Christmas treat recipes?

[elilly]

It's that time of the year that I try to make Graham recipes similar to what everyone else is having. I have already developed fructose and gluten free versions of pinwheel cookies, peppermint patties, and frosted sugar cookies.
Next on my list is chocolate fudge, buck-eyes, and caramel corn. Anyone have recipes that they are willing to share?
Thanks!
Erica

[ukbill]

A rather important question here.. is he HFI or FM?

[ukbill]

I have lots of suggestions all HFI safe.. but none of them will contain chocolate or anything sweet at all. Caramel corn?? my teeth are starting rotting thinking about that!

IF he's HFI why all the sweet stuff?

[elilly]

He likes it and it is safe for him. Simple as that

[Tammy]

Erica,
I have pretty much put all my recipes on here. There are pages and pages of them. I don't remember any fudge of any kind though. I do most of my chocolate flavoring using sugar free chocolate pudding. Regina does fine on plain cocoa but I've never had a lot of luck using it other than in something like cake.

I've only ever put butter or cheese on her popcorn. I've never tried to caramelize it as she doesn't like things that stick to her teeth.

I would be interested in your pinwheel cookie recipe and peppermint patties. My son's girlfriend is gluten free and this is a whole new world to me so maybe she and Regina could share these

[ukbill]

Dec 4, 2012 20:40:00 GMT -5 elilly said:

He likes it and it is safe for him. Simple as that

In don't doubt he likes it but safe???

I doubt that.

[elilly]

Bill, the items I create for Graham are very safe as his liver enzymes are well within range and he is asymptomatic. His gastroenterologist, nutritionist, and metabolic physicians are all pleased with his growth and disease management. Thank you for your concern though.

Tammy, interesting on the sugar free chocolate pudding. I have never used that before. Most of our recipes include either cocoa powder or bakers unsweetened chocolate. Please message me your email address for the pinwheel cookie recipe as it is an adaptation of a copyrighted recipe. I will post a link to the peppermint pattie recipe.

[elilly]

Here is the link to the cream cheese candies:
allrecipes.com/recipe/cream-cheese-candies/detail.aspx?event8=1&prop24=SR_Title&e11=cream%20cheese%20candy&e8=Quick%20Search&event10=1&e7=Home%20Page
I just sub dextrose cut witha little cornstarch for the confectioner's sugar. Then, I dip these into chocolate (shortening, unsweetened baking chocolate, and dextrose).

[Tammy]

Oh the pudding is very handy for many things. Need frosting for cake? Pudding. Cold popsicle? freeze pudding on a stick. Need a dessert? Pudding in a pie shell with sugar free coolwhip. Need to thicken something or make it creamy? Dry vanilla pudding mix. (even mac and cheese)

It also makes great moist cookies. I have the recipe posted on here.

Interesting to me, though is:
Dextrose + Cornstarch = Confectioners sugar. hmmmmm. I'll be trying this idea out

[ukbill]

OK the reason I said "I doubt it" was based on what we know for fact about HFI.

Fact 1/. All glucose for sale in the USA is likely to be contaminated with at least 4% "sugar"

Fact 2/. Confectionery Glucose (the solid stuff) can contain up to 40% "other sugars" and still be sold as 100% pure Glucose!

Fact 3/. The only person checked (as an adult) had a Fructose tolerance level of 100mg per day. He is not the most reactive of HFI'ers so we should use the 100mg as a maximum until we know more.

Fact 4/. We have no idea how safe or otherwise Dextrose is.

Fact 5/. The only way an HFI'er can be safe and confident out in the real world (without mummy looking at all the labels) is to avoid ALL sweet flavoured foods.

OK now lets look at a child's nutrition.. if a child weighs 20 KG then the maximum amount they should be getting from ALL foodstuffs (anything plant based is likely to contain some Fructose) assuming the weight of the adult tested being 90KG is 22mg per day!

This is why I say "Tolerated foods are not HFI safe foods!" because most "tolerated" foods contain some Fructose.

Glucose being 4% sugar (assuming it sucrose not pure Fructose) has 20mg per gram of Fructose as a minimum!

So for a child of 20KG (about 6 years old) just over 1/5th of a teaspoon of Glucose will give a child the maximum they should have in 24 hours (without any other Fructose in the diet)

OK so no one is going to react if they are given this amount even as pure Fructose, not hidden behind (masked by) Glucose.

This is the level at which the system starts getting stressed.

By the time the liver enzymes are raised a lot of damage has been done to the liver already.

If your HFI child has raised enzyme levels you REALLY need to look into the diet quickly, NO JOKE!

So you may think "well the enzyme levels are OK we are doing well??" yes but then again more likely no I'm afraid.

All of us with HFI know of the Brain dead, brain fog, hard to think days we get if we have accidentally eaten Fructose maybe several days before.

So if you feed your child any amount of Fructose over the amount the body can handle then they will to a degree be suffering from this brain fog effect!

So their School work will suffer!

Academic achievement will be badly effected.. I know it is impossible to concentrate at school when either having a reaction or recovering from one.

The only way to partially overcome this is to eat some high glysemic content food, like pasta, rice, milk, cheese etc.

From what I have read of other HFI'ers posts frequently you go for Glucose sweets (made from confectionery grade Glucose as a quick fix for brain fog.

Oh dear that is not going to help much is it??

You have to get your head around HFI.. its really not easy, I'm finding out, to be the mother or father (and a sugar addict to boot) of an HFI child.

I am so glad I can go into a sweet shop and not feel any desire whatsoever to eat what is for sale there..

I thank my mother with all my heart did not feed me sweet flavoured foods as a child, the torment I would be faced with on a daily basis if she had would be very hard to bear.

