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Post by charlie on Mar 9, 2012 8:03:17 GMT -5
One of the indicators for HFI is stated as being a natural aversion to sweet tastes, or at least fructose. Fbpase however doesn't have that natural aversion.
I have another theory, which is only a theory as Megs isn't diagnosed fully yet. She doesn't have an aversion to sweet tastes and neither do others on this board that were diagnosed very early. Maybe, by being so quick to pick up the problem these kids haven't been through years of eating the wrong food and reacting, therefore they haven't naturally put 2 and 2 together to come up with ugghh fructose response. Certainly Megs when being weaned wouldn't eat the pureed pear or apple that was second on the list of foods to try, infact she ate baby rice then eventually mashed potato so maybe she was naturally selecting what suited her. However now, give the kid a hot chocolate and she is in heaven.
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Post by Tammy on Mar 9, 2012 23:55:58 GMT -5
I've also always thought along the same lines, only with the fact that Regina doesn't react for 2 or 3 days. So she would never put 2 and 2 together. She never connected sugar and being sick, until we drilled it into her.
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Post by ukbill on Mar 11, 2012 22:14:01 GMT -5
I would reject sugar from 6 weeks old, however if my tolerance was not so low maybe I might have accepted the second bottle that contained sugar and not learned.. Then my life would have been oh so much worse. I have a theory that will maybe explain why kids eat odd things that are not HFI safe.. and adults too. I am currently researching and getting it firmly worked out before posting it, but so far it all adds up. Tammy have you had Regina's Uric acid blood level checked while she is reacting ? this might be what she is "reacting" to.
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Post by kat on Mar 12, 2012 4:38:16 GMT -5
My sister and I also had a natural aversion from very young, in fact we would refuse my mum's breast milk from a few weeks old if she had eaten anything too sweet that we could taste in it.
I hate the taste of anything sweet and it is amazing to me the things that some people on here can tolerate. Although I know that dextrose is 'safe' because it has a sweet taste I would not like it.
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Post by ukbill on Mar 12, 2012 9:56:00 GMT -5
Welcome to the site Kat. I hope you and your sister are both happy and thriving? I am currently researching how we with HFI learn to avoid sweet tasting foods, or not, any chance you can contact me so I can see if your experience matches those I already have taken notes from? edit opps! got email address wrong.. dyslexia rules KO info@fructose-intolerance.org end of edit. Will get me if you don't want to join the site here.. (its very safe no spam email and very few nutters.. besides me of course and I'm safe.) By the way Dextrose is not "safe" ! Most forms contain at least 4% sugar and maybe up to 40% "other sugars" depending on manufacturing method. We do not get a reaction because the Fructose is swamped by the massive amount of Glucose.. however damage is still being done, behind the scenes so to speak, which is why people who use Dextrose and all other sweeteners have problems those of us who avoid them do not have. Keep smiling
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Post by Tammy on Mar 12, 2012 23:30:20 GMT -5
They haven't ever checked Regina's uric acid level. It's not something that's ever been a thought. Not something I can have done either, as I can't remember the last time she even ate something to cause a reaction. Probably a few years back when we tried the new Splenda sugar substitute. Didn't work for her. And now that I've said that, I hope it doesn't jinx her and she gets something by accident Interestingly, both my son (who is not HFI but could be a carrier) and myself (who is definately a carrier) have problems with our big toe joints like gout. This last time for my son was pretty bad so he went to Dr. First said gout, but when gout meds didn't work, they thought maybe pseudo-gout which I had never heard of. Then they even thought maybe a bad sprain. Now they say they don't know what it is from. I just find this interesting from the one comment in that report I mentioned in the other post. Where it said carriers could be more prone to have gout.
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esmee
Full Member
gluten, lactose, fructose, histamine, and salicylate intolerant
Posts: 236
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Post by esmee on Mar 13, 2012 17:50:04 GMT -5
Another silent member of this forum laurak has a daughter that rejected almost every formula and baby food she tried and has always had trouble with hypoglycemic episodes but has never been diagnosed with HFI (though it is very likely she has it). Anyway, laurak also has gout when she eats too much fructose, and if you daughter does have HFI then she herself must be a carrier.
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Post by ukbill on Mar 13, 2012 20:56:12 GMT -5
I got the results of my blood uric acid level.. its very low! I'm happy about that but my Lipids have more than doubled in the last 4 years and are now considered bad risk.. So less red meat, only 500g per week! that's less than one steak! Criminal! I don't know how I will survive.. Anyone know if Pork is considered red meat??
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Post by Tammy on Mar 13, 2012 22:25:43 GMT -5
They advertise Pork as the other white meat. Guess that takes it out of the red meat catagory.
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Post by ukbill on Mar 14, 2012 8:05:44 GMT -5
Thanks Tammy I thought it might be. Reading a bit around the subject I think it might be the amount of Liver I have been eating to keep my vitamin and mineral levels up.. apparently its not good for Lipid levels. so might have to go onto vitamin pills again instead of dietary control.. I will also have to cut back on the prawns and shell fish too. what am I going to put in my stir fry's now?? Perhaps if I just eat smaller portions.. perhaps 1lb (500+g) of meat per meal is a little excessive?? Retest in 3 months to see how I'm doing will update then.
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