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Post by antonia on May 15, 2018 11:34:00 GMT -5
As far as car sickness is concerned the actual temperature can be cool, but just the sun coming through the window makes it worse she says. But then the sun can warm you quite a bit from inside a car even if the temp outside is cool, so I'm not sure which it is, the actual temp or the sun hitting the eyes.
But generally speaking Palmera hates the heat too. She will not go out in it unless there is a pool or sprinkler to cool off in. Outings on a hot day without a pool are a complete mess. Interesting as well, when she gets cold, her lips turn a purple/blue color. This has occurred since she was an infant and just happened the other day when I filled up our little, blow up pool in the backyard with cold, hose water. Blue lips, uncontrollable shivering. Her two friends playing with her looked completely normal. No idea if the ability to handle temperature changes, hot or cold, could be related to metabolism or not.
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Post by Stefanie (Ziba) on May 16, 2018 13:47:13 GMT -5
Do you all sweat in the sun more so than non HFI people? My son sweats all the time, even when sitting still. He often is soaked in sweat at night (despite taking lots of Vitamin D). We live in FL so it is always hot. He loves to run around and play but gets soon sweaty so fast. He is too young to articulate if the sweatiness /thirstiness also makes him queasy.
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Post by colormist on May 16, 2018 14:54:45 GMT -5
I don't know about sweating, but I just can't handle the heat. It feels like it's burning. The beach is the worst. I'm okay if I'm under an umbrella and can burrow down into cooler sand. Sweating makes me very itchy. Even hot things that other people seems to enjoy (hot bath, heating pads, hot shower, hot tub, sauna) make me extremely uncomfortable. I can only sit in a hot tub for about five minutes before I feel like I'm going to vomit. I can't sun bathe or visit tanning beds. I briefly tanned for my wedding and I was scrambling out of that tanning bed as fast as possible.
Heat does speed up metabolism. I wonder if that might have something to do with it?
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Post by Stefanie (Ziba) on May 16, 2018 16:11:50 GMT -5
Maybe so....it can be cool in the house and all of us will have blankets on at night, and my son will kick off all of his blankets. His body temp runs a bit low too which means heat will feel hotter to him than it does to those with normal body temps.
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Post by antonia on May 17, 2018 13:47:37 GMT -5
Palmera runs pretty warm too. Has always kicked off the blankets while sleeping. I've stopped buying her warm, winter pj's. They make her overheat pretty easily even when it's cold.
Have you ever taken his blood sugar when he sweats? Where does he sweat? Palmera has not sweat around the head for a very long time, only when she's sick now. It took me a very long time to recognize that her head sweating was not normal. Even after we figured out she was hypoglycemic, and I had heard sweating was a symptom of it, it took me a while to think back and remember all the times, if she fell asleep on me especially, the sides of her head around the hairline would get drenched. I assumed it was my body heat causing it.
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Post by Stefanie (Ziba) on May 21, 2018 8:05:50 GMT -5
Remy sweats from his head a lot. While he is awake, when he is active, he sweats quite a bit, but what stuns me is how sweaty he gets when he is sleeping (not every night). Some nights, his head will be soaked and the pillow is drenched. Can you pinpoint when/why Palmera's head-sweats ceased?
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Post by antonia on May 21, 2018 22:35:02 GMT -5
Once we started the HFI diet there was a pretty dramatic improvement in her quality of sleep. I don't recall her sweating at night after that. I remember thinking, so this is what it's like to have a healthy child.
Have you discussed it with your geneticist? You've mentioned before that Remy is on a ketogenic diet. I don't know much about that diet but could the sweating be related to that? I've only heard of it as a symptom of hypoglycemia. I know that when Palmera is in ketosis she gets very thirsty. But her ketosis is not the healthy kind. She eats a lot of carbs, so if she's producing ketones it's not normal and she's very sick and is always hypoglycemic along with it. But people in ketosis due to a low carb diet, I'm not sure how that changes the metabolism and if sweating could be more common.
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Post by Stefanie (Ziba) on May 23, 2018 12:55:33 GMT -5
Our geneticist didn't seem to concerned. When I look back, my daughter had a lot of night sweats, too at this age. Remy still prefers meat and dairy to grains, but he does get some oats and crackers in every day. I don't think he goes into ketosis much anymore. The sweating usually occurs at the beginning of the night, and while he has never been a great sleeper, he is sleeping better as he gets older (hallelujah) ;-)
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Post by antonia on May 24, 2018 19:58:58 GMT -5
Ketosis is an interesting thing. My husband is a type II diabetic. He controls his blood sugar through diet alone and eats very low carb. Most the time I would think he gets enough carbs from veggies, nuts and legumes to prevent him from going into ketosis. But if he cheats and starts eating starchy carbs and then goes back to his regular, low carb diet, he doesn’t feel very good for a while. In other words, it gets worse before it gets better. I think because it takes a while for his body to adjust to a low carb diet again. I’ve heard of this being called the “keto flu” by people who follow a low carb diet for weight loss. That period of adjustment the body goes through when it does not have sugar as its main source of energy anymore.
