kirbe
New Member
Posts: 3
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Post by kirbe on Jul 27, 2019 14:46:30 GMT -5
(I apologize for this long post.....scroll to the bottom for my main question lol)
Hello, I’ve been coming to this forum to browse for new recipes and safe ingredients for awhile now, and recently I’ve been more curious about HFI safe healthier meals. I’ve been consistently going to the gym and working out for about 2 months now, but I’m not really getting any results because I feel like I’m still eating poorly. Frankly, all I eat is plain pasta (or Mac and cheese) and eggs, so I don’t think I’m getting the right nutrients to promote weight loss/muscle build. Unfortunately, I’m not a very adventurous eater and tend to be extremely nervous when trying new foods. Although I was diagnosed with HFI at 2, I still had many hypoglycemic episodes (and passing out) and vomiting throughout my childhood after simple mistakes like getting regular coke instead of diet at a restaurant or when fudgsicles (my favorite) added sorbitol without any new labeling or packaging. By the time I was in my teens I (and frankly I think my parents too) became too nervous about introducing new foods, so I’ve stuck to an extremely limited diet. But now that I’m 24 and trying to trim down and gain muscle, I’m hoping to change that.
I want to try eating meat and vegetables, but I’m so nervous to try new food. Does anyone have suggestions on 100% safe food or meals that could help me maintain a healthy diet? I keep seeing “leafy greens” everywhere, and I’ve looked up a few recipes with spinach, but I want to also make sure that I ease into new foods since I’ve never tried it before. Has anyone had similar experiences of following an extremely restricted diet to introducing safe or tolerated foods? I would like to avoid feeling sick (or even getting sick) when I’m at work or something like that...
Also, I’ve been looking up protein powders that use 0 sugar (a thing I’m realizing may not exist). Has anyone tried any of these? As someone who likes to snack a lot, I was hoping to start having one of these drinks to keep me full longer. I keep seeing products that say 0 sugar added but then it will be vanilla or chocolate flavored, and I realize they really mean they didn’t add any *more* sugar than the natural flavoring. I did find an unflavored Isopure whey protein powder that looks okay (the only 2 ingredients listed are whey protein isolate and soy lethicin), but just wondering if there’s any warnings about products like these.
Again, I am SORRY for the long post. I just keep googling healthy recipes and ways to eat better and feel like it’s just impossible for someone with HFI. Hopefully some of you have found some ways to do it!
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Post by ukbill on Jul 31, 2019 16:28:13 GMT -5
have you been genetically tested positive for HFI?
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kirbe
New Member
Posts: 3
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Post by kirbe on Jan 29, 2020 10:25:18 GMT -5
have you been genetically tested positive for HFI? Hi sorry this took me 100 years to reply...but yes. When I was 2 I was tested at Yale hospital, and I believe they worked with doctors at Boston University. I don’t have like my medical records on me but....yes.
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Post by allison on Jan 30, 2020 11:16:40 GMT -5
Hi Kirbe A good place to start is for you to look at the sucrose database as it lists the amounts of fructose, sucrose, glucose and lactose in a lot of foods. Sucrose is 1/2 fructose and 1/2 glucose so you need to count that in when you are adding things up. The sucrose database is www.csidcares.org/treatment/food-composition-database/You can sort by amounts of sugar so you can look at the vegetables that are the lowest and then maybe start trying a few. I would do one at a time and always in small doses, even smaller than the amounts listed there..... and then see how it goes. Some that I have found to work are endive, curly endive, spinach, watercress, and some of the other leafy greens. Again in small doses. Some beans work for some people, I can do small amounts of black beans and pinto beans. Mushrooms except for portobello work for many of us. plain white pasta, rice and bread made with no sugar work too. You need to read the ingredients on everything, and the producers change things so read every time you buy things. Meat of all kinds works, just make sure it is plain meat, not brined. Sometimes even a rotisserie chicken will have been brined.... best to make your own. I try to buy the highest quality meat I can, grass fed, pasture raised, hormone free. generally spices work, like curry, garlic powder, cumin, oregano, rosemary, dried parsley and other fresh herbs. Pesto is awesome and if you make it yourself is safe, just don't add the pine nuts. Nuts are a big no and a difficult one for me because I grew up eating them as they don't taste sweet. I was not diagnosed until I was 30... try to listen to how your body feels. Sometimes however you might feel fine the day of but not so good a few days later. This is a sign to back off and maybe try a smaller amount next time. I hope this helps. Allison
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Post by ukbill on Mar 30, 2020 17:20:32 GMT -5
have you been genetically tested positive for HFI? Hi sorry this took me 100 years to reply...but yes. When I was 2 I was tested at Yale hospital, and I believe they worked with doctors at Boston University. I don’t have like my medical records on me but....yes. OK so why no meat in your diet? You will be really causing yourself serious problems without any red meat. an 8oz Rump steak provides far more Iron and more minerals and vitamins than any amount of vegetables you (a normal person without HFI) can possible consume in one meal, we are talking Kilos of Vegetables! This low nutritional value in Vegetables and fruit is the main reason Vegans need so many vitamins and minerals and their children have many times the average for birth defects. Fish especially oily fish (like Salmon or trout) is also vital for health. If you go into a "health Food Shop" take a look at all the vitamins and mineral supplements for Vegans and vegetarians.. there are none for meat eaters.. because we do not need them (except for vitamin C and folic acid if at any risk of becoming pregnant). The problem with eating meat is all the highly processed meat products and combined with nutritionally poor processed foods like cakes, cookies, sweets and chocolate, that normal people consume as well. Pasties, sausage rolls meat pies all usually contain large amounts of sugar in one form or another. We do not eat highly processed meat products because they are all messed about with so much they have to add sugar and high levels of salt to make them taste of anything. Hope this helps? keep smiling and stay at home .. stay safe
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Post by lazerlee on Jun 16, 2021 21:58:43 GMT -5
I was looking for a protein powder that that is vegan and fructose free.
