Post by esanford on Jan 10, 2008 17:08:35 GMT -5
Hi all! Glad to find a source of information sharing like this! This post is a copy of an email I sent to my friend's dietician, and I thought I'd get some feedback from you all as well.
My good friend was diagnosed with DFI, and we’ve been struggling to deal with the implications of this since the beginning of December. The problem mainly has been finding reliable information on what is safe for her to eat and what isn’t. In my research online I found that during the breath test, a change in H2 PPM of 20 is considered the threshold of DFI; her change was over 100, so can we assume that means she has a very low tolerance for fructose?
The booklet of information she was given, while extensive, doesn’t mention all foods/ingredients (particularly spices), and is a bit confusing to us. There is a list of foods that are okay and foods to avoid, then there is a more comprehensive list of the sugar content in many foods. The confusing part is that some foods on the okay list appear to contain more fructose/gram than some foods on the restricted or avoid lists. Is it a matter of fructose content compared to dextrose/glucose content? Even that didn’t seem to coincide with the avoid lists.
We were told that dextrose (the same thing as glucose) will bind with free fructose molecules and negate the bad effects. If she eats something she is unsure of, should she also eat some of the dextrose from the big bag she purchased to cancel the potential effect, or doesn’t it work that way?
The hardest is to find definitive answers about miscellaneous foods that don’t show up on lists. Anecdotal posts on even HFI forums (like hfinfo.com) seem to conflict with other information we have. People talk about eating tomato salsa and post recipes filled with garlic and onion powder, when tomato, garlic and onion are listed as “should be avoided” most places. How should we know what to do? Will she have to systematically try every kind of food one at a time to see if she has a reaction over the next four days?
These are the basic questions that have been bugging me. If you could help with any or all of them, it would be really appreciated. Thanks!
-Eric
My good friend was diagnosed with DFI, and we’ve been struggling to deal with the implications of this since the beginning of December. The problem mainly has been finding reliable information on what is safe for her to eat and what isn’t. In my research online I found that during the breath test, a change in H2 PPM of 20 is considered the threshold of DFI; her change was over 100, so can we assume that means she has a very low tolerance for fructose?
The booklet of information she was given, while extensive, doesn’t mention all foods/ingredients (particularly spices), and is a bit confusing to us. There is a list of foods that are okay and foods to avoid, then there is a more comprehensive list of the sugar content in many foods. The confusing part is that some foods on the okay list appear to contain more fructose/gram than some foods on the restricted or avoid lists. Is it a matter of fructose content compared to dextrose/glucose content? Even that didn’t seem to coincide with the avoid lists.
We were told that dextrose (the same thing as glucose) will bind with free fructose molecules and negate the bad effects. If she eats something she is unsure of, should she also eat some of the dextrose from the big bag she purchased to cancel the potential effect, or doesn’t it work that way?
The hardest is to find definitive answers about miscellaneous foods that don’t show up on lists. Anecdotal posts on even HFI forums (like hfinfo.com) seem to conflict with other information we have. People talk about eating tomato salsa and post recipes filled with garlic and onion powder, when tomato, garlic and onion are listed as “should be avoided” most places. How should we know what to do? Will she have to systematically try every kind of food one at a time to see if she has a reaction over the next four days?
These are the basic questions that have been bugging me. If you could help with any or all of them, it would be really appreciated. Thanks!
-Eric
