Groin pain?

[deb]

Hi all,
I have been posting in the 5-12 section until now, as our daughter is 6 and grappling with some form of fructose intolerance. I am posting here now as this is more of a general question --
Our daughter has been complaining for a month of severe groin pain, primarily one-sided. She has had an x-ray done that showed nothing, and has an ultrasound scheduled for a month from now.
The pain is intermittent-- sometimes she is completely normal; other times she can barely move and I have to keep her home from school.

She has been examined by three different doctors who have all said it is not growing pains, but they don't know what it is.

The strange thing is that she often complains of nausea and stomach pain with it - pointing to the same mid-abdominal region that hurts her within 10 minutes or so of ingesting fructose. All of her bloodwork is normal.
Has anyone heard of/experienced anything like this? I was going on the assumption at first that this was musculoskeletal, as the doctors have been leaning in that direction, but the weird stomach pains and nausea have got me a bit concerned that maybe this is somehow connected to?...

[ukbill]

Sucrose and Fructose will inflame the bowel and can cause problems.

I get similar to IBS symptoms if I forget to take Colofac in the morning.. even if my diet is 99.995% Fructose free ( well what I mean is as low as I can get ; ) )

I remember as a child being taken into Accident and Emergency a couple of times and aslo to local Doctors which low abdominal pain. in the region of the appendix.

It never totally flared up and required removing. however I had a couple of close calls where they were considering operating.

Try her on unsweetened Peppermint tea that is always good to settle the gut and tastes great too

[colormist]

I'm not responding because I don't know where the groin is and I'm not willing risking googling the location at work. LOL

As far as lower abdominal, upper leg pains, I do get bad kidney pain after eating the slightest amount of fructose. That's located in the low back. Also, while growing up (pre-teen), my hips hurt really, really bad. I'm pretty sure this was just because they were growing horizontally (and not due to a HFI-related issue). Most times I couldn't walk properly without. I got out of gym class quite frequently.

EDIT: Of course, your daughter sounds a little young to be going through that kind of growing pain.

[esmee]

When my boyfriend had kidney stones it caused severe pain in the stomach, kidneys, and groin, plus nausea. I am not suggesting that your daughter has kidney stones, but it may be a kind of referred kidney pain.

[jennifer]

Before we took fructose out of my daughter's diet she had pain, irritation, and itchiness on her bottom which seems to have gone away once we took out the fructose. The docs say they don't know if its related, but it seems to be.

[charlie]

Meg has itchiness and goes very red around her bottom when she has fructose. I wonder if it is due to increased acidity caused by metabolic acidosis, my latest buzz words triggered by fructose.

As for the pain, if it is to the left side it could be bowel irritation or a build up of gas in the colon/ rectum which could be triggered by her digestive problems, or if to the right again gas / inflammation earlier in the large bowel.

If it is central it may be pubic symphysis pain due to a slightly twisted pelvis and nothing to do with digestive problems, more mechanical. (I'm an osteopath!!!!) so can e-diagnose that. Get her to lie flat on her back, legs out straight then go to her foot end and stand facing her, tickle her feet and if they both move then she's ok (No, no, only kidding!!!!). Actually seriously, you stand facing her(or kneel down if she is on the floor) and put your thumbs underneath the bit of ankle bone that sticks out on the inside of each leg. Rest your thumbs just under the bone and see if they are level, they should be but if she has a twist in the pelvis or a short leg then one will be higher than the other.

Then get her to stand up with her back to you and crouch down and put your thumbs across the crease in the back on the knee, again they should be level, if one is lower then that is the shorter leg or may indicate a twist in the pelvis making it appear short. Because the pelvis is made of 2 blades that meet at the front with a cartilage joint called the symphisis pubis then it can cause irritation and pain there as a result.

Just realised probably could have PM'd you this but own up how many of you now have your partners or kids laid out measuring their legs!!!!

[tikitavi]

I have the itchiness too, when I have fructose.

I also get gut pain (in the area of my lower abdomen) and urethra pain when I have fructose.

I am not officially diagnosed though!

[deb]

Thanks for sharing your experiences....We are still waiting for an ultrasound, and still puzzled. I think there may be different things going on that are aggrieving each other -- she may have pulled/torn a ligament (trying to do a split in dance class) or may have some kind of hernia (hence the ultrasound). But she definitely has more pain when she has eaten something with fructose-- usually in the upper abdomen or right side, and today she was complaining that it was radiating to her back - and also that her leg was hurting her... I let her have something with fructose the day before- I paired it with a lot of dextrose but I think that just delayed the reaction and made it worse, as she was fine immediately afterward but woke up with these pains...We decided to try seeing what would happen to her blood sugar if we gave her something with fructose but paired it with a lot of dextrose (we splurged on the pharmaceutical grade stuff) -- in order to continue gathering blood sugar data for our next dr appointment -- well, she didn't experience a drop in blood sugar, but she did have those weird pains and was foggy all day - had a lot of difficulty focusing, even after the pains had subsided. I have been reading through all threads and it seems that many on this board experience a delayed reaction like that?
....On a different note, I came across some unsweeteened cornflake cereal - They look and taste just like cornflakes minus the sugar! They are made by Erewhon - and are very expensive - but it was so exciting to find an unsweetened breakfast cereal that I had to share!

[ukbill]

Mmm yes that would be the effect of giving Dextrose with Fructose. you are not avoiding the damage only hiding it.

If you were to give her the Fructose without the dextrose what would the blood sugar results be then??

If after giving Fructose (about 150mg per kilo body weight and after a 12 hour starvation) her blood sugar drops then that is classic HFI it might not drop below 3.5 (EU standard) but if it drops at all then I would say its classic HFI.

She might need more than 150mg /kilo (depending on her natural tolerance level) to get below 3.5 but if it drops at all then please someone explain how it can happen without it being HFI?

Yes I have a problem with treats I buy for myself (little wax coated cheeses are very nice ) but they get snaffled by everyone in the house..

So when I go to the cupboard it is bare.. (I know how old Mother Hubbard felt! Unfortunately now my children are all of a size they would beat me up in return )

I have tried hiding my snacks but somehow they always get found.. except once.. when I could not find them myself either for quite a few warm summer months... not good..

But I will not expand on that.