It appears that I have inherited genetically both HFI and BASD (Bile Acid Synthesis Disorder type 4 along with the inability to safely process pristanic acid.)
Currently I have to take a caffeinated beverage or follow up with a large amount of glucose (i.e. rice.)
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Post by ukbill on Jun 21, 2021 4:38:31 GMT -5
Sorry how did I miss your reply? There are many things you can do to help feel full and have lots of energy through out the day. One that works well is a cornflour milk shake. The exact mix is personal taste really. I do a 50 / 50 mix of full fat plain Yogurt and milk, into which I add a couple of heaped teaspoons of cornflour (premixed in a little milk to take the lumps out) This will have a slightly powdery mouth feel but little taste. You can add protein powder to this if desired. Un cooked cornflour is slowly digested (over 8 hours) providing a source of pure clean glucose to your body direct into the blood stream (through the intestinal wall) Adjust the amount of cornflour to support you as required. I use it when I am going mountain walking. however over dosing the cornflour makes be uncomfortably hot for several hours.. so increase the amount carefully to get the desired effect. Keep smiling.
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Post by lazerlee on Sept 17, 2021 19:54:53 GMT -5
Thank you.
But not helpful as priatanic acid is found in all animal products and for me will induce other medical issues.
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Post by lazerlee on Sept 20, 2021 12:05:04 GMT -5
After looking around, I have found 3 available in local grocery stores. Garden of Life (GoL), Vega and Orgain. All 3 use Erythritol, GoL and Vega also have Stevia. My preference is GoL as they have added enzymes for digestion and absorption of nutrients.
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Post by lazerlee on Sept 21, 2021 15:39:00 GMT -5
I am not recommending, but I have tried taking fructose added protein drinks with steel cut (Irish) oats. The glucose from the oatmeal lasts much longer (releases slower) then the fructose in the protein drink. I no longer use Sucralose added protein, Sucralose is 200 times sweeter than sugar so the quantity used seems to be unnoticeable, however there are studies indicating that it builds up in the cells over time and has a toxic effect.
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Post by ukbill on Sept 27, 2021 17:22:12 GMT -5
One problem you might have is a damaged bile duct as a result of liver damage from eating far too much Fructose. 4g a day is the absolute maximum for a full sized grown adult. Vegan propaganda about how healthy the diet is is just lies and miss information. The Vegan diet is short on just about every micro nutrient and essential oil, not to mention quality protein. You need to see a good liver and geneticist doctor who can properly diagnose the issue with your bile duct. It is a known problem for HFI'ers who are damaged from too high a Fructose diet.
I have to tell you that a Vegan diet is not good for anyone let alone an HFI'er. Your life will be horrible and very much shorter than it should be if you follow this fad diet. Vegans are not in touch with reality. 45% of the population have issues with eating Fructose mostly in the form of FM (Fructose Maladsorption.) Know someone with IBS? then you almost certainly know someone with FM.
I have met many people and talked to many specialists over many many years the damage caused to babies (from Vegan diet mothers) is many times more common than none Vegan mothers for instance.
Without Farm Yard manure from animals grown for meat, soil fertility will dramatically fall and root crops (like potatoes etc) will be impossible to grow. So the world will starve.
Vegans have too import nearly all their food in the Northern climes for at least 50% of the year. Without FYM a massive increase in chemical fertilisers is needed to get any size of crop worth harvesting. etc etc.
We are told we have to reduce plastic to save the seas.. what do vegans wear ? oh plastic everything and a little cotton.
I wish we did not need to kill animals to live.. but humans are omnivores and HFI'ers carnivores, until some sort of alternative (not based on Frankenstein foods) is genuinely produced we are stuck with this situation. the answer is of course a smaller world population, about 1/4 the current world population is possibly sustainable in the long term, anything else is whistling in the wind.
