|
|
Post by vintage1935 on Aug 12, 2011 12:25:10 GMT -5
Hello,
I am curious to find out whether anyone else here suffers from low iron. How common is it in HFI?
My ferritin levels have always been low, but especially so during pregnancy.
If I don't eat red meat at least twice a day I am a zombie (especially if I happen to ingest any fructose along the way). Low iron with added hypoglycemia and brain fog is really awful!
The only iron supplement that does help is Floradix, but it has so many fruit juice concentrates added that I can't really take.
Does anyone have any suggestions on supplementation?
I do well on 1000 mg of Vitamin C a day for both low iron and HFI, but I do feel that I need to get more iron in too somehow.
Thanks in advance!
|
|
evelyn
Junior Member
Posts: 63
|
Post by evelyn on Aug 15, 2011 1:10:02 GMT -5
yes, I take this: www.spectrumsupplements.com/content.asp?node=484&pgid=359&lang=enI really like it. It is a liquid. Ingredients: iron, purified water New beginnings is the company Look at all their liquid supplements! I love this company! I have Celiac disease as well as fructose issues. Do you have HFI or FM? I have been anemic since my first blood test at 14 but, it resolved on a gluten free diet until I got pregnant again. I don't know if low iron is a HFI symptom but, it for sure is a Celiac symptom. Have you ever been tested for Celiac disease? It is connected to HFI. evelyn |
|
|
|
Post by ukbill on Aug 15, 2011 10:17:58 GMT -5
Low Iron is not a problem I suffer from .. I try to eat some green vegetable leaves at least once a week.. I usually go for dark green cabbage leaves.. I cut the white stems (veins) out of the leaves and finely chop them and stir fry them into a rice dish.. nice!  I also get a good boost form eating liver.. Lambs by preference.. it is really nice with mushrooms and mashed creamed potatoes.. (King Edwards). It contains lots of iron and B vitamins! I also pan fry Chicken livers with Lemon, soy sauce and chilli which is wonderful on a fresh green leaf salad with feta cheese,. I make a lemon and olive oil dressing to go on the leaves. Lots of vitamins and minerals in that!.  enjoy |
|
kim55
Junior Member
Posts: 77
|
Post by kim55 on Aug 16, 2011 17:07:00 GMT -5
Bill, I am also fond of chicken livers but the last time I bought them (the week before last) my son brought in the groceries from the car and he missed the package of chicken livers, which slid under the car seat.
The next day a friend and I drove an hour away and left the car sitting in the sun in 97F degree heat all afternoon.
You do not want to know what extremely spoiled chicken livers smell like! I don't know if I'll be able to eat any chicken livers for a while.
Vintage1935, I did not mean to hijack your thread. I am not anemic, but I have found that I feel better when I take a multivitamin pill with iron. I also tend to binge on red meat.
|
|
|
|
Post by ukbill on Aug 16, 2011 23:49:10 GMT -5
Kim55 Oh... I can imagine!
I cannot take any multi vitamin for more than a day or two.. yes I feel better after taking them ... more energy etc.. but I soon get incredibly painful joints starting with my elbows and then my knees go.
It turns out I am producing an awful lot of Vitamin A by my self (there's a lot of it in Liver) and if I take any additional Vitamin A it starts to crystallise out in my joints..
It was so painful it would take me 20 min to get up from the floor if I had to get down to sort something out.
My mother has Gout (she is 87) which is a similar condition except instead of Vitamin A its Uric acid that is crystallising out in mum's joints.. I really sympathise with her.
I once took an "iron Jelloid" vitamin tablet.. I went very "peculiar" for a couple of hours.. not nice.
So I have left them alone.
|
|
|
|
Post by vintage1935 on Aug 27, 2011 21:46:02 GMT -5
evelyn, thanks for the supplement suggestion.. I'll try it... I have had a blood test for celiac which came back negative a while back... I have HFI... I find that I can eat regular pasta with no problems.. though I have been told that I should avoid all wheat because of the fructans issue rather than Celiac... so I stick to white rice with occasional pasta
I cannot eat cabbage leaves... cabbage is one of the worst foods for me actually.. I baloon up like mad!
Organ meats are bad too... as I seem to have uric acid issues as well... in fact, I read everywhere that fructose is being digested into uric acid, so technically all of us with HFI and FM should have uric acid issues when we consume fructose... I get bad arthritis/gout pain in my joints from eating anchovies as well as high fructose fruit, same kind of pain, plus kidney and liver issues as well
Iron and B vitamin supplements do wonders for me though!
thanks for all your replies, guys!
