HOUSE

[Tammy]

CJSculpts
Actually, if you go back and take notice, I didn't respond to any of Deb's posts. In the beginning she posted an e-mail address (and then said she was worried about spam??) asking for info from someone like us. So I "talked" to her that way a couple of time. After that, I just ignored her and kind of just waited to see how it played out. Figured others would see through her, too, in time. Was just about to my limit when your post came.

Actually, "god" is Chuck's humor. lol. We laughed when the first person hit that mark. It goes by how many posts you have. Guess that makes Laura and I the "big mouths" of the group. ;D
She's also god status. Although she probably actually deserves it. So I guess that just leaves me as the big mouth..........

[Tammy]

Kelly, so good to hear from you. I often wonder how you are making out. In Kindergarten already. Wow how time flies.

I always did the same thing as you are doing for Lily. I just made sure that Regina had the same thing as her big brother. Unfortunately she learned to be happy the hard way. After sneaking a kit kat bar one time, and after sharing some other little girls cookies, and of course the small mistakes made by accident, Regina got so sick that she decided herself that she only wanted "her" kind. She stays that way today. As long as she has something, she finds that better than being sick. Just small amounts give her a terrible migraine. I always made it a point to tell her it's because she snuck into something that she can't have. It's a hard way to learn, and I hope Lily doesn't have to go through that, but at least Regina finally decided herself. And it didn't really take that long. By the time she was in 2nd or 3rd grade she would ask "Is that my kind or Stevie's kind?" She would even go trick-or-treating and give it all to her brother and Daddy.

Hope Lily doesn't try it on her own. But if she does, just make sure she knows that's why she's sick. Good old "tough love" by the mean mom. Just remember, while your heart is breaking, we're here to prop you up.

I know not everyone agrees with me, but I still believe in making everything as close to "normal" as I can. That way she doesn't have to feel left out any more than necessary.

[colormist]

I really just write way too much. It happens on any forum I become attached to. ;_; Plus, I check this thing every day. I might be a tad obsessed. I was a Goddess on another forum, too. I thought it was funny when I saw there were similar statuses here.

Oh man, if I had a nickel for every time I ate something that I shouldn't have, I would already be retired. Up until I figured out my diagnosis a couple years back, I was still eating donuts (sugar-glazed--but I only ate the inside), bagels, cheerios, salad dressing, tons of veggies, fruit on occasion, chocolate, ice cream, etc. I'd always feel miserable afterwards, but I didn't draw the connectionEven my mom knew that I wouldn't like certain things that I'd insist on trying, like pop. She had no idea it was a genetic issue and only thought I was a picky eater.

Kelly, your kid is so lucky that you know what they have and can adjust their diet accordingly. Even the slightest misstep is reinforced because she knows what is causing the illness and it's not just some random flu bug or motion sickness.

[meaniejean]

It's funny you mention motion sickness - they always blamed my nausea and vomiting on motion sickness or heat stroke when I was little. I can actually read in the car with fructose restricted.

[colormist]

I still get sick sitting in the back seat, but I think it's association. I'm pretty sure every time I had to sit in the back on long car rides I was also having to visit relatives far away. Which would then cause me to have to eat food that was out of my comfort zone.

Either that or my father's horrible driving.

[julienc]

I projectile vomited in the car EVERY DAY from the age of 1 until who knows when. My mom though it was motion sickness, but I'm sure it was fructose I ended up eating for breakfast.

I love finding similarities like this amongst the group.

[meaniejean]

So cool! You'd think I'd stop being so shocked by all of the similarities by now!

[charlie]

Hmm, Megs projectiles in the car too, thought it was due to low blood sugar but maybe combination of, will take note next time. All I know is that if she says she feels sick I grab the pot very quickly or regret it for days after!!!

