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Post by tikitavi on Nov 23, 2011 8:12:36 GMT -5
Does anyone else have issues with probiotics? A friend made me homemade yogurt, with just farm fresh local whole milk and yogurt culture. There was absolutely no sugar or fruit or anything else added. I had a really bad reaction to it which lasted for days! Also had the same problem with homemade kefir too, which again was just whole milk and kefir grains. ! I did a little research and it seems that it's possible that the fermentation actually produces some fructose, so maybe that's my issue?
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Post by tikitavi on Nov 23, 2011 8:28:12 GMT -5
P.S. Here's one of the links I found that seemed to say that fructose could be released by fermentation: www.pnas.org/content/100/15/8957.full"The L. acidophilus BfrA fructosidase was most similar to that of T. maritima, which has the ability to release fructose from sucrose, raffinose, levan (β2,6), and inulin " Here's another: www.culturesforhealth.com/blog/2011/06/27/how-much-sugar-does-water-kefir-contain"During a standard 48 hour fermentation period, the kefir grains will consume all but about 20% of the sugar. The remaining 20% will have been almost entirely converted to fructose rather than the original glucose-fructose combination."
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Post by Diet and Disease on Nov 30, 2011 15:39:35 GMT -5
Yes! Not only eating it, but if I smell homemade yogurt, the back of my throat begins to swell! HFI patients, really, should not ingest any food that contains probiotics. But if you REALLY want homemade yogurt, tell your friend to give you 1/3 of a cup at a time and only eat 1/8 tsp a day (literally). Homemade yogurt contains billions of bacteria - 1/8 will give you everything you need. Take Care BJ dietanddisease.wordpress.com/
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Post by charlie on Dec 1, 2011 9:03:06 GMT -5
Hi Tikitavi, I am not aware of a problem with natural yoghurt in HFI but can be in FM because of the bacterial overgrowth that many sufferers have in the large bowel as a result of excess fermentation. Having cribbed back on your earlier posts you aren't sure if you are HFI or FM so maybe you are starting to get some indicators. FM sufferers have problems with probiotics and inulins.
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Post by Tammy on Dec 1, 2011 11:50:37 GMT -5
Regina is fine with yogurt, as long as there isn't any sugar in it. That's hard to find around here. I've never seen anything on anybodys list that says to avoid it.
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Post by tikitavi on Dec 2, 2011 5:23:48 GMT -5
Charlie, I did look into bacterial overgrowth as a possible issue, but I don't think I have it. Based on what I've read, when one has bacterial overgrowth, one has chronic digestive problems, which I don't. I only have any digestion problems when I eat fruits, veggies, sugar, and it seems, certain cultured dairy products (so far that's been kefir and yogurt).
I tried some creme fraiche the other day for the first time (which also contains cultures), and I had problems again. In fact, it was horrible. It felt just like a very strong fructose reaction. I felt like I was going to throw up all night and the next morning. I had really strange and completely overwhelming depression and irritability. Also I had excruciating foot cramps throughout the night and next morning. Then after about 24 hours, it all cleared and I was myself again.
It really did feel just like I'd had a bunch of fructose!
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Post by charlie on Dec 3, 2011 11:38:24 GMT -5
It sounds like you have a lactose problem in that case which again can be linked with FM as the FODMAP sugars that are not absorbable by some include milk sugars therefore all lactose products need to be eliminated.
Luckily Meg is fine with dairy so that is her main fuel, if I had to stop her cream consumption she would probably move out!!!! As far as I know most on here with HFI are fine with dairy.
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Post by tikitavi on Dec 3, 2011 15:00:44 GMT -5
I don't think it's a lactose problem. I have raw milk, raw milk hard cheese, and raw milk butter every day, with no problems.
I visited a goat farm today and talked with the cheesemaker. She said that my problems could have to do with the age of the cultures. Since yogurt, kefir, soft cheeses, and sour cream/creme fraiche are all "fresh" cultures, that might be the problem.
