Post by oneladyff on Aug 28, 2015 1:33:17 GMT -5
I am new to this site
I am a physician and scientist working on fructose and hereditary fructose intolerance
I am also collaborating with Dr Tolan in Boston
We are trying to develop a safe drug or possibly nutraceutical to help patients with hFI that has been officially diagnosed
One thing we need to know more about is the natural history-- how common does liver disease occur-- how often one gets severe reactions like nausea or hypoglycemia
Would people be interested in completing a questionnaire and are you aware of there is an official registry?
I would love to help reverse this disease
Richard johnson
Richard.johnson@ucdenver.edu
R
