Post by deb on Apr 30, 2012 22:51:51 GMT -5
Hi everyone,
After a long wait, we have finally been referred to the head of the metabolic department and have an appointment coming up for our daughter, who is 6. We plan on asking them to repeat the breath test that was done two years ago (which was very positive and they/we presumed was severe FM), but this time we want them to measure the blood and urine. I have searched through the site and gained some great kernels of wisdom, but was wondering if any of you had advice re the following:
As far as I understand it, they will need to test her blood fructose and glucose levels repeatedly, as well as her urine for fructose and uric acid, her phosphate levels, and her liver enzymes. It should presumably be done on an empty stomach. Anything else to test for?
As for amounts, any suggestions? She seems to handle up to 300 mg of fructose if it is ingested along with other food, but beyond that gets abdominal pain, nausea, etc. shortly after eating. We don't want to "overdo" it, but we do want to make this whole horrible exercise worthwhile, so to speak. Since dramatically reducing her fructose intake she has become very sensitive - much more so than ever before, whenever we mess up with the diet. So- any advice as to amount and length of time for the test would be greatly appreciated.
Also, we are going on the assumption that she will have the breath test where you drink the solution, as opposed to having the fructose administered intravenously. She weighs close to 50 lbs.
Thanks ;-) Deb
After a long wait, we have finally been referred to the head of the metabolic department and have an appointment coming up for our daughter, who is 6. We plan on asking them to repeat the breath test that was done two years ago (which was very positive and they/we presumed was severe FM), but this time we want them to measure the blood and urine. I have searched through the site and gained some great kernels of wisdom, but was wondering if any of you had advice re the following:
As far as I understand it, they will need to test her blood fructose and glucose levels repeatedly, as well as her urine for fructose and uric acid, her phosphate levels, and her liver enzymes. It should presumably be done on an empty stomach. Anything else to test for?
As for amounts, any suggestions? She seems to handle up to 300 mg of fructose if it is ingested along with other food, but beyond that gets abdominal pain, nausea, etc. shortly after eating. We don't want to "overdo" it, but we do want to make this whole horrible exercise worthwhile, so to speak. Since dramatically reducing her fructose intake she has become very sensitive - much more so than ever before, whenever we mess up with the diet. So- any advice as to amount and length of time for the test would be greatly appreciated.
Also, we are going on the assumption that she will have the breath test where you drink the solution, as opposed to having the fructose administered intravenously. She weighs close to 50 lbs.
Thanks ;-) Deb