On another note, Tammy you so deserve God status. What you have done for Regina is amazing and the life you give her and have done so without this amazing tool we have so readily available in the internet should polish your halo every day. The support and belief that you give us newbies to this is amazing. Not putting the others down at all as all Gods on this board have been an amazing support but the difference is you, like me Chuck and Kelly, do not have the condition which makes it doubly hard to always do the right thing.
And like Laura I'm addicted to this board, its a real sanity saver and is the first thing i check after my emails when I go online.

And just lately its got more exciting than House could ever be!!!!!

On which note of recent hyperactivity, to anyone new reading this thread we really are a nice bunch of friendly helpful people who have all had our own trials and tribulations and crisis points which is all we were trying to point out to Deb Mc Guest so please do join and stick around and we'll try not to scare you off!!!

[meaniejean]

I second everything Charlie said!!! Tammy is my hero!!!!

My kids get to be "different" enough - if I can find ways to make them feel normal, then I'm gonna do it - like the super yummy marshmallows I made this week from dextrose (got sick of glucose syrups that were not pure glucose).

And I swear, we really are nice ...

[jejns1]

Hi,

What is the recipe for marshmallows with dextrose. I bought some Wilton's Glucose quite a while ago to add to homemade "Maple syrup" but the kids reacted to it. Shortly afterwards i saw the post about Wilton's not being pure glucose. we are able to buy pure dextrose powder at a wine/beer homebrew store. The kids would love to be able to eat some more "regular" treats.
Thanks,
Janice

[ukbill]

Hi, regarding dextrose,

I have not been able to find the actual purity of Dextrose except to find out that it is not pure.

Confectionery Dextrose is commonly only 60 % pure glucose the rest is "other sugars"!

I am not sure if the stuff you can buy in the shops is confectionery Dextrose or the more pure form.

In the UK Dextrose from Chemist shops (drug stores) is only 90% pure they do not state what the other 10% is but there is no added ingredients we have to assume its other sugars!

However take care as all Glucose is made in the same factories and using the same equipment as used to produce Fructose.

Also the source ingredient for producing the Glucose in The USA is Maize Corn which is usually about 4% sugar in any event.. so as they make no effort to remove this in the manufacturing process We have to assume that at least 4% of so called pure Glucose is in fact other sugars including Fructose!

Anyway you really want your child to reject anything sweet tasting (if they are HFI that is) because you cannot trust labels and when older they will want to eat out and at friends where they only protection is their own ability to detect very low levels of sugar in foods or drinks they are given.

Do not be seduced into thinking that feeding them sweet "treats " is the way to go.. far from it.

They (your HFI child) need to reject anything with sweeteners or anything tasting sweet in order for them to be safe for the rest of their lives.

I cannot stress this strongly enough feeding sweet tasting foods to an HFI person is completely the wrong way to go!

Best wishes..

Bill.

[Tammy]

The marshmallow recipe is under "recipes" on the home page. Be sure to find the little "page" on the bottom as there are 8 pages of recipes. If you haven't checked them out yet, it's a good place to spend some time and get some ideas.

Thank you for the nice ego-boost. I'm certainly not the most knowledgeable, or the one dealing with this the longest, but I will give you that I am probably the oldest "Mom" on here dealing with it. Which is probably why I don't always agree with the other HFIer's when they talk about avoiding sweets.

and Yes, I , too, am addicted to this site. I also check it right after my e-mail.

and for anyone new lurking out there, I agree that we really are a nice group of people. Normally even when we disagree, as UKBill and I are known to do, we still respect the other ones opinion.

[jejns1]

Well, we have been fortunate to be able to buy what seems to be pure dextrose. My kids are quite sensitive, they even reacted to whole brown rice powder in B6 tablets. I am confident we have a good product. We use in in all baking and cooking that requires sugar. We also make kool-aid with it. We use an unsweetened kool-aid packet, dextrose and water. No problems.

[esmee]

just wanted to add that I, too, became very car sick all throughtout my childhood. my mother gave me dramamine as a standard thing if the drive was more than 15 minutes. i still get car sick if i try to read as a passenge, but i am only just beginning a very low fructose diet so i do not know it this will make a difference or not.