on May 30, 2014 7:06:38 GMT -5
Hello - I suspect I have HFI because of my symptoms, history, and genetic test results from 23andme using the Livewello interpretation software: ALDOB, rs1800546, minor allele C, phenotype CC, phenotype +/+. I also have +/+ at some areas of SI (SUCRASE-ISOMALTASE.) I am doing well with farm fresh grass fed beef, chicken and turkey that is not fed soy, homemade unpasteurized strained goat milk yogurt, and am drinking appx 1 cup of red lettuce (juiced to yield a few TBSP.) My major health issues are severe multiple chemical sensitivities and intermittent fatigue. I was diagnosed with fibromyalgia in 1995 and have been doing research to try to get healthier since then. In case this can help anyone - I take various supplements including Thorne Basic Nutrients 3 and digestive enzymes but am back on Kirkman's Carb Digest with Isogest enzyme that I had quit since it contains a trace amount of soy. For more info see: kirkmanlabs.com/ProductKirkman/84/1/CarbDigestandwithIsogestand/ and www.kirkmanlabs.com/uploads/DigestiveEnzymesGuide.pdf. I have only been tolerating appx 1/2 cup per meal of white sushi rice or sprouted millet or sprouted buckwheat groats that I buy from www.bluemountainorganics.com/store/index.htm. Can people share how many grams of carbohydrate they eat? I feel like I need more carbs for more energy and strength. Thank-you!
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Post by colormist on May 30, 2014 7:23:26 GMT -5
Hi Lisa,
Funny you ask about carbs. I just went on a keto diet to reduce my weight. I'm down to 20 carbs a day. Previously I had been eating a mountain-load and it seemed like I was always hungry. I also went on keto to get my hypoglycemia under control--as it was running rampant and causing me to have issues with exercising and I would have to plan any activities around a 3-4 hour eating period. I'm doing better now on a low-carb diet. I'm not a fan of meat OR fat, but I can definitely function for longer periods of time without eating now.
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Post by charlie on May 30, 2014 11:15:24 GMT -5
I am halfway through a fascinating book about Carb intake. My daughter has CSID and the lower the starch intake the better she is, but I just can't get my head around low starch to keep an 11 year old fuelled, but I am getting there. The chapter I am on is advocating more meat and fat at the moment, will update when i get further through. Lisamaryt have a look into Veganzyme made by Global healing, I use it now for my daughter and it seems very effective, I sat down and googled all the enzyme supplements I could find and compared their levels of units for starch breakdown and they came out the best, better that isogest and had alot more in them for general digestion too, cost wise they work out about the same. are you in America, the only extra high cost for us is postage. www.globalhealingcenter.com/supplements/digestive-enzymes-supplement.html |
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Post by lisamaryt on Jun 9, 2014 11:49:01 GMT -5
The Veganzyme has fruit which I avoid and the xylanase is low so I am still taking Enzymedica's CarbGest and replaced Kirkman's Carb Digest with Kirkman's full spectrum enzyme with Isogest kirkmanlabs.com/ProductKirkman/90/1/Maximum%20Spectrum%20Enzym-Complete-DPP-IV%E2%84%A2%20Fruit%20Free%20w-Isogest%C2%AE/. My hypoglycemia is amazingly under control eating only 4 meals a day using the diet I described above and am doing fine with 3/4 cups of Lundberg organic white sushi rice with 3-4 oz chicken or beef and 3 oz of my yogurt. Total appx calories are 1800, carbs 185, protein 120, and fat 70. I may eliminate the rice and see how I do with just the yogurt providing the carbohydrate which would take me to about 20 grams also. |
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Post by lisamaryt on Jun 9, 2014 11:59:27 GMT -5
Update to 5/30/14 post regarding 23andMe genetic test for HFI. My Promethease report shows RS1800546 is GG not CC like 23andme shows so I am actually at a reduced risk for having HFI. This link shows RS1800546 has an "ambiguous flip" that can cause confusion www.snpedia.com/index.php/Rs1800546. |
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Post by charlie on Jun 9, 2014 15:39:58 GMT -5
Hi Lisamaryt, so I am confused, are they now saying not likely to be HFI. Mind you by the sounds of it you are tweaking your diet well enough to work out what suits your body which is fine as an adult, obviously harder if you are trying to feed a child. But that may be your best answer, eat what suits and leave what don't ..........
To clarify though, great you have found enzymes that suit you but I have extensively researched the ingredients in Veganzyme and they don't contain fruit. Where it mentions fruit they are listing what the enzyme works on.
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Post by lisamaryt on Jun 10, 2014 8:56:58 GMT -5
Hi Charlie, I avoid bromelain and papain that in my understanding is derived from fruit. It's great that Megan was diagnosed. I am trying to diagnose myself and a genetics savvy acquaintance shared her ALDOB rs1800546 23andme results that lo and behold were the same as mine. The "ambiguous_flip" is explained here: www.snpedia.com/index.php/Ambiguous_flip. |
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Post by lisamaryt on Jun 12, 2014 10:07:16 GMT -5
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Post by charlie on Jun 12, 2014 10:27:30 GMT -5
If haven't missed you, wish you good luck.. Sometimes you have to mix and match and be guided by what works for you. Meg is much better off starch too. Look up another site www.csidcares.org as well, it has very well researched stuff on it. Also Matthews friends is another ketogenic diet. All the best. Charlie |
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