Post by charlie on Sept 2, 2013 14:22:46 GMT -5
OH Bless her, I have to share this with you all as you have helped me so much with my onward journey with Megs. Its not to do with diet, but it shows, like Jens post, there is light at the end of the tunnel.
We are getting there ever so slowly with Megs and I will fill you in on where in a minute but I have just had the most fabulous experience with my little girl who aint so little now. She isn't the bravest of souls, will never put herself out there, I am pretty certain she has Aspergers in some degree or another so this weekend was a major deal for her and we have been building it up slowly. She is a huge fan of the boy band JLS ever since she saw them on X factor and then they arrived at the hospital the day she was admitted for 2 days of horrible tests to celebrate the first birthday of the hospital wing. Well anyone who is anyone will know that they are splitting up at the end of the year so I managed to find some tickets to go and see them at a music festival this weekend. Now Megs doesn't do crowds or loud noise so I really didn't know how it was going to go but I thought outide was a better chance. So we booked a holiday in the area of the festival and have waited and waited for the day to arrive (since March). Yesterday arrived and we went early (thank god) to let it build up around us - just her and me....... and no picnic except a few nibbles as you weren't allowed to take food and drink in........ Luckily headed for a burger and fries stand and had lunch and a drink early on then got near the stage and worked out what to do. The crowd was building up but there were spaces behind a few girls in the front row so we stood there and made a plan. Luckily I found myself standing next to another mother who had also done the previous day with her daughter who also stuck out like a sore thumb (mothers not Kids!!!!) and she advised us not to move and slowly edge into the next gap..... well Meg wouldn't edge but clung to me..... but coped as it built up around. This was 2pm, lots of bands came and went, slowly....... and she just stood there and waited, clinging tight to me, but not fussing. And the crowd got deeper and deeper. Our bladder control amazingly coped as we waited for 6 and half hours for JLS to come on and just before they were due on I managed to persuade Megs to squeeze into a gap I created by doing a bossy mother act so she could actually see them as she couldn't where she was standing. So she let go of me and stood and waved and sung to her hearts content and it was just the loveliest thing to see her grow in confidence in that half hour. So worth the aching back, the sore feet and the bursting bladder. Then as soon as they finished she rushed back and announced we were going. So we didn't wait to see Jessie J but to be honest I don't think my bladder or feet could have coped. She was so proud of herself and so buzzing that she actually saw them properly it just makes all our little battles worth it. Thank god for JLS, luckily she is starting to think along Olly Murs so he had better not stop is all I can say.
But another thing I think may have helped is I think she is feeling alot better. My stepmum, who is very into alternative health, ages ago gave us some enzymes to try, they are made by biocare and have lactase, maltase, sucrase, lactobacillus acidophilus and a few other things. I haven't tried them before as she was still being tested but I have suspected sucrose intolerance for a long time. Well the metabolic blood tests drew a blank so I knew then it wouldn't do any harm to try them so over the summer holiday I have given her one with lunch and with supper. Well within a few days I noticed that the farting had considerably decreased and she seemed calmer alot more. And if I forgot to give her one I could hear the gas starting within an hour of the meal. She also started reminding me about them at meals and has agreed she feels better so maybe with some diet tweeking and these pills we may have a solution. She certainly seems to have had more consistent energy this holiday.
Anyway better go, we have to do battle with her unruly mop of hair that has run riot over the holidays and she is very, very tired so calm mode mother. But just had to share this experience with you all.
Downloaded picture off phone, she is in the grey top with her hand waving and the kind girl who stepped back to let her in: Sorry quality not good only just started using this camera.
We are getting there ever so slowly with Megs and I will fill you in on where in a minute but I have just had the most fabulous experience with my little girl who aint so little now. She isn't the bravest of souls, will never put herself out there, I am pretty certain she has Aspergers in some degree or another so this weekend was a major deal for her and we have been building it up slowly. She is a huge fan of the boy band JLS ever since she saw them on X factor and then they arrived at the hospital the day she was admitted for 2 days of horrible tests to celebrate the first birthday of the hospital wing. Well anyone who is anyone will know that they are splitting up at the end of the year so I managed to find some tickets to go and see them at a music festival this weekend. Now Megs doesn't do crowds or loud noise so I really didn't know how it was going to go but I thought outide was a better chance. So we booked a holiday in the area of the festival and have waited and waited for the day to arrive (since March). Yesterday arrived and we went early (thank god) to let it build up around us - just her and me....... and no picnic except a few nibbles as you weren't allowed to take food and drink in........ Luckily headed for a burger and fries stand and had lunch and a drink early on then got near the stage and worked out what to do. The crowd was building up but there were spaces behind a few girls in the front row so we stood there and made a plan. Luckily I found myself standing next to another mother who had also done the previous day with her daughter who also stuck out like a sore thumb (mothers not Kids!!!!) and she advised us not to move and slowly edge into the next gap..... well Meg wouldn't edge but clung to me..... but coped as it built up around. This was 2pm, lots of bands came and went, slowly....... and she just stood there and waited, clinging tight to me, but not fussing. And the crowd got deeper and deeper. Our bladder control amazingly coped as we waited for 6 and half hours for JLS to come on and just before they were due on I managed to persuade Megs to squeeze into a gap I created by doing a bossy mother act so she could actually see them as she couldn't where she was standing. So she let go of me and stood and waved and sung to her hearts content and it was just the loveliest thing to see her grow in confidence in that half hour. So worth the aching back, the sore feet and the bursting bladder. Then as soon as they finished she rushed back and announced we were going. So we didn't wait to see Jessie J but to be honest I don't think my bladder or feet could have coped. She was so proud of herself and so buzzing that she actually saw them properly it just makes all our little battles worth it. Thank god for JLS, luckily she is starting to think along Olly Murs so he had better not stop is all I can say.
But another thing I think may have helped is I think she is feeling alot better. My stepmum, who is very into alternative health, ages ago gave us some enzymes to try, they are made by biocare and have lactase, maltase, sucrase, lactobacillus acidophilus and a few other things. I haven't tried them before as she was still being tested but I have suspected sucrose intolerance for a long time. Well the metabolic blood tests drew a blank so I knew then it wouldn't do any harm to try them so over the summer holiday I have given her one with lunch and with supper. Well within a few days I noticed that the farting had considerably decreased and she seemed calmer alot more. And if I forgot to give her one I could hear the gas starting within an hour of the meal. She also started reminding me about them at meals and has agreed she feels better so maybe with some diet tweeking and these pills we may have a solution. She certainly seems to have had more consistent energy this holiday.
Anyway better go, we have to do battle with her unruly mop of hair that has run riot over the holidays and she is very, very tired so calm mode mother. But just had to share this experience with you all.
Downloaded picture off phone, she is in the grey top with her hand waving and the kind girl who stepped back to let her in: Sorry quality not good only just started using this camera.
