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Post by charlie on Feb 20, 2012 13:04:20 GMT -5
Blimey you lot, did you not have anything to do this weekend. Its going to take me all night to catch up on all these new posts. But that's ok, as I have all night, literally to do it!!!! Yes, Megs and I are having an all night party tonight. She has to go into London tomorrow for an EEG to try and figure out this blanking out and passing out and the trouble is so far she has been feeling well when they have tested her for absence seizures to not necessarily true negatives. So I have to try and put her into as reactive a state as I can in the hope that it will show up what her brain is up to. So she has to be sleep deprived and tummy reacting as these seem to be the most frequent times that she suffers from them. She has to stay up all night and arrive at hospital at 11 am ready to be wired up Yeah, right...... and I have given her various loads of fructose over the weekend to get her feeling as rough as I can. Could be a rough few days to follow, but we need to know what is going on to help her as it is seriously affecting her abilities at school. Will keep you posted, right new topic number........ maybe tonight won't be as boring as I thought...... Was planning to do a bit of housework too mind
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esmee
Full Member
gluten, lactose, fructose, histamine, and salicylate intolerant
Posts: 236
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Post by esmee on Feb 20, 2012 13:45:16 GMT -5
Good luck! Keep us posted. This should be very interesting.
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Post by ukbill on Feb 20, 2012 16:41:05 GMT -5
Dyslexia rules KO.. I thought the heading read Fructose loaded EGG! I thought WHAT the Best of luck with Megan I will be thinking of you both. Please give her a hug from me. OOOo
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Post by buddhasbelly on Feb 20, 2012 16:48:51 GMT -5
I also read ECG. Since I was diagnosed with arrythmia just last week, I thought: wow, another thing to blame on the fructose. But maybe not :-)
Well wishes for Megan and for you! Maybe watch a busy movie tonight? I went to see Toy Story 3 in the movie theatre with my nephews, that was pretty busy!
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Post by charlie on Feb 20, 2012 17:47:55 GMT -5
Eggs, ECG's, and its only 10.30, who's sleep deprived!!!!! ?? Mind you, you all doing a good job keeping me awake so far. Watched one movie, Air buddies, now tuning into Road Wars (about traffic cops), might see Bill and his taxi on there? no only kidding, sure you're a very careful driver in your corderoy trousers, beard and flat cap!!!?? ?? Meg enjoying the fructose loading!!! I'm not, she's pinging off the walls at the moment...... Just waiting for the plummet.
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Post by buddhasbelly on Feb 20, 2012 22:07:40 GMT -5
Just another little 'cheers' for you, to support you keep on going! For now though, for me this is off to bed now. Good luck! Nice to hear Meg actually enjoys the experiment so far :-)
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Post by charlie on Feb 21, 2012 14:05:27 GMT -5
Well, survived the night. Had to bail out at 3.30, was just too impossible to keep her awake, she suddenly crashed, could have been combination of sleep and hypoglycemic kick back from chocolate and jelly, pancakes, sugar and cream.......... Anyway, gave up trying to keep her awake and decided that she would still be very tired if only had few hours and snuck off to bed for a couple of hours.
God it was a long day but she was a little star. Lovely staff at department and instant feedback so no waiting. Negative for absence seizures which is good in many ways esp as meds can give gastric side effects. So back to metabolic drawing board on HFI and something is causing hiccups in neurological system.
I feel her brain works a bit like a mobile phone in a bad signal area and only gets half the conversation......
Right off to bed, I am knackered. Many thanks for the company last night......
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