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Post by ukbill on Dec 7, 2011 1:40:08 GMT -5
The only problems with Pro-biotic yoghurt, I have had, is if I add them to my morning breakfast cereal bowl (where I have mixed in the Psyllium Husk) Because the Psyllium Husk gels up so much I suspect it is providing a base for the pro-biotic cultures to grow on. I seem to have a day or two of cramps if I do this. Eating a small pot of plain Pro-biotic Yoghurt at other times of the day causes no problems at all. A Warning though so far as I can discover all Pro-biotic drinks (you know the small bottles like Yakult) ALL contain Sucrose! Avoid them like the plague.
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Post by Ashley on Feb 23, 2014 22:02:18 GMT -5
Hi everyone -
It looks like there hasn't been a post on this board for a few years, so I hope someone still sees this! I'm 21 and just found out I have HFI about 6 months ago.
Just to clarify from what I'm reading on this post, people with HFI should not take probiotics? Is there a reason? Or any study that backs that up? I've been searching the internet to no avail. I've been taking probiotics for about two years and I get the feeling that they might be aggravating some of my HFI symptoms. However, a stool test showed I had "no growth" of lactobacillus strains in my GI tract and therefore I need to take lactobacillus or else I break out in hives and my stomach and joints hurt. I feel like I'm stuck between a rock and a hard place!
If anyone has any information on probiotics and HFI, I would really appreciate it! Thanks!!
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Post by charlie on Feb 24, 2014 3:46:40 GMT -5
Hi Ashley, welcome to the board. You will find a lot of good information on here. However you will also come across threads like this, we had an avalanche of them a few years ago by a couple of members who thought they had HFI but quite obviously did not and, much as I warned, have posted mis-information that gets picked up later. Probiotics should be fine with HFI but check the make and source. Most of the drinking ones have sugar in them, some yogurts may be made in factory with sweeter flavours and risk cotamination. If you take them as a pill then check ingredients, pill covering etc.
The biggest problem with the HFI diet is lack of fibre, which is why Bill likes his psyllium husks....... Bacteria need fibre to multiply so that may be a reason for your problem.
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Post by Ashley on Feb 24, 2014 5:58:58 GMT -5
Thanks for getting back to me! The ones I'm taking are in pill form, but they have fructooligosaccharides (FOS) as an ingredient, which I'm guessing means fructose? However, I asked my naturopath about it and he said FOS shouldn't be a problem because it isn't absorbed…it just stays in the GI tract. But he also doesn't have much experience with HFI. But now that I'm thinking about it, I was on probiotics before that didn't have any prebiotic in them and they still gave me a bit of the hypoglycemic/tired/overall "poisoned" feeling, though I don't think as bad as the ones I'm on now.
Just out of curiosity, do you personally have any experience taking probiotic pills? Do you have a brand you recommend?
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Post by charlie on Feb 24, 2014 6:45:58 GMT -5
How controlled are you on the diet, if fructose is sneaking in then that will affect the whole way your body feels and reacts to other things. Fill us in more on your story, your basic diet, how long you have been diagnosed and also location. We are in the UK so products may be different. If you join then you can access private messages to members too for more answers. It is quick and easy to do.
Fructooligosaccharides are more an issue in FM where the small intestines cannot transport the fructose through properly, in HFI that isn't an issue, it is later on in the liver that the problem occurs.
I have taken probiotics but I don't have HFI so I will leave that for those that have to answer. But I usually use lactobacillus acidopholous based ones that come in a capsule. I steer well clear of the expensive probiotic drinks as they are packed so full of sugar you need to take another one to counteract......
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Post by ukbill on Mar 16, 2014 10:37:06 GMT -5
I eat Probiotic Yogurt every day with no problems whatsoever. I suspect the problem mentioned above is something different to HFI (like my problem with SOY products and SOY oil in particular) So as with everything to do with an HFI diet.. if it don't contain Fructose try it and see how you get on. only of course only try one new thing every 4 or 5 days as some reactions take a few days to show up and that can cause confusion otherwise.
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Post by ukbill on Mar 31, 2014 1:02:07 GMT -5
Been thinking on the original problem with probiotics.
I have made my own Yogurt using live probiotic cultures taken from a newly opened fresh pot of probiotic yogurt and mix it into fresh ultra filtered long life milk.
I will never use part of this culture to produce another batch because of the very high risk of cross contamination and the next batch containing something it should not have in it.
I suspect the chaps original reaction was as a result of such a contamination because he claimed a friend gave him his starter batch, which is possibly where his problem originated from.
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