HFI vs FM pro boards

[kate]

My daughter has not been diagnosed with HFI but nor does she have typical FM. Like many people using this HFI Proboard she falls into that confusing murky ground where avoiding fructose (and other things such as dairy, starch, etc) seems to completely dominate your life and yet you have no firm diagnosis.

I post on this Proboard very infrequently as my daughter does not have HFI and yet I check it at least weekly as the info on it is invaluable. Instead I try to stick to the FM Proboard which is currently not well used. Why don't all you others not diagnosed with HFI (even those awaiting diagnosis) come and join me. I think we could all support each other much better over there because, lets face it, these HFIers have it easy! All they need to do is avoid fructose in any form. Other fructose issues are harder to deal with as they often come hand in hand with other food intolerances and are generally not recognised by the medical profession (in my experience). It's confusing and hard work.

And HFIers, I've noticed you all mentioning and gently encouraging non-HFIers to check out the FM Proboard. Why don't you get a bit more strict. Tell people not diagnosed to repost on the FM Proboard and then answer them there. Frequent the FM Proboard to share your expertise, but keep this Proboard for those with a diagnosis.

Those are my thoughts on the matter. What do the rest of you think?

[nicoleh]

HI Kate,
I've actually been meaning to read up a bit on the FM proboards myself sometime just to see what range of symptoms etc is like. I would love to hear what the 'non-typical' FM looks like, as my DD certainly doesn't have typical FM either, though it seems as though she does have HFI, so far as we can tell at the moment.

do you think it might be difficult to decide who belongs where if your 'rule' was followed? What about someone like us - doctor says she has HFI in his opinion but her testing isn't finished yet? What about someone who's doctor advises they follow the HFI diet until it is ruled out? the dietary advice they get on the FM board may be unsafe for them. what if they have no FM symptoms but have a totally different reaction to fructose? Just a few questions to ponder.

I can completely understand about wanting more people to support each other, and I agree that sometimes the grey areas are really irritating. There's a chance we'll find ourselves in the gray area soon, depending on how our next appointments go. Our other family members used to have food intolerances and I know what you mean about the medical profession not being all that helpful. I'll be interested to head over to the fm board right now and read your story.

[charlie]

Hi thanks for that Kate. That was my main reason for starting the fm board, as well as to get more info for us as I was still confused. But as you say it isnt well used so is ending up more like a blog so then it doesn't hold people's interest. I guess this board is so much bigger people get more ideas. I have felt very unmotivated to do any more to it recently as we are now so unsure of what is wrong now with Meg.

Nicole people unsure can always use both I know several members do, just use the link in my signature.