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Post by rumlee on Dec 8, 2013 3:43:28 GMT -5
Hello
I am new and have a question. From what I read on different sites, glucose tablets can help, if you get a reaction from fructose. Is this true for people with HFI? Can I use glucose tablets as a sugar energy source when feeling a bit tired? Does anyone here use glucose tablets?
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Post by charlie on Dec 8, 2013 3:56:54 GMT -5
Ok this question may spark a debate......... Don't worry, it's very usual.........
If you can tolerate milk that is your best defence against a blood sugar low if you have fructose, the glucose theory is used more for fructose malabsorption where it apparently bonds with the fructose and helps pull it thru the intestinal wall. That isn't the problem in HFI. Glucose tablets depending again on which country you are in are very likely flavoured with other things too. They certainly don't suit my daughter but she has a different sugar problem going on. I make sure I have a pot of glucose powder with me at all times and when she has gone low enough that milk won't work I give her two teaspoons of it dissolved in water then follow up with milk, you need to watch for a yo yo effect of blood sugar if you only use glucose.
Hope this helps.
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Post by rumlee on Dec 8, 2013 10:21:02 GMT -5
Thank you. I can tolerate milk. Can milk reduce the pain then?
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Post by rumlee on Dec 8, 2013 12:48:54 GMT -5
I was a bit fast on the milk tolerance. I had a glass of milk one hour ago and now it is burning in the lower left side of my stomach and hurts and my body is shaking. Arg I could cry now. I feel so frustrated. It's like nothing works for me....
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Post by rumlee on Dec 8, 2013 13:06:16 GMT -5
I was a bit fast on the milk tolerance. I had a glass of milk one hour ago and now it is burning in the lower left side of my stomach and hurts and my body is shaking. Arg I could cry now. I feel so frustrated. It's like nothing works for me.... On the milk it says 4,6 g of sugar 100ml. Is this the amount of lactose, or is this added sugar? |
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Post by charlie on Dec 8, 2013 13:27:48 GMT -5
OK, whoa there, rewind.
You said in the other post that you were in the system for diagnosis, so I assume HFI is a suspicion at the moment. There are an awful lot of sugar intolerance problems that people can have and when people start jumping on a diagnosis and trying to cut out foods they can get a very muddled picture for a while and get very frustrated.
So start again, introduce yourself. What symptoms do you have, at what age did they happen etc. That may give a clearer answer for us to steer you from our collective experience. I am one of those that started absolutely HFI for my daughter, but now it is very clearly a multi sugar absorption problem that is actually easier to deal with longterm. so it may be we can help you sort out what you can and can't have.
For example, if you reacted to milk that is not HFI, the sugar in it unless it is a sweetened variety will be lactose sugar not fructose they are measuring. But it may have been as a result of something else you ate before it etc.
The best thing is to get a medical tests done, DNA is your best first stop. But fill us in more as we may be able to say if it sounds like HFI or more like something else from our experience.
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Post by rumlee on Dec 8, 2013 13:39:30 GMT -5
Hello thank you for you reply. I was feeling fine before I had the glass of milk. I also react strongly to fructose. I am 36 years old and I think I had this all my life but in the past 4-6 years it has been worse. 4 years ago I had a bleeding in the brainstem. I am now after 4 years close to finding out why I get sick all the time. I am waiting to get tested for HFI. My mother has exact same symptoms but never done anything, and now her lever is in bad shape. I told her about HFI and that she should get a test as soon as possible
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Post by colormist on Dec 9, 2013 11:04:46 GMT -5
Hi Rumlee,
I think I replied to you on my blog about getting HFI diagnosis. HFI primarily affects the liver and kidneys, which leads to a trickle-down (up?) impact on the brain's cognitive function. I've never heard of it causing bleeding in the brainstem. While the HFI diet can be beneficial for people with fructose intolerance, it might cause serious issues for people with other medical conditions. Until you have a definitive diagnosis, I don't know if you should be on the HFI diet as you don't seem to have the typical symptoms. You might be best-served paying attention to your own body's reaction to the foods you eat, maintaining a food/symptoms diary, and continue working with doctors to find the root cause of your condition. As Charlie mentioned, it might be multiple medical conditions that would be causing your problems. Since you already are in the process of seeking medical diagnosis for HFI, there's little we can do to help you until you get your results back.
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Post by rumlee on Dec 9, 2013 12:16:27 GMT -5
Thank you for your help. ;-)
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