Anyway sorry to be hard on you but facts are facts.
Keep smiling and get in to a good genetic clinic that knows about HFI asap. In my opinion you need to be seen sooner rather than later.
Take care and keep smiling.
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Post by ukbill on Sept 27, 2021 17:25:19 GMT -5
I am not recommending, but I have tried taking fructose added protein drinks with steel cut (Irish) oats. The glucose from the oatmeal lasts much longer (releases slower) then the fructose in the protein drink. I no longer use Sucralose added protein, Sucralose is 200 times sweeter than sugar so the quantity used seems to be unnoticeable, however there are studies indicating that it builds up in the cells over time and has a toxic effect. For an HFI'er this is suicide. Besides the Fructose, the fiber in the steel cut oats will add to the fructose load as it is digested in the small intestine. Digestible fibre is turning into sucrose in the small intestine.
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Post by lazerlee on Sept 27, 2021 23:09:01 GMT -5
Again, no science... X-ALAD is a protein defect that effects all my cells, but most notably the peroxisomes in the liver where bile is made. This variation (out of nearly 1,000) does not manafest untill Midlife.
Show me where oatmeal contains digestible fructose for humans? If you have a strain of bacteria that converts the fiber into fructose that is your personal problem, but not a scientific nor is it a verifiable conclusion. If you are lacking the enzyme breaks down Fructose (1 or 6) Bi-Phosphate. You might surely die, but that is not HFI.
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Post by lazerlee on Sept 28, 2021 3:41:20 GMT -5
UKbill,
Apparent you have another condition that permits fructose to build up in your blood. The skeletal muscle and brain of a normal healthy person have a preference of Fructose before Glucose (Aldalose A and C.) The liver has no preference, however unlike Fructose and ILactose, Glucose is limited and regulated in the blood. Do you need us to continually remind you to see a doctor about your inactivity and potential diabetes?
You spend far too much time projecting on others to get another medical opinion.
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Post by ukbill on Sept 28, 2021 9:33:42 GMT -5
Again, no science... X-ALAD is a protein defect that effects all my cells, but most notably the peroxisomes in the liver where bile is made. This variation (out of nearly 1,000) does not manafest untill Midlife. Show me where oatmeal contains digestible fructose for humans? If you have a strain of bacteria that converts the fiber into fructose that is your personal problem, but not a scientific nor is it a verifiable conclusion. If you are lacking the enzyme breaks down Fructose (1 or 6) Bi-Phosphate. You might surely die, but that is not HFI. Up to 45% of human population suffer form FM where digestible plant fibre is converted into sucrose in the small intestine! you can even find tables showing how digestible (for humans different foods are) So why would an HFI'er not digest a % of the plant fiber we consume?
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Post by ukbill on Sept 28, 2021 9:34:49 GMT -5
UKbill, Apparent you have another condition that permits fructose to build up in your blood. The skeletal muscle and brain of a normal healthy person have a preference of Fructose before Glucose (Aldalose A and C.) The liver has no preference, however unlike Fructose and ILactose, Glucose is limited and regulated in the blood. Do you need us to continually remind you to see a doctor about your inactivity and potential diabetes? You spend far too much time projecting on others to get another medical opinion. Yes I have HFI. that allows Fructose to build up in the blood as Fructose phosphate. Do you know anything about HFI?
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Post by lazerlee on Sept 28, 2021 13:24:34 GMT -5
You must have a serious shortage in the amount of Aldalose-B, although it is HFI, it limits your diet in a different way then having a normal amount of Aldalose-B that has one or more defects that prevent fructose breakdown in the absence of glucose.
How long have you been confused about which versions of HFI you have?
(It is also possible to be lacking the enzyme and have a defect)
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Post by lazerlee on Sept 28, 2021 13:47:37 GMT -5
Do you have a shortage of Aldalose B in the proximal tubual of the kidneys or mucosa layer of the small intestine?
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Post by lazerlee on Sept 28, 2021 17:05:52 GMT -5
What part of the globe did your genetic variation predominantly originate?
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Post by lazerlee on Sept 29, 2021 12:10:56 GMT -5
To be clear, even a person without the genetic disorder may have a buildup of fructose 1-phosphate in the liver. As it is the second step in breaking down fructose that is rate limited.
My understanding is that HFI is; 1. A genetic defect that limites the Aldolase B reletive to the "Normal". 2. A genetic defect that has modified the structure of the Aldalose B that prevents it from working to breakdown Fructose without Glucose. (Predominantly found in Central Europe,) 3. A genetic defect that has modified the structure of the Aldalose B that prevents it from working to breakdown Fructose without Glucose, that the Fructose has the potential to be cleared by epinephrine and possible restoration of Glucose availability. (Predominantly found in Northern Europe and North America.)
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