Also, I thought of another thing that might cause night sweats could be a vitamin or mineral imbalance. Not only deficiencies but too much of a particular nutrient can cause excessive thirst and then the body will try to rid itself of the excess through the urine and possibly sweating.
But if he doesn’t seem to feel bad then he’s probably fine. I just know it’s hard to tell at that age. It definitely gets easier as they get older! In so many ways. 😊
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Post by antonia on Jun 29, 2018 14:33:15 GMT -5
Colormist, thanks again for the car sickness tips. We just got back from our annual camping trip, a 3ish hour drive each way. We put curtains on the back windows and also took the headrest of the front passenger seat so Palmera could see out the front (I sat in back with her). We didn’t have to make a single stop for car sickness! Yeah!! 😀
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Post by colormist on Jul 2, 2018 11:15:04 GMT -5
Oh Antonia! That's great news! I'm glad it worked! I bet Palmera is so happy, too! That's such a relief. I had so many people (family, friends, friend's family) angry at me as a child. I'm so glad I could help and even more happy that it worked. I think I might have to write about this on my blog (now that I have more than just my own personal experience as evidence).  I used to read on my 1.5 hour bus ride home from school. I had read about the peripheral motion causing motion sickness and noticed that I didn't get nauseated if I read while wearing a hoodie and scooting down low enough in the seat so that the window was above my head. I wish they'd invent some horse-blinders for humans. Even modifying some sun glasses might help. I tend to just close my eyes if I find myself in the back seat of a car for more than 15 minutes and I feel the sickness coming on. |
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Post by antonia on Jul 3, 2018 11:49:13 GMT -5
YES, so much more pleasant for everyone, especially Palmera.
I have noticed this as well that sometimes she’ll bend over in her seat and close her eyes and try to sleep on longer drives which is not a safe position for the seat belt. Or even cover her head with her coat, which kind of weirds me out, but now I understand why she does it. She’s never slept in the car, not even as an infant, so I know she’s not really sleepy.
Hey, that sounds like a decent business opportunity. Some glasses or maybe even a hat with foldable “wings” you can push forward as side blinders. If you manufacture it, I will buy it!!😁
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Post by antonia on Jul 3, 2018 12:48:02 GMT -5
Also, a 1 1/2 hour long bus ride! That’s long. We’re building a house in a very rural area and I was considering putting Palmera back into regular school (currently home schooling). But she will also have a pretty long bus ride I’m guessing. She’s an avid reader but this would be tough for her. So if you could get on those human blinders asap that would be great 😉
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Post by colormist on Jul 3, 2018 15:59:37 GMT -5
I did see a patent for a similar product while I was googling car sickness, so I just did another google and found this product: www.travelshades.comSo expensive! You might have better luck just finding a hoodie with a deep hood. I've knitted myself one (by accident!) and I think I've seen them on etsy. That won't help with the heat, though. Something like this might work: www.etsy.com/listing/600430854/victorian-xxl-hood-singel-velvet-dusty(also really expensive!) Even a lightweight scarf might work. I actually lived within 30 minutes of my school, but my bus ride was longer because my driver was not able to get to my house before he had to pick up the elementary school kids. I had to sit through all the high school kids being dropped off, then loading of the elementary school kids, and dropping all those kids off before he finally got to my house. I was one of the last people on the bus. My last couple years of school, I convinced the driver (and my parents) to allow me to walk the last mile home so I only rode the bus for 30-45 minutes. I also always got in trouble on the bus because I ate snacks on the trip home (no eating on the bus due to a possible choking hazard). That HFI blood sugar drop got me in a lot of trouble before I was diagnosed. |
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Post by colormist on Jul 3, 2018 16:03:38 GMT -5
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Post by antonia on Jul 8, 2018 12:14:22 GMT -5
All great ideas. 😄 Thanks colormist!
I’m actually considering buying the glasses. They have a child size pair in blue, her favorite color, and she might even find them fashionable. This will be the trick, will she wear them in front of her friends. I’m guessing the glasses are my best bet.
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Post by ukbill on Aug 1, 2018 8:31:25 GMT -5
Possibly yes I have to keep fully hydrated particularly when exercising.
This is less prevalent now I am keeping very low in Fructose, however be aware that converting body fat back into Blood sugar also releases some Fructose via that metabolic pathway.
As a child every time I got thirsty I went Hypo.. I think our kidneys work harder also after we have had a bit too much Fructose trying to flush the toxins out of our body. So making us thirsty.
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