Wikipedia Page

[colormist]

I checked on the wikipedia page after ignoring it for a whole year. It seems most of our edits have been deleted and replaced with (referenced) incorrect information.

I'm a little frustrated. Right now the wikipedia page is near impossible for a non-geneticist/biologist to understand.

It also said that treatment requires a dietitian, as they know what foods are safe for people with HFI. >_<; I had to delete that part. I couldn't bear looking at it.

en.wikipedia.org/wiki/Hereditary_fructose_intolerance

I'm still uncertain as HOW to source a fact about HFI. Perhaps if I wrote a book, then I would be allowed to source such a fact.

EDIT: I made a BUNCH of changes. I was getting a more than a little upset. I also deleted two links (one to a paragraph about DFI and one was a broken link). I added the link to my blog.

[flanagan]

Last year, the wiki page was a big help to me. The common traits section especially. I read the traits and thought, "well, that's pretty much me to a tee". Thanks for your hard work on this colormist.

[ukbill]

Just tried the link and got "Bad title" error?

Where has the page gone?

Edit..

This link works (today)

en.wikipedia.org/wiki/Hereditary_fructose_intolerance

It is a little missleading though..

We could do with the following removing or explaining better..:-
"Treatment

Treatment of HFI depends on the stage of the disease, and the severity of the symptoms. Stable patients without acute intoxication events are treated by careful dietary planning that avoids fructose and its metabolic precursors. Fructose is replaced in the diet by glucose, maltose or other sugars.[1]"

Fructose is NOT replaced it is is avoided as are all sugars.. if possible.

[colormist]

I left that "fructose is replaced" line because we can process glucose, lactose, and a couple other sugars. I agree that it is misleading, though. I'm not sure where I could source an article that would prove my point.

Eh, I just deleted the whole sentence. It's too misleading and people might think their kid could handle honey because it's not fructose.

[ukbill]

That was my concern.

Thanks for that.

When I get a chance I will try to think and find a reference that might be less ambiguous and send you a message about it. If I find one that is..

Keep up the good work

[colormist]

Interesting, all my edits have just been undone. Even my deletes of external links that were broken.

Extremely frustrating.

[carolyn]

colormist, why do people change correct facts! It p****s me off! I used to assume wiki was pretty well referenced & I would trust it! Not any more! If I get a spare minute or two I'll do some reference hunting too.

[flanagan]

I'm surprised this Canadian hockey fan cares that much. Who decides to write a ton of wikis on hockey, and then just go ahead an edit a few rare medical entries. I've never edited a wikipage before, but I guess it's time to learn how. Only way to get the information that we feel would be beneficial is to play by the rules. The way the page reads today,... it is distinctly unhelpful.

[colormist]

I finally went back to check the wikipedia page. I had made a comment on the "talk" tab to write my complaint about people deleting my edits and the hockey fan responded and said he wasn't a bot.

I was very incensed with rage, so I pulled up the article Fred sent me and added a whole bunch of technical crap and referenced an article he can't access (unless he pays money).

I also noticed that Fred's article had a table of KNOWN mutations in it. I thought we could add our mutations if we know them, so we'll have a reference (you know, presuming the hockey fan doesn't delete them).

[kollynsmom]

Ours is "A heterozygous mutation, g.-132G>A. Location 5'UTR Reference PM ID: 20882353"