Also I would have had many, many more bad days as a result of eating foods I thought were safe only to find out later they were not.

[ukbill]

Elli I am sorry you think I am negative but this is not so, I am only trying to help HFI children grow into fully fit and healthy adults.

I am trying to be extremely positive and tell people they need not poison their children as they do in the mistaken belief they are missing out on something by not having sweet flavoured foods.

I understand it is possible to live HFI and also like sweet foods but believe me its far harder to stay safe and to be healthy if you are unable to detect the low levels that are necessary to stay below the level you need to, if you are used to sweet flavoured foods.

Not to mention the Constant low level poisoning from the contamination of the Glucose they are eating so much of..

You might have found safe sources and be able to keep your children safe.. others read what you are posting and think I can do that too.. but get it so very wrong.. then the child suffers and OH do they suffer..

I get emails and messages from mothers asking why their children are so ill all the time, in one case for over 3 weeks the child ate a "treat" made for it which was sweet!

You sound like a very rare person in maybe you are getting it right but so few do, so many get it very wrong trying to copy you and others who promote this idea.

In short you are playing with fire and so far it has worked out for you.. maybe, but other children are getting burned (metaphorically, an HFI reaction is far worse than getting a bad burn) by their parents trying to follow these ill thought out ideas and copy these recipes but using unsafe ingredients.

The "Professionals" Doctors and the like do not understand, they have no idea what its like to be HFI and how to live safely with HFI in the real world long, after mother is not there to check every label, and if anyone in your "Physicians Group" had ever suffered a strong Fructose HFI reaction believe me they would have a totally different attitude to the subject..and a great deal more understanding!

I am so Glad I can go into a cake shop or sweet shop and not feel like I'm missing out anything, Yes cakes look nice as do fruit but I have no wish or desire to eat any of it and I am thankful my mother did not give me the feeling that I am missing out on something.

I am pleased to say that my "rational" is fully supported by lots of scientific proof and I am more than willing to discuss this with your Physician group, or any others, any time any place.

I would indeed love to see just what "Scientific proof" they think they have!

Unless you know how a food stuff like Glucose is produced you cannot use just it because it "claims " to be 100 % pure.. Glucose can hide up to 40% "other sugars" and legally be sold as 100% pure.

Test analysis is very inaccurate on things like sugars and carbohydrates and if they can regularly get below + /- 5% accuracy in their testing I would be very surprised.

Just ask your "physicians group" if they know this?

Do they know that all Glucose made from maize (as all Glucose made in the USA is) will contain all the sugar that is in the maize (+4%) because its not removed in the industrial process?

Do they know its made in the same vats and transported down the same pipes as HFCS? do they know if the vats and pipes are completely cleaned between each batch?

Physicians have no idea how unsafe Glucose and other sweeteners are, let alone the physiological damage being done by not approaching HFI the right way.

My offer to speak to them is genuine.

Please put me in touch with them.

I doubt they will ever admit that they got it wrong because that would open them up to a legal compensation challenge.. however they would still offer totally different advice to another mother if they knew the truth about Glucose!

And that is all I ask.

[Tammy]

elilly,
Don't let Bill get you down. There is no "right" way to approach HFI. What is "right" for some is not "right" for others.

If a child is born with a natural aversion to sweets, then great! nurture it and support it and do it Bill's way. BUT not all kids with HFI have this natural aversion. If they don't, then Bill's way is much more harmful as the child will sneak unsafe foods. Since their reaction is often a couple of days off, then they also don't form the Pavlovian effect he likes to talk about either. They just don't associate getting sick 3 days later to something they ate and have forgotten about already. For these kids, satisfying their sweet cravings - safely - is a much better option.

It sounds like you have found the best options for you and your son.

[charlie]

But its ok to add garlic to your meal at 1.6g total sugars per 100g and masks a multitude of flavours......................

Sorry, had to chip that one in. Like Tammy, I find that controlled access to a few sweet tastes are better as I have found to my cost that otherwise the child ends up sneaking and you are left wondering several days later what you slipped up on. Better to educate the parents on how to spot the reactions, what their what is a safe quantity for that child. Yes, some can nurture their natural aversion but those that don't have that naural instinct inborn they are never going to develop it if they never try the taste you are trying to avoid and therefore learn so rather than banging your hand down and saying no, no, no find a way of balancing it out safely for them and their safe limits for a much happier and therefore healthier individual.

Have been meaning to mention this actually, due to going round in massive circles with the hospital and still no clear answers I suggested to the doctor that maybe she isn't reacting properly to the tests as her diet is so restricted that she isn't throwing the normal reactions to their tests. Therefore we decided to put her back on a "normal" diet and see what happens. Now I have done this very carefully and she is probably on one third of a sugar and fructose diet that a child would have and she is starting to say - maybe I shouldn't have had that, so maybe, just maybe she is picking it up for herself, also there are some things she really doesn't like the taste of so again, maybe that is her body telling her it doesn't suit. Meanwhile alot of the old symptoms I had forgotten about are coming back so perhaps we will get some clear answers. I don't think her reactions are strong enough to be HFI but more likely a multiple sugar malabsorption problem though.

Perhaps people could adopt what we are trying on the malabsorption board and when they type recipes just add a clear note if it uses an ingredient eg one with dextrose to check their safe balance.

[charlie]

Erica, hi, just read back over some of your old posts to remind me of your history. Just to see what has set Bill off again...................

Have you now got a confirmed diagnosis of HFI as I seem to remember you were like us and seemed to have multiple sugar malabsorption problems? That would certainly change Grahams level of tolerance to others.