|
|
|
|
Post by ukbill on Aug 28, 2011 9:59:46 GMT -5
"I read everywhere that fructose is being digested into uric acid, so technically all of us with HFI and FM should have uric acid issues when we consume fructose" New one on me will see what I can find. Anchovies can cause allergic reactions in some people just like shell fish etc.. If you are getting Uric acid problems I wonder just how much damage has been done to your kidneys? It could be that your Fructose intake is still far to high and you are getting related issues caused by damaged kidneys / liver which can confuse diagnosis. I do not have any idea how long, if at all, your kidneys will recover from damage caused by HFI.. They seem to be far more delicate an organ than the Liver which has a very strong regenerating ability. Having said that my Liver took at least 6 months to start to recover after the Doctors bungled my "Challenge Test" for HFI and gave me 10x the dose they should have done! My Liver before the test had been in really good condition too. The Pain I get from eating anything containing sugar is not a joint pain, its an every cell in my body pain.. it feels to me like every cell in my body wants to puke, the pain is all encompassing from the top of my head to my toe nails, if I had an "off switch" it would be pressed very quickly! Anything to stop the pain. Unfortunately Cabbage can do that.. to anybody do you cut out the white stalks / veins out of the leaves before cooking? How are you with spinach? |
|
|
|
Post by ukbill on Sept 8, 2011 9:27:59 GMT -5
vintage1935 I take a vitamin C supplement every day (it keeps me colds and flu free well mostly ) The one I take is called REDOXON all day defence and its made by Bayer. It is a slow release (8) hour type of product and I take 1 a day or if I feel I'm fighting an infection I take 2 2x a day! Anyway the key point is they are sugar free and contain IRON as well as Zinc. Admittedly as colours (yellow and red) and are not listed in analysis but then if they did they would charge more for them I can only imagine that they might help. For children I would open the gelatin package and sprinkle the yellow and red hundreds and thousands on to a Plain Yoghurt or home made ice cream. |
|
|
|
Post by colormist on Sept 9, 2011 23:29:44 GMT -5
You guys are making me crave fish and spinach. |
|
|
|
Post by Catherine on Nov 2, 2011 6:48:13 GMT -5
My 16 years daughter has iron definiceny anemia and Irritable Bowel Syndrome.
Being tested fructose malabsorption next Wednesday.
Catherine
|
|
|
|
Post by charlie on Nov 2, 2011 14:30:02 GMT -5
Hi Catherine, welcome to the board. Iron deficiency is quite a common problem with celiacs ie gluten intolerance. head over to the other board too www.fructosemalabsorb.proboards.com as there is often a link with wheat, IBS and fructose malabsorption that can be helped by a low FODMAP diet. Where are you in the world. |
|
|
|
Post by Catherine on Nov 8, 2011 5:48:55 GMT -5
We are in Melbourne, Australia
Regards
Catherine
|
|
carolyn
New Member
Member since Nov 2011
Posts: 48 
|
Post by carolyn on Nov 13, 2011 11:26:38 GMT -5
Hi. I have HFI & for several years have had to be taking iron supplements ( in the form of Ferrograd C) for low serum ferritin- last test was 10. Apart from avoiding fructose, I eat a mixed diet, including meat. Hb always normal. I'd always assumed it to be due to heavy menstrual periods for which I am soon to have treatment. Maybe it's not that at all!! I feel as if I've been tired for most of my life!!
|
|
|
|
Post by buddhasbelly on Nov 14, 2011 18:18:12 GMT -5
Hi Vintage1935,
Have you found a good iron supplement yet? I could not digest the pills and liquids they sell here in the Netherlands (also not the time release) so my GI specialist phoned me last friday to tell me he is prescribing me a intravenous iron infusion, so I don't have to digest anything! I am going to the hospital this Wednesday to get the infusion, will let you know if it works out for me. The GI said it should keep me on my feet for quite some time, iron wise that is. :-) bye!
|
|
|
|
Post by ukbill on Nov 16, 2011 1:13:07 GMT -5
When I have tried to take Iron supplements (because no one can believe I do not need loads of supplements, I have been pressured into taking them on odd occasions) I really react badly to them I salivate uncontrollably for about 2 hours and feel really "odd" and have poor sense of balance.
Luckily the effect is not too long lasting.
Its happened at least 3 times I can remember, when I have been pressured by Doctors or family members who feel great on these "new Iron supplements, you must try some!"
|
|
|
|
Post by buddhasbelly on Jan 31, 2012 18:58:40 GMT -5
Hi Vintage1935, sorry it took me so long to get back to you about the iron infusion...it didn't go so well initially. I was very ill and tired, with flue like symptoms for about 10 days at my moms, and after that was also ill for a few more weeks at home. My bones hurt, especially in the first few days after the infusion, and alternately I ran fevers and in fevers (too low a temperature). That doesn't mean it didn't work for me, my iron levels are up for the first time...uhm...ever? The doctor that prescribed me the infusion was very careful about it. He stopped by to tell me not to expect magic the first few weeks, because the bone marrow has to work hard to make proper blood with it. I have to say that at the moment, I think I am starting to feel the effects of a higher iron level. My energy is better, I am still ill a lot, but my resiliency is better afterwards. I hoped I would also be less breathless, but that is still here. So the research continues :-)
|
|
roman
New Member
Posts: 31
|
Post by roman on Mar 20, 2012 10:31:23 GMT -5
Helena (no formal HFI diagnosis yet) is slightly anemic and has been all her life *except* during pregnancy, which is weird.
Anemia may be caused by subclinical celiac disease (intolerance to gluten) that does not manifest itself as inflammation of the gut (therefore goes undiagnosed).
Another common cause of anemia is Helicobacter pylori infestation (about 40% of US population have this bug). H. pylori is frequently associated with celiac disease and/or with SSRI (antidepressant) use. A test for this bug (from blood antibodies) is cheap and well worth getting, if for no other reason, then because H. pylori is the main cause of stomach ulcers (There was a Nobel prize given for this discovery. Ulcers are not caused by stomach acidity!) and later stomach cancer.
|
|
